Help please. It’s driving me nuts I cannot seem to attach my bag tightly to the edge of my Stoma which then pancakes or leaks around under the bag and burns my skin.
After a serious burn I changed it daily to bathe and calamine, barrier spray or Eakin slim. I don’t use anything but water to cleanse
This is not ideal as I’m wasting my equipment but needs must.
Could it be too many Christmas treats. I do seem to have a little too much tummy weight at the moment?
Or is it just me doing something wrong?
My provider recommended trying a different type of bag to be honest they looked exactly the same until I tried removing them. They stuck fast and broke up making changing a challenge I’ve got some samples for sensitive skin from my nurse but had the same issue, they pancaked.
Maybe my Stoma shrinks back as I move about?
She’s quite proud when I clean her
My Stoma nurses aren’t available at the moment and I hoped that someone could just say how they have overcome this annoying problem.
Thanks Kath
The Hotel was stunning and we relaxed. It’s surprising how a little of the old normal revives you. We had to wear masks walking about but once sat we were free. It was really busy and we enjoyed just sitting in one of their beautiful leather chesterfields and people watching. I didn’t realise how much I had missed being part of life.
I used extra stickers supplied by the stoma nurses that I had tucked away. I’m a little sore now so I will sort it out. I was not going to let it stop me enjoying a break.
I’m just back from my consultation about a possible reversal, there’s an issue and they are going to perform an EAU. If there’s a good join they’ll reverse me there and then. If not I’ll wake up with Whoopi. They’ve advised me that they’re months behind and have cancelled two operations today through staff sickness. This covids causing terrible staffing problems. So I could be on a very long waiting list, that’s fine I haven’t got cancer. Anyway as it’ll take months and I’m very high risk for LARS I’m booking Spain April and Ireland June.
Thanks for your help and advice.
This is a lovely space to be. In fact it’s my safe space for sharing I’m not on any other social media.
Ann
hi Artsie, when I change a bag at home I lay a small towel on top of the carpet in my bedroom and lay out all the stuff I need for a stoma change. This means any accidents happen on the towel which can be easily washed. It's a bit more challenging when out - then I have to be more inventive - I have blue, strong, thick stoma waste bags and put my supplies on one blue bag (using the floor of the toilet or a window sill or sink as a base) whilst using another to contain the used stoma bag.
Kath
"don't think about tomorrow"
I used the tower unit .Black bags attached to 1side ,then everything else placed in order on top shelf placed the unit in front of me..Did everything sitting on the loo.
I'll never forget at first when I came home my husband wanted to help me so much it brings years to my eyes ..He would pass me everything ,get me back in bed then go and clean up ,place everything back in order He Sat on a wee seat and saw things that I didn't notice .Modesty out the window.
Artsie you will have guests we've no children He deserves a medal he said that's what he signed up for. Alaine
Hi Artsie
I hope you find it good. I use it on my urostomy bags and in addition I also use the banana strips on both sides of the bag. I went through an awful time in January last year with constant leaks but these products have been fantastic. Let’s hope you have some luck with the fusion sticks. On a side note, I did get a faulty batch of bags one time so that can happen-the bottom of every bag had some damage which I unfortunately failed to notice with the first faulty one! xx
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