So no I haven't wet myself (2 my knowledge) but I have so much extra fluid!!!
The lymphedema in the left arm isn't draining away despite the compression sleeve/glove, gentle exercises & light fluttery massage - so big fat tight Popeye arm is still there. Right arm has also got a slight bit of puffiness - out in sympathy??
And finally got the results of last month's scan & my right lung has more fluid in it - what can we do about that, if anything asked I? Well if I start 2 get breathless at rest (already a bit out of breath on exertion) then they might drain the lung...bleurghh. Don't fancy the sound of that but if needs must & it gives some relief....Has anyone bn on the receiving end of this?
As usual scan results frustrating- liver & lungs no change & extremely stable. However, considerable deterioration 2 the chest wall & the lymph nodes under the arm (which is wot's causing m lymphedema prob.
Onc hasn't given up on my treatment yet & I will get my nxt 4 x chemo rounds, maybe more if a)I'm still breathing b)it's still having some effect c)bloods r ok.
2day was frustrating as I attempted 2 go shopping 2 get some clothes that fit & a jacket I could get Popeye into & also get out of independently - ended up with a man's puffa jacket in large!!!!! Now I'm only 4ft 11" & was a size 10/12/14 b4 all this most recent caper, so u can imagine how glam I look. Up until last summer I was a shopaholic so think how many articles of clothing I possess- most of which will never c the light of day again.
On another sad note. I'm tentatively looking at selling my car as that's another thing I wont b able 2 use again- flippin depressing or wot :( . No point in us being a 3 car family if there's only 2 drivers. Daughter did suggest I trade cars with her - errrr nope!
Night all
WB xx
You may have to do some research before you kill the nurse. Is the food better in prison, or what the hospital ward like.
Anyway you can’t cos you have a graduation to get to. And you will. Us mums are made of strong stuff.
hope you are getting a bit of relief now .
Hi all
On the last elbow operation visit to hospital, the nurse decided not to give me a particular tablet, can't remember what it was, but it had been prescribed for me by a cardiac doctor and I protested vigorously without being rude, loud or over the top. Why did she think she had the right to do that? She didn't, and I won my case. Her reason was feeble and frankly incorrect.
I've a pre op appointment with the same orthopedic surgeon on Tuesday, I think. The 10th it is. He's going to try to do something with my cubital tunnel syndrome in my left elbow, I need the same done with my right elbow too, but when he gave me the option 2 years ago (yes, things in the orthopedic sector run abominably slowly in Northern Ireland) I chose the left because it's the most painful. I'm trying to cut back on MST so my daily total of tablets is 24. Down from 30! Cubital tunnel syndrome in the elbow is similar to carpal tunnel syndrome in the wrist but more painful because the area of pain and numbness is larger, from the elbow to the hand. Truthfully, I have been woken 3 times a night with pain for 4 years.
Last Friday was my trip to the cancer unit and my bloods are pretty good, obviously poor in terms of normality, but neutropenia is far away but that's probably because I have an infection which has kept me in bed for a week and a half. I have lost my team that I have had for 4 years but my contact now and for the near future will be a specialist nurse, trained in the art of deciphering blood cancer. She's enthusiastic, knowledgeable and sympathetic, seems to know her stuff. I'm happy with her and of course she's happy with me, she couldn't have a better patient 
Ok, lunchtime now, a little vegetable soup (I heard my wife chopping veg) and then I think I'll make a beeline into the veg garden and make a raised bed! Wish me luck.
Tvman xx
