Hi Jim 788 here, haven't been on for some time. Been under palliative care, have been using Enzalutamide to try and control my PSA levels. Unfortunately failed, my PSA 175. I have known for some time that my cancer had spread to my pelvic bones, overnight I became very unsteady on my feet and unable to walk have been hospitalized coming out last week. Found metastatic T5 spinal cord compression and metastases in ribs.
Good news, I am been kept on chemotherapy. Hopefully this will keep my cancer at bay. I know Clive James aussie journalist lived for nearly 10 years with terminal cancer. What I find difficult its not my cancer, just being unable to walk. I do practice with a Zimmer frame.
My consultant introduced me to a Macmillan nurse specialist. Has been brilliant in sorting out my meds and just being there as you are. Interesting conversation, she wanted to talk about my future. Didn't get past me saying mmmmmmmmmmmm
As said yesterday is history, today a gift, tomorrow a mystery
Hi Jim, It is quite a few months since we spoke and i am pleased to hear you are being kept on the chemo to try to stabalise the cancer! I am still here, struggling with not being able to walk and get around on my own, especially in the deep snow we have here just now! I often think if i could only go for a walk to clear my head, it would make such an enormous difference but that is just not possible, so we have to just get on with it. It is good we can be ourselves here without pretending everything is fine! I see you have the same signature as me about yesterday, today and tomorrow! I try to live one day at a time and enjoy what I can. Like today a robin in the garden with his red breast against the white snow.....fantastic!
Love Annette x
Thanks for your reply what can one say this dam pandemic has given us who live with cancer a double whammy to deal with cant seem to find any good news been having interesting conversations and form filling form filling in my own time I have always been a guy who liked everything in order the normal things of life mundane bank/insurances that kind of thing I don't intend going anywhere just yet and take my lead from Clive James lived nearly 10 years as terminal but suppose one has to have discussions. I am lucky to be in constant connect with a great group of family and friends through the tech and of course this group through I have always been a very inter active guy and tech can only be second best but better than nothing thanks for letting me bend your ear JIm
You can bend my ear anytime mate, you have a fantastic view of life
Tvman
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