Same old!

Hi NannyAnny,

I was hoping that your husband had got it all sorted by now, you must both be feeling even more fed up than I am! I've only ever had to phone 999 once, the chemo had send my heart into spasms, but they were there within an hour! The diahorrea yesterday was sorted out quickly because it's happening so often now that I can time it! I have a colostomy, what does your husband have? I'm starting to feel sick more and get pains around my midrift, which I think is wind! I usually feel better once I get rid of bile! Sorry anyone who is having breakfast!

I'm at the end of whatever wit's I had! As I keep saying, for the first year, great! Hardly affected my life at all, changed my porch once or twice a day and if I had no output for one day, fine the next! Now, I'm frightened to leave the house, it's so bad!

Try to keep smiling, we'll, hopefully, get it sorted one day!

Best Wishes to you both,

Moira x

Hello Three.

Have you tried Googling the side-effects of your medications?  In my experience they get played down and mixed in with all this 'fighting' talk.  The results can be a bit academic in style, but the papers are usually summarised and can be quite enlightening.  You may well get the dismissive 'Dr. Google' reaction if you find something, but facts is facts.  I have a specific example relating to myself in mind, but I'd rather not lead you on.

Sorry to read you need a hip replacement; you and your husband seem to have been dealt a rotten hand this year.

One thought - a bit gloomy - it might be an idea to cancel or postpone the London trip; it must be preying on your mind.  I was invited to a Thames party-boat-trip for a mate's golden wedding.  It was during the Jubilee week-end.  I'd said yes months before but I got more and more worried about it, even chatting to folks here.  It wasn't until I said I didn't think I should go that I realised how much I'd been pressuring myself.

Anyway, take care and keep moaning to us; that's part of what the forum is for, isn't it?

Roy

Hi Moira 

I am sorry that you are still having trouble. 
Have you thought about talking to your GP.
They may be able to take a sample to check for bacteria. My husband had to give samples years ago when he had IBS then diverticulitis! 
It could be worth eliminating that idea 

Hi Three,

He has a colostomy. I have read that adhesions can affect you long after your operation. The consultant has told us this is the problem. As yet we don't know what to do about it. I remember as a child that my mum had sickness and pains after an appendix operation. She was in hospital 4 or 5 times, and had an operation each time. In the end she took to drinking home brew each night and she had no more trouble!! I wonder if it was the laxative effect which helped? She never told a doctor!!!

Thank you Roy, I have a feeling you could be right about the medication, although none of the nurses have even suggested it! I take loads of medication for various ailments, I know codeine can lead to constipation, as can other pain meds! I'm sure I read somewhere that medformun, for diabetes, can cause diahorrea! I'm going to try and speak to my GP next week and see if she agrees!

I am a bit fed up with moaning, I have a wonderful family and friends but, of course, they can only imagine what it's like! At least on this site we're all in the 'same boat' ! I appreciate all the replies I get so much!

I know what you mean by putting pressure on ourselves, maybe it just isn't worth it! One good thing, the hotel doesn't have to be paid for until arrival, we'd loose our train fares but peace of mind will make up for it! I'll give it a few weeks before deciding, it's just been an awful week, what with the hip replacement diagnosis and my husband's eye operation!

Thanks again for all of your help Roy,

Best Wishes,

Moira x

Hi Ann,

I was just saying to Roy that I was going to phone GP about medication, so I think I might ask about sending a sample in! Only problem with that is my stoma is usually only active around 5pm, far to late to send a sample in! I'll work something out, I've GOT too! I know diverticulitis was mentioned last year!

Thanks Ann, I'll let you know in the next installment!

Best Wishes,

Moira x

Hi NannyAnny,

I'm not sure what's meant by adhesions, is it scar tissue? Your poor mother though, at least she fixed it herself! I don't think I'm that brave though as to drink homebrew!  I have a feeling that we ARE going to have to find our own solutions though! Oh well, it's a great life if you don't weaken, or something like that!

Best Wishes,

Moira x

Hi Moira

I know it needs to be fresh however you can ask the GP if you can store it in the fridge. They have special containers for it. Fingers crossed for you and hopefully you will get some help. 

hi NannyAnny, after my 1st op which resulted in a colostomy and permanent bag- permanent as it was so low down in my rectum I was in a lot of pain because unbeknown to anyone I had massive adhesions/inflammation on my intestines. I had another operation six weeks later which resulted in me having an illiostomy instead. After that I would have flareups but cocodamol stopped the pain. That was back in 2011. There were many twists and turns to my story over the following five years. I no longer have these flareups. Sending best wishes and positive vibes. X.

hi Moira my understanding of adhesions is sometimes called inflammation and sometimes called scar tissue. I think it's how our bodies reach to bowel issues after the operation. Mine went into overdrive and no Doctor could tell Mr why.