I am having considerable issues with supplies.
the supply company are responsive the issue is my GP is changing my prescription each month.
I use a 2 part system and in 3 months I’ve had the GP change the type of baseplate I use to 1 which the bags not fit, then only allow me 5 baseplates to cover 30 days (3 times)with my stoma nurses recommending I change baseplate each 2 days this leaves me running out.
the attitude of the practise is that the supplies are a luxury and I get what I’m given.
As anyone else had these issues? And how did you resolve it?
I’ve put a complaint into the practice but they are not responsive. My community stoma nurses are trying to help but everything falls on deaf ears.
Thanks in advance
In Wales and the GP I worked for we would go by the recommendations of the Stoma Nurses as to what to prescribe. If no updated letter then we would contact stoma nurses directly and confirm correct order incase of any changes.
The only issues was that companies would try to advise patients of different items to try and these sometimes would not be prescribable in Wales. These companies do it for profit, not always for patients.
So does mine.I have had a urostomy for 4 years and had a lot of trouble with supplies in the beginning.A very rude pharmacist phoned a couple of times it was like an interrogation into how many bags I used etc.It was a very unpleasant experience but my health centre were so unhelpful post op it was not unexpected.It is better now but I still get nervous placing an order.Love Jane
Reading these pages it appears that the procurement method is not standard across the country. I suspect that the GP is responsible for what is prescribed - not patients or their suppliers - which is why the GP is the person to authorise the prescription. However, I doubt that GPs (and their staff) are particularly up to date with the needs of stoma patients where our requirements can vary for a number of reasons. In my case the stoma nurse at the hospital made recommendations on my requirements and they were adopted by the authorities without question. Since discharge my requirements have changed to overcome some issues and the nurse suggested the changes in the interests of her patient. Again, the changes were adopted without question and I order my stoma supplies directly from the supplier, who requests my GPs prescription directly on my behalf. All done electronically. My GP responds quickly and positively and the supplies are usually delivered to my door within 48 hours or so. I am extremely grateful for this excellent service and never abuse the supply system by over-stockpiling as it works so well. I guess it is the luck of the draw and it is awful to read accounts of patients being treated like beggars (not customers) by people who should learn their subject before making stupid and insulting statements to patients who are entitled to good service. Try telling a pharmacist that he/she may only use four sheets of toilet tissue a week!!
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007