Stoma woes!!!

Morning Kath

I’m also fine with it 99.9% of the time, BUT there’s a tiny percentage of time I’m just not. The other day my urostomy was playing up, my bag leaked so complete change of clothes and clean up, settled down on the sofa and bam, it leaked again-even more spectacularly than the first time. Another clean up and complete change of clothes-luckily I wasn’t in bed. I was in tears of rage and frustration at it, and saying the same things. Just for once, for one day, wouldn’t it be wonderful not to have stomas. I get so exhausted with all the work that’s involved if I have a leak, all the extra washing etc. Usually I’m really positive, but sometimes it just gets to me! So I understand where you’re coming from.

Sarah xx

Thanks Sarah.you have double to cope with and help others on here as well,

Im glad others have occasional wobbles too.I dont mean Im glad they have wobbles but that Im not alone.

Heres to a good day

Kath

We are only human Kath-it’s just not possible to think all of the time that life is wonderful. We have a lot to deal with, and while I know we are both grateful for our surgeries, some of the difficulties we have which “set us apart” from the average person just spill over and we can get frustrated and upset. 

Yes, here’s to a good day today! 

Sarah xx

I can relate to that. For me, it's the fact that I don't feel as though I can just forget about it and trust it to do it's thing.  It's the last thing I check at night and the first thing that I check the minute I wake up (or even half wake up) just to make sure that everything is OK.  It's silly as it doesn't give me any real issues or make many demands and I'm happy to live with it.  I suppose it's just always at the back of my mind that it's there and it needs looking after, so added responsibility.  Mind you, it's a wee lifesaver so that definitely needs to be celebrated!

Hope your day has improved x

Hi Kath

My day didn’t go so well in the end, with two leaking bags before I was finally able to go to sleep. I haven’t had issues for a while, so I’m wondering now if the problem is with my bags and the hole size. I have them pre cut, and have used these ones for well over a year, but this is getting on my nerves now. I was very grumpy yesterday evening and have a lot of washing to do, again! Maybe today will be better! How are you doing? 

Sarah xx

Oh Sarah what a day you had..I so hope you can get the bags sorted.its typical that just when you think its all ok then sods law hits.

that today is better.

By the way you are allowed to be grumpy.you deal with so much,lots of people with much less would be throwing the furniture around

Im ok,thanks for asking.our chat yesterday really helped.this forum is great.

Looking forward to a crafting day with my grandaughters.they have an inset day from school so coming here.

Heres to a good day

Kath

Sounds like a lovely day for you Kath. I am desperate for grandchildren, but my daughters are so far not obliging! Both have very long term partners and are settled and both would eventually like a family, so I live in hope. 

I was throwing a few things round last night I have to say-my poor cat was on the bed lovely and cosy and must have resented the upheaval because she disappeared until it was over. I’m off to have a shower and start filling the washing machine afterwards-at least 2 loads this morning to do now. It seems never ending and I was cursing last night thinking of how much I need to do today. I’ll be running out of clothes at this rate!

Have a lovely day with your granddaughters-my mum used to love having my two round to bake scones and banana loaf! 

It’s good to have somewhere to vent with others who understand-I’m always grateful for that.

Sarah xx

my stoma is a nightmare i change 4 times a day all because of stupid surgeons nicked my bowel i have 2 bags i only should a uro bag i curse them every time i have leak