HAS ANYONE OUTLASTED THEIR PROGNOSIS Cont'd!

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I have spent almost 2 hours on and off trying to reply to the current Post. In red it told me I did not have permission to reply to this, so I'm doing it here.

REPLY

Hi Lynne_1961, DB61 and ALL, Welcome to the Group! Well, I think I am probably one of the group's 'oldest' (as in been here a long time) members. There are quite a few of us around! I was given 5-7 months to live in May 2013 when diagnosed with Malignant Melanoma Stage4. So obviously no one knows when you reach your sell by date! As you see I am well passed mine! The first time I was told I had cancer was the end of 2010 when I had a lesion on my shin, had a biopsy and they found it was 98% cancerous Melanoma. They did a Wide Excision March 2011 (down to the bone) I call it my shark bite, it anyone asks what happened! The surgeon was SURE he had got all the cancer. However while I was still attending his clinic for 6 monthly checks, in November 2012, he found 2 further tumours in my thigh. I had a groin dissection but the PET scan in May showed further mm.

I have defied fate, yet again this year when my oncologist said how important it was for me to self isolate as I have little or no immune system left to fight the COVID-19 virus. I had been at home for longer than 9 weeks then my husband and I became unwell. We got tested and BOTH had positive results for coronavirus. Well, I have some Post Virus Syndrome left over, in the form of Labyrinthitis BUT I'm still here! Never give up! Where there's Life there's Hope!

Every year they are coming up with new drugs and treatment, so odds are the longer we are here the more likelihood they will find something that will work for us!

  • That SiT just likes any sort of discipline! Once he has established a weekly register there will be sanctions imposed on anyone who fails to clock in on time unless a letter from your Mum is produced excusing all activities. I think a lot of us will fail that one! More and more ridiculous.

  • FormerMember
    FormerMember in reply to Norberry

    Ooh...

    Sounds like a plan and "The Matron" can be in charge...

    Curtains for Norbs!!!!

    Hahahaha

    SiT

  • Ouch. That is some Stab in the Back. I have got to find a huge trauma dressing for this one.

    Keep looking over your shoulder.........

  • FormerMember
    FormerMember in reply to Norberry

    Defo need eyes in the back of your head around here (sometimes...)

    Also - not sure my Mum would comply as she is nearly 88 and frankly, I think she has had her fill of my shenanigans... & who can blame her? Bless!

  • Hi, your story  had given me hope - thanks! Jayne 

  • Did you have any trouble applying for this for the 3rd time as I am a bit worried renewing mine for the 3rd time 

    Always remain positive.
  • And I’m still alive after first replying to this post ten months ago. It think my consultant is just confused. Twice I have been given 6 months, the last time being 13 months ago. I’m currently well and reasonably active. The truth is that no-one really knows

  • Yes I agree they do not know I was told 2 years 2 years ago and now he says I could live a few years x

    Ruth 

  • Well they said 8 to 12 months....it's now 6 !!!!! years....still going good.

  • Hi Lellynelly, So pleased to hear you are still here! Yes my consultant is also very confused, as I stopped taking the Trial Drug in September 2016 & here I am still kicking about. My husband and I celebrated our 50 year Wedding Anniversary at the beginning of this month, it is just amazing!

    Bubbliss, don't worry about applying for things over and over. I was getting DLA (disability living allowance) up to 2017 and then it changed to PIP and everything started from scratch with the formal interview and tests. I was wondering if I still qualified but then got a letter to say because of ongoing problems, they have awarded me PIP and I don't have to apply again for another 10 years! That's 2027 I could hardly believe it. I know for sure others have had similar awards, so stop worrying please and use your energy to do something you like!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!