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Hi everyone

This is my first post on the site.

I was diagnosed with Myeloma last year and have been taking the CTD course of treatment since December.

I have four more weeks of treatment and If the test results are favourable, then the next stage will be to have an allogenic stem cell transplantation in the near future.


I was wondering if anyone else is going through the same treatment and how it was affecting them?


Kind regards.

David

hi everyone,

im not really sure if this is the right place for me, but i am looking for some reassurance and support.
this is my first post on the site.

my sister was diagnosed with Osteosarcoma in november 2008 and has since been under a course of intensive chemo and is having an operation next week to remove several bones, knee cartiledge and some tissue. of course it was a terrible and horrific shock to all the family, she is only 7 and so it seemed unspeakably unfair. the cancer has, thankfully, responded well to the treatment and the tumor has slowed down in its growth, however she in herself has, im afraid, responded very badly. she is sick a lot of the time and has stopped eating, making it necassary for a feeding tube to be put in so she is storng enough to continue treatment.
the reason i write is that not only am i struggling with this situation, but feel incredibly guilty about doing so. I feel like, as a sibling, i somehow are being incredibly selfish by findign it hard to cope with, especailly as i am not in any way a primary carer. i am also at university and so have to be away a lot of the time, and we do not live together so i do not really get to see her as much as i would like. i text her regulally (seven years old and has a mobile!) but do not really feel like i am doing enough. i want to support her through it but unfortunately her mother (we have different mothers) does not like me to, i dont know if she feels some kind of resentment towards me, but she makes it very difficult for me to see and speak to her, which makes everything ten times more hard.
i feel very low a lot of the time, but then feel very guilty about being so indulgent when it is she that is going through such a terrible ordeal.

are there any simliar situations, or can any one empathise?

sorry if someone feels like i am being selfish by writing on here, considering it is not me who is going through the disease, but i really needed somewhere to turn.

thanks

hey every one am new 2 hear
a just wanted 2 say ,that am thinking of use all, who have lost some one ,or are going ,through a difficult time ,and am hear if any one fancies a chat ,or some advice ,or just whotever ,x

Hello, Shirs, just seen your post and your profile, it is sad to lose your parents to this vile disease.......do keep posting, it does help.....

hi there moomy ,thanks ,
i no its such ,waste of a life ,why does life have 2 b so cruel ,
i think this site is really good ,and worth while ,,as it could help ,people ,try 2 get over it ,or if they have any fears ,your there for to ,give any advice if they wanted it ,,,
thank you ,x

hi there peggysue ,

i just wanted 2 say how sorry i am ,i lost my dad in october 2 lung cancer ,

but we only had 8 wks 2 deal with it ,it was so ,hard ,even now ,it stil feels like yesterday ,
i keep having the thoughts the nite he passed away ,it was,nt nice ,but he was at home surrounded by his family ,a hope things will ,get a bit easier 4r u ,in time ,am here if u ever want 2 chat ,or 2 talk about things ,x

hi there peggysue ,

i just wanted 2 say how sorry i am ,i lost my dad in october 2 lung cancer ,

but we only had 8 wks 2 deal with it ,it was so ,hard ,even now ,it stil feels like yesterday ,
i keep having the thoughts the nite he passed away ,it was,nt nice ,but he was at home surrounded by his family ,a hope things will ,get a bit easier 4r u ,in time ,am here if u ever want 2 chat ,or 2 talk about things ,x

dear shirs, thanks, for your post, yes i agree this disease is horrendous, im always here if you want to chat, jackie x

Hi Ironside here and yeh my nickname is because I am a wheelchair jockey remember the tv program Ironside starring Raymond Burr ?

Anyway I am here to say hello and also looking for advice.....so I dont know if I am in the correct thread....if this isnt in the right thread please move it if you have to Thanks!

Right 11 years ago I had a mass in my gut and it was the size of a tennis ball I had an Ileo Ceochal Resection done and they took the lump away and it was benign thank goodness! However it left me disabled due to nerve damage and various other things were wrong with me after that surgery but anyway I still alive thanks to the docs. My question now is this and it is 0510 in the morning and I have been up all night worrying about this....I noticed yesterday that I have a golfball size lump just under my sternum I obviously pressed it and it is blooming sore ...I feel down to the bottom of my sternum and there it is ....any ideas what it could be guys and gals?

This is just to ease my mind a little till I can get the the doctors??

Thankyou and God Bless you all!!