Very bad leakings changing bag several times day

Hi

I also use the Brava Elastic tape - Found these to be the best ones to stay in place.

I used to use the sensura mio bags but I had a problem with pancaking. My stoma nurse said that although the bags are very good the filter can draw to much air out and cause problems

I now use Pelican Platinum bags which are very good, I only really have problems if my stoma goes into overdrive and I can't change it quick enough, thankfully that doesn't happen very often

K

Hi to all

Came back from my holidays and yesterday went to see the stoma nurses, they told me I need to use convex bags to avoid the leakings,

I am trying pelican and coloplast sensura mio during a week to see which one  works better for me to order more.

Thank you for all the help and advice. I had rough weeks with all the leakings hope now I have a break from them.

No wonder! My leaks increased when I started using coloplast. Try a different brand. I use Hollister rings and convex precut wafers, and the best that has worked for me as non sting barrier is Cavilon. Stoma powder Adapt as well.

I ran out of them.and had coloplast samples (rings) and I will throw them away as soon as the other ones arrive.

Feel better!

Hello.  I have had similar issues.  Once the skin is sore the bags don't want to stick!  My stoma nurse gave me some Eosin.  It does help the sore skin to heal and I have managed to buy additional supplies online.  I also use the Salts Aloe rings, which come in various sizes.  I have a 30mm stoma and use the SARS32.  Both of these have helped but not completely cured the leaking.  Last week the leak set off an Eczema reaction which covered the entire area of the bag flange.  So if it wasn't burning it was itching.  Treatment by wiping with Betnovate Scalp Lotion helped clear the Eczema up.  Great so back to normal.  Skin all clear - for 2 days.  They sudden leakage today.  Thankfully I was at home so I managed to clean up, which required another shower and fresh clothes.  It is a nightmare and I reversal cannot come soon enough!  I am so sorry that your holiday has been ruined by this.  I hope you are able to find a solution that works for you.

Hello.

I have had similar issues.  Once the skin is sore the bags don't want to stick! 

My stoma nurse gave me some Eosin.  It does help the sore skin to heal and I have managed to buy additional supplies online.  I also use the Salts Aloe rings, which come in various sizes.  I have a 30mm stoma and use the SARS32.  Both of these have helped but not completely cured the leaking.

Last week the leaks set off an Eczema reaction which covered the entire area of the bag flange.  So if it wasn't burning it was itching.  Treatment by wiping with Betnovate Scalp Lotion helped clear the Eczema up.  Great so back to normal.  Skin all clear - for 2 days.  Then sudden leakage today.  Thankfully I was at home so I managed to clean up, which required another shower and fresh clothes. 

Another ointment which has a surprising benefit was Calamine lotion.  Yes the stuff we used to use for sunburn.  I spread a thin layer over the sore area and stuck the pouch on.  Not only did it treat the skin but it made the pouch stick so tighly to the skin is was quite a tug to remove it. It helps to break the cycle or sore skin - pouch wont stick - more sore skin etc etc.  Its cheap to buy and easily available - so worth a try at least!

It is a nightmare and I reversal cannot come soon enough!  I am so sorry that your holiday has been ruined by this.  I hope you are able to find a solution that works for you.

Hi, I've had my stoma since November, I was having problems with my skin,so I tried a 2 piece bag, the baseplate stays on, the bag sticks to it, and you just change the bag when needed, it can stay on for a week, the baseplate I mean, I also use clinimen flanges, they're very thin and stick well. The 2 piece bag I have are coloplast. I too hate the stoma with a passion, it was needed at the time. I have to say once my skin cleared up, andi used the coloplast 2 piece system, I've been a lot better, no leaks, even when the bag was full of diarrhoea,  last night I had to change ut at 5.30am, and again when I got up, had loperimide and now all is OK. Have you spoken with your stoma nurse. One of my stoma nurses made me feel like a child, but she did relent when I pressed that I wanted 2 piece system. I know there are many 2 piece systems around, Dansac do one, I hqve t tried it, but the bag clicks into the baseplate. I hope you find a solution, have you asked for samples from the companies, like moorlands, Welland, I use bullins, their dry and wet wipes are very good, and they ring you 3ach month to ask what you need, the dry wipes are very good, a lot like they use in hospital. Also some companies use manuka honey, I tried them, my skin cleared up and then I went to the 2 piece system.  Just go online and search for stoma samples, there's a lot, I tried thing from most suppliers and everyone was very good, and helped in many ways. I hope you can get it sorted, I know at first it's daunting, I hate mine, but it helped get the cancer out, so was needed. Be glad when uis been reversed. There's so many helpful people on here too, I haven't had a problem with leaking though, apart from the skin around the stoma, I've not had a problem with leaking, but there's companies who have little packs that you can put in your bag and it turns liquid into gel, I use one that's actually like a straw euth salt in, I put it in the bag when I have diarrhea, that helps, some companies call then diamonds, as I say hqve a look online and get some samples, they're all really helpful. Your stoma nurse should be helping to find th3 right products, I just took it on myself and ordered samples of everything I could and I'm glad that i did. I hope ut helps. 

Morning MissTee

Long time not connecting. I’m pleased to hear that you’re on the other side of all stress and operations you had. If I remember you started with TEMS and ended with a LAR 

I am sorry to hear you hate your stoma, when I woke up and felt it I smiled as I knew the cancer was out. A nurse asked me what I’d call it and really that’s when I started to accept it. 

I had issues with the plates on all I tried. Well the super sensitive ones didn’t stick and all the flat plate ones drove me crazy itching. Aw I remember that well. 
coloplast Sensura mio Convex were perfect. They stuck with no aggravation and as they were convex Whoopi put the output where it was meant to go and not on my skin. I also used Eakin slims that cushioned that sensitive part outside the stoma 

I’m reversed now so no pouches for Whoops. I’m going to get a tattoo cover up though when I’m able. Daisies for whoops a daisy. I’m 68 and it’ll be my first tattoo 

Best wishes

Hi Ann, yes I had a robotic LAR, I was only in hospital 2 days, then 4 days later I was in with ileus,  out for a week, then in again as the blood supply near the rectum, which was removed, died, and then a hole appeared in the wall between my vagina and bowel and I was leaking horrible stuff from both bits, had emergency op, stoma put in, and woke up in ICU, surgeon said it was life threatening, then on a ward for a week. So it was a rather busy time, I wasn't compus mentus, I just remember  saying over and over that I was just tired, but I was very ill, as for the stoma, I hate it, there's no median, it's either like clay, more often that not I have diarrhea, or there's no output for days. I can't get used to the feeling when it is active, and I'm forever pushing the contents down from the outside, as otherwise it sits at the top and when I change it it side at the top like a walnut whip. It's at least a year before they think about reversal. I know it had to be put in, doesn't mean I have to like it. I hope you're well and doing OK since you're reversal, I can't wait for mine. Take care Rosie

Which ostomy did you have? I can advice diet if it’s an Ileostomy 

Im okay the reversal has not been plain sailing. 

Have you tried baby oil in the pouch before you put it on. That can make the output slide. Someone recommended Vaseline in the clean pouch I got in right greasy mess that didn’t work for me 

I used calamine on my sore skin and dried it with fan or warm hairdryer 

Best wished 

I have a stoma, colostomy, my nurse mentioned baby oil, if I have diarrhea,  it's usually very thick liquid, and I've kept food diary's, but it's still erratic,  I saw consultant on Tuesday, I hadn't had any output since friday, I take 2 docusate morning and night, my consultant said to hwve 2 sennacot, did that and in the wee small hours of friday I woke to find my pouch full, changed it went back to bed, had to change bag every 80 to 90 mins, eventually last night I took loperimide, I guess 2 sennacot was too much. I can't eat or drink orange, or satsumas, they give me awful diarrhea. I've put things in, taken things out of my diet, but only have a problem with oranges, can't even have jaffa cakes. I don't hwve a problem with leaking, I use 2 piece coloplast bags, they have helped with the awful skin irritation I had from taking bags off numerous times a day, the pearls or diamonds help if I know I have diarrhea and its bedtime, I pop one in. I use a closed bag, I've found the right bags and flanges, that don't irritate my skin, and that I'm not forever using adhesive remover on my skin, just peel the bag off. I just can't seem to hqve a happy medium where it produces each day and is constant, its usually from one extreme to the other. I hate it with a passion, I know it wasn't an option for the 2nd emergency op, but doesn't mean I have to like it!!!