New to Share? Come and say hello!

FormerMember over 16 years ago

854 replies
4 subscribers
871431 views

Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

FormerMember over 15 years ago

I NO WHAT BREAST CANCER I HAVE AND HORMONE POSITIVE BUT PLZ CAN SOMEONE HELP ME WITH WHAT QUESTION I SHOULD BE ASKING DOCTOR OK I NO WHAT IT IS BUT I SEE SO MUCH ABOUT STAGE AND GROUP OR WHAT EVER I WANT TO WHAT TO ASK AS I WILL ASK DOC NEXT TIME I GO 4 CHEMO IM OVER HALF WAY WITH CHEMO AND STILL AINT ASKED RIGHT QUESTION
SO YES I HAVE LOBULAR BREAST CANCER YES IT IS IN LYMPH NODES IT WAS AND I SAY WAS SIZE OF A LEMON BUT SHRUNK YESSSSSSSS HORMONE POS BUT THATS IT HAVE TO HAVE MYSTECTOMY AND 20 RADIATION BLASTS SO HELP NEEDED B4 HOSPITAL NEXT MONDAY TY ALL OH YER GOT A PERSISTANT DRY COUGH SHOULD I BE GOIN DOCTOR DONT WANT TO BE FUSSING MY GP TY AGAIN

FormerMember over 15 years ago

Hi all really new to computers and cancer, just diagnosed and really scared. I have two children with behavioural problems, a husband who struggles to support with their behaviours and now I have cancer he's is not doing very well. I have spoke to the kids but although they know whats happening they don't comprehend the real impact this is going to have. I am feeling very isolated and panicky about the future. I am also a real coward and don't like pain, even injections are very painful for me, I don't know how I'm going to get on with chemo and major surgery.Am I just a wimp?

FormerMember over 15 years ago

dear debbie and jooles, im so sorry that you both have come to this site, im sorry i cant really help either of you, with your different questions, but if you both go to the left hand side of the page, click on cancer types , type in your relevant cancer, related to you, it should take you to others in a similar situation to yours, if that dosent help, try the cancer backup at the top of the page, or you can go to the home page and ring a macmillan nurse, who should be able to answer some of your questions. you should be able through your mac nurse to go through and speak to your specialist, im sorry i couldnt be of more help, my very best wishes to you both, jackie x

FormerMember over 15 years ago

I'm new here and finding my way around. Mum has lymphoma and only days left to live, she's 79. I've been caring for her since February 09 . . . keeping positive for her and trying to make life bearable . . . now I'm just exhausted and even though she's in hospital and palliative care is being organised I feel so helpless. Glad I found this forum.

FormerMember over 15 years ago

dear onlygirl, im so sorry about your mum, and yes you must be exhausted!, theres nothing anyone can do or say right now that will make any difference, the only thing i can say is, hopefully shes in the best place right now, just concentrate on being there for your mum, lots of love jackie x

FormerMember over 15 years ago

My mum died two weeks ago today 4.30 - all over from diagnosis to death in a matter of weeks - signing off now as family need me X

FormerMember over 15 years ago

dear trace, im so sorry about your mum, you are obviously really devastated! right now, come back and chat later, im always up for a chat, and il be ready and waiting, thoughts are with you, jackie x

FormerMember over 15 years ago

Hi again

I haven't posted for a while (page 75) as life has just been a blur, I wanted to say thank you to Moomy for taking the time and trouble to send such a thoughtful and comforting reply.

I just wanted to share two bits of good news - the hospital did a biopsy on his bowel and it came back benign. I also heard this week that he has now seen a neurosurgeon who has decided that his brain tumour can be operated on and the operation has been scheduled in the next week or so. These pieces of information are so overwhelming and I am not sure they have sunk in any more than the fact he has cancer. My mind seems to be like running through treacle at the moment. He was told the bowel cancer was the primary cancer and the brain tumour was inoperable. Why would they say these things to him without being 100% definite? I don't really know what they mean either, do they affect his life expectancy? I am so scared to accept this as good news am I strange? I know its not me who is suffering from this harsh disease but I just feel like screaming out loud with the injustice of it all. I get frustrated that I can't talk to him and I am missing him terribly. With all that is going on in his world at the moment he manages to find the time to send me lovely texts and I send him positive texts too, he is feeling really positive bless him. I've been staying with a close friend and her family and I am envious of their lives as although they are supportive of where I am, their lives are just normal, I feel a bit like I am in a bubble watching them.

Anyway sorry to go on I just wanted to let some of what I was feeling out I hope thats okay.

moomy over 15 years ago

Hello again, Hinckley, you are not at all unusual, we all need to spill our feelings on this site from time to time, it is so supportive, your friends that you make along the cancer journey end up helping, then you end up helping them in return......if it would help you, ask for me as a friend, I'd be happy to keep posting to you, we can then do that more privately. I can so understand the feeling of being in a bubble, and life going by slowly, thats what this wretched disease does to our lives, just turns them upside down! It makes it so hard to try to live a normal life, one that you would otherwise be doing. A big (((((((((hug)))))))) for you, to comfort a wee bit, do keep posting......

Moomy

FormerMember over 15 years ago

Hi Im hoping someone here can help....

Im 27 years old and am currently being tested for primary polycytheamia, My consultant is 99% sure this is what I have and I was wondering can someone please tell me if this is a type of cancer?

I have had mixed messages from both the hospital and people I have talked to- for one the hospital gave me a macmillan leaflet(which I didnt find until I got home) and this immediately made me fear that it is cancer.

Im sorry if it isnt and I have joined you all without a reason to but I just need to know,so I can prepare myself just incase it is proven I do have polycytheamia.

thank you
xxx

More from this forum

New to Share? Come and say hello!