Heat, stoma, salt and swollen ankles

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My ileostomy causes me some dehydration and the advice is to rehydrate with isotonic fluids containing salt rather than water, and to add salt to meals (though the advice for high blood pressure is to reduce salt).

Meanwhile, my ankles have ballooned during the heatwave and the advice is to cut down on salt and drink lots of water.

In addition, we are suppose to elevate our feet but also to exercise.

Does anyone know how to reconcile the conflicting advice in a stoma friendly way?

(I slept last night with my feet elevated but it didn't help).

  • I asked my gp about salt and blood pressure.he said that the advice about low salt for BP.goes out the window when you have a stoma.as long as you keep an eye on your BP readings.

    Hope this slightly cooler weather is suiting you more

    Kath

  • Thanks Katz51. The cooler weather is welcome but my ankles and feet are even worse.

  • Catgirl2.I have just read your bio.did you get your stoma bags sorted?nothing worse than sore skin in hot weather I imagine.

    All the best

    Kath

  • Hi Catgirl2

    I suffer from swollen ankles when I travel so badly it’s difficult to walk. 
    Then I found a technique that really worked for me. 
    Lie flat on your back on the floor with your bottom facing chair or sofa. Bend legs up and rest feet / calf’s on seat cushion it’s really comfy and has quick results for me  Hope this works for you too and that improves your ankles 

    Ann
     ‍Art

  • Thanks for asking Katz51. I settled on Sensura Mio Light Convex 2-piece  together with Salts mouldable seals.  It's not perfect as my stoma is quite flat, in a dip and has 2 exits very near the edge at opposite ends resulting in one patch that is always sore no matter what I do. But I  can often keep a flange on for 48 hours with leaks about once or twice a week. I still don't feel confident to go far from home though. My bowel consultant has suggested a remodelling of my stoma but probably not soon as it won't  be a priority. At least it's an improvement on a year ago.

  • Thanks Artsie. I'm  afraid I can't get on or off the floor nowadays but I have been elevating my legs - maybe not enough. I have an adjustable bed and slept with my legs up last night.  I think it might have helped my right side but my left side seems even worse today. I suppose it could be made worse by my peripheral neuropathy. Walking  is harder today.

  • I’m sorry Catgirl2.
    That was thoughtless of me. My hubby couldn’t do it either so I should have thought of that. 
    it is possible on the sofa and bed too. It’s the height above the heart that does it. 
    I hope that you have a better day tomorrow. 
    These things can become a challenge. Just keeping hydrated I’m finding hard. My mouth is dry continuously with my ileostomy. Drinking all the time I’m spending most of the day in the toilet. 

    Take care 

    Ann
     ‍Art

  • That’s a good tip I’m going to try Ann! Thank you.

    Sarah xx


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  • It’s works Sarah.
    I was gobsmacked.

    I saw it on TV a while back and thought , that’s not going to work.
    Next flight massive ankles I tried it.

    I was amazed. You have to lie there quite a while

    Read or play a game ha ha 

    Ann
     ‍Art

  • My feet were like absolute balloons when I got to the Maldives-it was horrendous! Worst I’ve ever experienced, so I want to try and reduce that next time. 

    Mind you, once I get on the floor I’ll be struggling to get up! Joy

    Sarah xx


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