Does it REALLY have to smell sooo bad??

FormerMember
FormerMember
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I'm now almost 2 months into post op with a loop ileostomy.

im managing fairly well with day to day practicalities of living with a stoma - only ONCE forgetting to fold and seal the end of the bag! And dealing with several leaks due to the powder for soreness not allowing the bag to make a proper seal.

no, my query is to fellow stoma people-do the contents of an ileostomy bag ALWAYS smell SOOO BAD?

i eat a fairly bland diet and don't necessarily eat things that would create bad odour BUT no matter what whenever I empty the bag it literally smells like a sewer or cess pit! Not nice for anyone else in the house as it literally permeates the entire house which doesn't help by being a modern open plan style.

 does it get better over time or am I forever to be cursed with this? 

Im so paranoid that I shower every day and wear tons of perfume although my hubby says you can't smell it outside the bag. Would be helpful to hear what other peoples' experiences are ...

 

 
  • Are you by any chance taking antibiotics? I found that when I was in hospital and having IV antibiotics the bag contents smelled really bad. Eventually though, it just smelled a bit like what I had been eating and certainly not much worse than 'normal' waste.

    I think other people have tried putting things like lavender oil in the bag but I never tried that myself so I don't know how/if it works.

    I hope you get this sorted soon.

    Jenny

  • FormerMember
    FormerMember

    I had my reversal operation for temp ileostomy six months ago. I found that at least two yogurts a day kept the smell under control of bag contents. 

  • FormerMember
    FormerMember

    Yeah, the smell can be bad,but to be honest, having had the bag for 8 months now I can't say I notice it much. I'm sure some things make it worse, but I've not investigated what. I have this thing for 1 month more and can't wait to get rid of it, managing this thing has been one of the hardest things in my life, though I think I've had it worse than most for some reason.

  • My husband had an ileostomy, his main problem was gas! Which was a problem without a bag! 

    The smell could be quite pungent, there were things you could put in the bag to absorb the smell, I'm sure they may have moved on from that.

    have you tried Cavilon to help seal the bag and stick it down? 

    the best way of covering the smell in the house ( I hated the smell of poo and air freshener mixed!) was striking matches then blowing them out and wafting the smoke about. Surprisingly effective! We kept a large box in the bathroom and used 3-4 at a time! 

    Best wishes

  • FormerMember
    FormerMember

    Ah yes-forgot to mention that the bag does tend to blow up like a balloon full of gas too!!


    (Not a problem in a previous non-bag existence I might add!)


    was on antibiotics but finished them a few weeks ago-I think I've had a slight sickness bug that's been going around as I felt quite sickly too as well as the contents being very watery......been much better last night and today.


    will certainly give eating yogurts a try.


    Good idea about the matches so I will have to get some-cheaper than using a ton of perfume!


    Hopefully not a long term situation as due to be reversed sometime after chemo-yay!


    thank you for all your replies-most helpful!! 

  • FormerMember
    FormerMember in reply to FormerMember

    When you order your supplies, you can also ask for a deodorant.  You put a few drops of this into the bag, and it's really very effective.

  • FormerMember
    FormerMember

    hi

    I know just how you feel about the smell. I now use a spray that I get from fiittleworth called fresh air. I just spray this down the loo after empting my bag and it stops the smell. I also use the deodarent spray which you spray directly into the bag. if you call your stoma company they can send you samples to see what works best for you. The last sample to ask for is the thickening capsules I believe there is one that has a deodorant included.

    I hope this helps

    Louise

  • FormerMember
    FormerMember

    Hi all


    i found the sample bottle of a peppermint perfume that my lovely stoma nurse gave me-have been putting a couple of drops in the bag before putting on and I must admit I'm surprised at the difference it makes! Even my hubby has said its not as bad so that must be good!!


    I get my supplies from fittleworth too Louise so I will give them a call to see what they have! 

  • FormerMember
    FormerMember in reply to FormerMember

    Im on chemo atm and I can smell my bag all the time even when ive emptied it. I use drainable bags as I dont like to change the bag 3 to 4 times a day. I suffer with wind too so I can release it with the drainable bag. The house smells to me like a sewerage plant and I have diffusers and sprays on the go all the time but it isnt helping. I think its up my nose and as my colostomy is permanant I do hope it wont always be like this.

  • FormerMember
    FormerMember in reply to FormerMember

    Im seeing my stoma nurse today so I will ask if she has anything like that for me. Peppermint is a much nicer smell to have in your nose all day so thank you for the tip.