'out of the blue'

Hi Daloni

Trouble is you only see the positives after the angst!

Anti-histamines act like sleeping tablets on me too so understand how you can sleep much to the amusement of the nurses. Assume the positive is part of your long chemo day goes slightly quicker with your anti-histamine induced sleep. 

Had same allergy to hospital sheets at Guy's but not local hospital and thankfully never in hotels. I must remember to now add anti-histamines to my overnight bag. Having an overnight bag is a must as last a & e trip l went via ambulance in early hours and to my embarrassment had no clothes and was discharged into main a & e waiting area in my nightclothes. I just had my phone so no money for a taxi. Thankfully first friend l rang kindly collected me so now l have a packed emergency overnight hospital bag! A must for those like me living alone. 

Sorry to read your scan results shown a cause for concern and do hope you don't have to wait too long to know what's what. Have to say the only positive of being end stage is not having scan anxiety or waiting for results. At first it is very strange as after years of the worry and a life arranged around scans and results days you have freedom. Thinking of you x

Hi

Ah yes. An overnight bag is a good idea. My girls are expert at packing me a bag after a couple of emergency hospital admissions in the last year. 

Thanks for your kind thoughts. It means so much to me 

love and hugs xxxx

Hi

I has a great relationship with my gp and she had helped me greatly for the first 6 months after diagnosis.  She took maternity leave and I gritted my teeth and just saw anyone within the practise for the next 6 months, knowing she would soon return.  To my horror she decided to quit and I was devastated.  Luckily her replacement is fantastic and I now have a brilliant relationship with her too.

As for the oncologist, you don’t need to get a second opinion.  I truly could not take to the original oncologist I was given. She had a very negative outlook.  I spoke to my lung nurse and explained my feelings and asked if there was any others I could maybe move to.  Within the day I had a new onc who is absolutely fantastic.

Hope your new gp is decent.

Take care.x

Thanks Mummy B for sharing your experiences. You have given me hope as hearing you too lost your gp and found the replacement was very good. I felt very let down as having talked over end of life care, dnr, ds1500 and confided personal family difficulties l felt the doctor patient relationship was very close but obviously not as she did not tell me she was retiring l just got a generic letter.  Seeing my hospice nurse Friday and see whether she or hospice doctor can sort out new symptoms or whether l have to see new gp.

So glad your lung nurse sorted out a different oncologist for you. Think somewhere along the line some medics lose their good doctor/patient relationship skills.

Will let you know how l get on with new gp x