As most know here I had a LAR August last year and before the op I was told two to three months however with the Covid situation it would be six
I had the blue dye test January that showed I would need an EAU to check that all was clear for a reversal. I was also told at my follow up that they thought that whilst under a GA if all was clear they would reverse me.
I thought that makes perfect sense as why have two lots of GA but it would mean I wouldn’t know before going in if I was able to be reversed. So I was told I would need a pre op
That was January
Previously my surgeon had said that reversals are best at two months and a maximum of six. Twelve months was not so successful
So here I am a couple of weeks away from the year and all my diary dates that were planned have been deleted. There’s not going to be a colonoscopy August because I haven’t been reversed. I’m waiting for a CT scan appointment and my CEA levels are due August
I am in a state of limbo really
How long did others wait before having a reversal and if over twelve months was it really difficult to gain bowel control?
Im seriously thinking of not bothering and booking a holiday!
Thanks Kath
Its early days so I need to be patient.
I’m very uncomfortable too which doesn’t help.
Hopefully things will be more manageable soon and I can sleep in my own bed! I can’t at the moment as I cannot get out of it whilst stomach muscles are repairing. Especially as I need to make a speedy dash to the toilet !
Oh the joys of finding out the true recovery of a reversal. Ha ha.
Ann
Aww, Ann-tough early days for you. Take it easy and you’ll get there in time. But your time in hospital and discharge had me shocked! Big hugs (soft ones!)
Sarah xx
Thanks Sarah.
That’s why I’m so bad. I had no pain meds no rest came out after passing wind only spending 15hrs on the surgical ward. My face was bright red. I honestly am finding this tougher than the LAR. I had medical support and pain meds.
After me calling my team My nurse has told me not to use Loperamide so it’s 20 + visits to the toilet. Mainly gas. It’s ridiculous. I’m having the staples out Monday and I am taking the Loperamide then. I will rebel and I will officially complain about the advice given after a reversal. It’s utterly ridiculous
I feel so much better for that moan. I’d smile if I wasn’t in pain. My bowels like a baby’s causing wind a very chaotic.
I do miss Whoopi.
I nearly did a runner after waiting seven and a half hours in preop when the nurse said to put my gown on and asked if I had a dressing gown. I looked at my bag and thought of picking it up and legging it
Poor Whoops.
Xx
Ann
Hi Ann,
Really sorry to hear of the problems that you had with the reversal op and what is happening now. It will get better!
When I had my reversal I also had a hernia repaired and still didn't have the sort of discomfort that you are having. Are the ibuprofen and paracetamol not enough to help the pain? I also was told not to use loperamide to begin with, they didn't want any pressure on the join.
I was in for one night only and let out when I passed wind. Our difference is that I went home with the support of the Early Discharge Team who visited me for a week. The first few nights I was up every hour passing little or nothing and wearing pads in case of an accident. Quite quickly it got better though it took time to get to a new normal. One thing I found was that when you felt you needed to go I held on as long as possible and sometimes the urge passed. Then when I had been I would stay put as most likely there was more to come.
I do hope that you see some change for the better soon
Best wishes, John
Thanks John
Its been getting worse. 2am complete flood of watery output everywhere unable to hold as it’s like a tidal wave
Three times I was up changed and washing everything. Luckily I have a small tilled downstairs toilet so I’m able to clean up simply and I am sleeping on the sofa to save my bed
I am regretting it at the mo but I probably would have regretted it if I hadn’t tried.
I’ve taken one loperamide to try and get a break from this draining condition
Hopefully today will be better.
Thanks again
Ann
Oh Ann, so sorry to hear that.
If it is that bad, you must try to stay rehydrated, not just water, do you have something to take? If you talk to the team they might want a blood test to check your K level.
Doo hope it gets better for you, no wonder you are fed up!!
All the best, John
Artsie. That’s a very good point that Johns made. My potassium was very low after my op and I had a drip and a vile drink to have every day - my husband also brought the worlds biggest banana in which I really couldn’t face! I also had low calcium and my doctor put me on a mega strong tablet then told me to take over the counter vitamin D for life. Diararylte is good for replacing lost electrolytes etc.
Really hope things start to settle down quickly - you must be exhausted. Is your doctor easily contactable? A full blood test might not go amiss although I know it wont help with the diarrhoea?
Take care
Karen x
Thanks Karen & John
I was dehydrated before op as I stopped drinks at 6.am and didn’t go to theatre until 4.15 I did not wake up with a saline drip which I did for the EAU so I was surprised I had a double cannula with no meds there maybe they injected me But I did feel really ill I drank as much water as I could through the night when I got out of bed to dress I caught the cannula and the blood pumped out it was everywhere I tried to clean it they didn’t answer my buzzer so I just shouted can someone help me now please!
Honestly I can not believe I am writing this about our lovely NHS but it’s true
I am seeing the nurse at my doctors on Monday to have the staples removed though if I’m like this I won’t be able to go to the surgery.
I was going to try the BRAT diet but everything has gone to pot.
I’ve just caught up on a couple of hours sleep.
I am exhausted!
My doctor is invisible since Covid and his large waiting room has four chairs in it. I’m not sure if I can contact him. He was really supportive with pain meds after my LAR so it might be worth booking a phone consult with him.
I am just filling my face with disgusting marshmallows. I’ve had a packet of jellies as well after a piece of toast.
I hope things improve soon. I won’t be able to manage sleeping downstairs in the winter as the toilet is freezing.
I am feeling very sorry for myself.
Sorry
You have given me a lift.
Many thanks
x
Ann
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