Should we Ostomates freely use Disabled toilets?

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While I do have a stoma (Ileostomy), I can usually use a normal WC in public toilets, a restaurant, or pub etc where necessary. Even one of those horrible Portaloos!

However, I much prefer the extra space and convenience of a disabled facility as it gives me much more room to attend to things and there's also far less chance of "making a mess" or accidentally soiling my clothes. Also, there's usually access to a wash hand basin etc.

Of course, the above is even more important if you require to change your bag for whatever reason... If away from home for a longer period or in the case of a leak.

So, as a matter of course, I will tend to utilise disabled toilets when available and I also have a radar key  where necessary.

However, I do sometimes find it embarrassing if someone else is waiting to use the loo afterwards. Especially if they appear to be much more "disabled" than me....... I look surprisingly fit and healthy on the outside! So, I usually offer an apologetic explanation that I have a health problem and require to use the toilet. I'm not always sure if I'm believed or not but I can't help feeling guilty.

The other week, I was in a cafe in Inverness where the staff had to "buzz" you through a door to get to all the toilets. There was one gents toilet and another cubicle which served for "Ladies and/or Disabled".  The latter was free and I was about to enter when a woman entered the toilet area with another woman who was carrying crutches. They immediately started "ranting and raving" at me and so I said she could go first if she wanted. However, that didn't placate them either as A) I had no business using a disabled toilet and b) there was already a toilet for Gents....... (It wasn't a disabled one though).

They continued to make a fuss and even complained about me to the staff. However, I was reassured by them that the toilet was for both Ladies and Disabled persons of either gender. I also explained that I had a health issue to them and they said  that was OK.

However, the entire incident left me feeling very uncomfortable for the rest of the day. I ended up leaving the cafe and using the facilities in a nearby shopping centre instead.

Anyway, I wondering if anyone else has had similar experiences. I realise we aren't officially registed as disabled as far as "parking" and matters relating to vehicles are concerned but how do we actually stand otherwise?  We do qualify for keys, however, and I usually carry one of these cards which the stoma companies issue which state that we have "Use toilet facilities urgently" if necessary although they don't stipulate use of disabled facilities.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Linda 

    Well done making the fact known it should be adopted by all ostomates.

    My annoying story - at my local bus station the disabled toilet is always locked and you can't find the supervisor to open the door I have made a complaint to transport for London. The annoying point it also has a keypad on the door so that bus staff can use them but radar key won't open the door.

    I might make a new post about reporting locations where adequate disabled toilets are not available.

    Carry on doing your bit for awareness.

    Ian

  • FormerMember
    FormerMember in reply to FormerMember

    You should be seeing these in more places now

    Look out for them at supermarkets, sports venues, hotels, theatres/cinemas.

    All we got to do is for everyone to raise this with their local hospitals and have them made user friendly.

    Ian

    The above are from supermarket no prizes for putting a name to each sign!

  • Hi,

    Disabled toilets are unisex and you have as much right to use them as any disabled person does.

    I have a sticker on the bottom of my bag which reads "Not all disabilities are visable" and I flash it at anyone who tries to give me jip, along with a defiant and hard stare. They read it and weep and are left open mounted.

    Don't explain yourself, you are using the disabled toilet for a reason.

    Love from,

    Lisa

    xxxxxxxxxx

  • Thanks Lisa.

    Even when things are going well which, thankfully, for me is most of the time, these wee cubicles aren't ideal especially when in many modern loos, the pan is often just a few inches off the floor! You can't crouch or kneel either as they aren't usually very clean. Flushing is always an issue too but usually easier with the disabled toilets too.

  • This thread is being marked for retention by the moderator, as some members are still finding this useful.

  • Thank you and it is useful. It can be a thorny subject, particularly as some people still believe that the only 'disabled' people are those in a wheelchair. The graphic on the door doesn't help. Being Type 1 diabetic and having to inject several times a day has caused me to use 'disabled' facilities because of the extra space and surfaces upon which to stand items; it's the same for managing my stomas. I have never been challenged but would always offer the facility to someone who clearly needs it more urgently than I do. Interestingly, when I received my stoma kit on leaving hospital after surgery, there was a Radar key included in the package. It doesn't help that sanitary facilities in public buildings are generally designed to the minimum standards to take up less floorspace, whereas facilities for 'disabled' people are specifically laid down in the Building Regulations and are a statutory requirement.

    Dulac