Coming towards the end of active treatment

FormerMember
FormerMember
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Hi,

I have recently been put on a combination of Ribociclib and Fulvestrant for my palliative treatment. At the end of the first cycle my bloods have crashed and I am not sure I will get very long on this treatment because of it. I think my bone marrow has had enough! Having had myelosuppression end most treatments early. I am really struggling with the end of treatment possibility even though I knew it would come one day. Its not quite the end of the road but i cant shake the constant thought of it and the fear it gives me. Although I feel conflicted as I am grateful for the time and treatment I have had so far I cant shake the fear of having to admit to everyone my body cant fight anymore. Sorry if this sounds self indulgent I dont know how else to explain it. Just trying to find a way through the emotions.

Jacqueline

  • FormerMember
    FormerMember in reply to tvman

    Well that was a long journey for you you must be shattered. 

    I am feeling better than expected today I took my 2 pillows, a wooden chair and 2 blankets and went into the little en suite in in the dark and managed to sleep for 2 hrs with my head in the wash basin before waking with cramp. 

    I have now been demoted from my side room to a bay justing praying the light will turn off tonight as I have to stay one more night for IV antibiotics and hopefully dressing will arrive by tomorrow also. 

    My husband and I are hoping to get over to Ireland soon to visit relatives in county Mayo. I will not do the ferry as I get very sea sick on even calm sea. So we try to fly Liverpool to Knock so I will be looking out for cheap flights.