Not knowing what to expect - Mesothelioma the final stages
FormerMember
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Can anyone has lost someone to mesothelioma explain what to look out for or how to know when someone is taking a down turn with this dreadful disease? Does more pain mean u are going downhill? Does being sick mean the same? Would appreciate any direct and honest help anyone can give. I am very thankful for each day I have with my dad, he is our world,
Your holiday to Scotland sounds lovely and yes I bet the thought of watching the film does make you cry, but it will be a lovely memory of happy times that your family shared together.
I am happy for you to email me, thats not a problem. My Dad suffered with constipation and it drove him to distraction, but he ended up getting on with movicol. Sorry cant really say much about pain relief, as my Dad was just on cocodamol, as pain hadn't got too bad, but we think that this is because he died from secondaries in his brain so chest wise he hadn't become too bad.
Hi Everyone My Dad is 88 years old and was diagnosed with mesothelioma in October 2007. I haven't been in touch lately, dad had been quite steady, with boost of energy and appetite after having steroids for three weeks, but has come off them a week ago and has really deteriorated since. He has contracted a chest infection and has been really listless and coughing up yuk. The doctors have given him amoxycillan to help this and put him back on two steroids a day. I have been in France and my sister was looking after him. The doctor has indicated that he is failing and has the district nurse call twice a day over the weekend, and when she came on Friday she left a box full of injections diamorphine etc. I have flown home early from my holiday and although dad is a little better he is much frailer than he was and very shaky, he is eating still and saying what he fancies although he doesn't seem to have the same strength. I still do not know whether he will be able to pull through this chest infection or not, but he is strong man although now down to 54 kilos. This really is the strangest disease, you do not know how or what to expect. Can anybody advise me if having the chest infection will compromise his ability to fight anymore. I am at a loss. everything seems to have no answers.
My dad was diagnosed yesterday, what do i do, at the momen i am numb an dont know what to feel or say to him, i am in shock , just thought i would join for some support in this, thanks Michelle x
So sorry to hear you are going thru this nightmare too! You are in the right place for support tho. I find it helps to come on this site and see how other people cope with it too and realise that what I am feeling is natural. If you have any question feel free to ask...
Hi Michelle sorry your dad has been diagnosed with this awful disease - you will be in shock for the next few weeks you will think of nothing else and will be very very emotional as you try to understand the big question WHY and why my dad. How old is your dad? Did he work with asbestos? If so you need to get involve diwth a solicitor you may be entitled to put a claim - sounds harsh and probably sometihng u think is the last thing you want to do but as time goes on you wont feel up to it. I can send you info in a seperate messageif you want. Michelle the important thing right now is (what everyone will tell you) to love you dad and be there for him keep telling him how much heis loved and how you will all be there tosupport him. Has he offered any chemo or other treatment? Does he have much pain? Keep in touch and as angie says (she is my sister) it helps being on here big time! xx
My dear dad passed away on 17 August 2009 at the hospice where he had been since 6 August. We spent all our time with him whilst he was in there and although he was failing fast his sense of humour and graciousness to anybody who did anything for him was inspiring. He died beautifully and peacefully with both my sisters and myself at his bedside urging him to let go and have peace. Fortunately he did not have very much pain but was so very very thin and frail. What amazes me by reading each and everyones story about their dads, husbands etc. with this vile disease is how stalwart and strong they are.
It has been an absolute pleasure and honour (although also I have at times thought how much longer can we go on like this) to have been able to spend such time and loving moments with my dad none of which probably would have happened if we had not spent so many hours just talking and enjoying the caring. My dad was cremated today and I felt elated that he is now free from such tiredness, the fact that he can now go forward and leave the disease behind him and that I have been lucky enough and had enough time to realise that I loved him and got to know him more as a person than only on a father daughter basis. Bless you all, be strong and take some strength from my words, I have gained so much from this and had the honour to look after a man (88 years old) who fought all the way.
Hello Esined sorry about your dad your words are very touching - all our dads who are battling or have battled this should be commended for their bravery! Love kisses and hugs to you and your family rght now. x
Hi,Michelle,I know exactly how you feel my mother was diagnosed on 26/07/16 too ,came as an absolute shock,devastated she is 82 just back from hospital earlier today she can't have surgery or chemotherapy it is not going to be easy,but am sure you will know what to say to your dad.
Hi. My husband was diagnosed last June. He had 5 cycles of chemo which made him really ill. Since chemo has stopped the cancer has been very aggressive and progressed very quickly. He is now quite dependant on oxygen and and takes 60 mg morphine twice day , naproxen, oromorph as required, steroid, paracetamol and anti sickness.Â
Pete sleeps a lot of the time and wakes up very agitated. It's so hard to watch him fading week by week. We are planning on renewing our vows on 3rd June but I'm scared he won't be able to
