New to Share? Come and say hello!

FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    Hi to everyone, especially if you are completely new like loubie-lou, Morag & peter. It is good if you can put your main information in your profile and then open it to view. It makes it easier for people to respond, it saves you keep repeating yourself in further posts, and it can sometime be helpful if people are trying to find one of your posts they have "lost".
    Go to left hand side of page and you will find My Profile in blue. Click on, fill in Profile and use Biography tab as well if you like. Then when it asks if you want to Open it to view by others, you can choose whether you want it open to all, or just to friends. Have a look at a few others to give you an idea of what you want to say. None of your personal info like birthdays, email or Surname will show up.
    Hope this helps
    Love HarryB x x x
  • FormerMember
    FormerMember

    Dear Loubie-Lou

    I have missed a couple of days, but on looking through posts, I can't see that you had a reply. I'm so sorry if that is the case. This thread is great for introducing yourself, but sometimes if another newby posts soon after, your post can get missed.

    I'm really sorry to hear about your mum's illness. She sounds as if she has really been through the mill, but the main mistake seems to have been in the initial diagnosis. It would be good if you could put that first post into your biography on your profile, to save people having to ask questions whenever you post again. Dont worry you can cut & paste!
    I understand your anger. We all want the best for our loved one, and maybe and probably and possibly, dont cut it do they? Unfortunately, that is sometimes all they can give us, because they simply do not have all the answers.
    Chemo is a poison, and if they had given her stronger chemo, as you suggest, she may have had far more side effects that she wasn't well enough to cope with at the time. There are always pros and cons with any treatment, and they have to weigh up carefully the damage the chemo does to the body against the possible benefits.
    I'm glad your mum is feeling well for the moment and hope she can enjoy her holiday. Where is she going? I ask because of the travel insurance question, and hope she can get sorted with that.
    If you want to search Tags at the side for Bowel, you may find other relevant threads which may be useful. If you want to request anyone as friend, click on their profile. Has your mum now got a urostomy bag? a colostomy bag?
    So sorry you and your family are having to go through this
    Love & hugs HarryBarb x x

  • FormerMember
    FormerMember

    Hi Morag

    I'm so sorry to hear about your dad. If he has been referred for palliative care, that means he is not cureable. However it doesn't mean that you will neccessarily lose him very quickly, as many people live for years with prostate and bone cancer. Being put on morphine does not mean someone is terminal, it simply means they need strong painkillers, and bone mets can be very painful. If you search the tags at the side for Prostate or Bone you will find other posts on here that are relevant and that you can reply on if you wish. There are at least 2 men on here with the same problems. My husband has the bone mets, but he started with bladder cancer. My hub has just been offered radiotherapy on his pelvis. They may offer this to your dad to relieve pain, but it has side effects, and it depends how well they can target it whether it will benefit him or not.
    I hope you will find the site helpful. Please see the previous post about profiles. There is a great deal of support on here and I hope you find comfort and friendship.
    Love HarryBarb x x x

  • FormerMember
    FormerMember
    Hi Caleta65, if you are still on this forum, i have carcinoid cancer, and if you need any one to talk to, i would be happy to help. Sorry this is a bit late but i have only just read your posting, as this cancer is so rare there are not many of us on this forum. Hope i can help.


    Julie
  • FormerMember
    FormerMember

    I'm new.

    Hi, my name is Kathryn. I was diagnosed with agressive ductal breast cancer 4 days ago on by 33rd birthday (really bad timing!). My surgeon is great though and spent a lot of time talking to me and my husband about all the different treatments I will have to have - surgery, chemo, radiotherapy and possibly herceptin too. My op is set for just over a week's time. He has given me the option of a lumpectomy or a mastectomy and has said he won't make the decision for me. I can't get my head around the mastectomy idea at all so was going to opt for the lumpectomy. My husband wants me to consent to the lumpectomy in the first case but to agree to a mastectomy if while the surgeon is operating he thinks it is necessary. I don't know what to do. I can see his logic that one op has to be better than two but there is some part of me holding me back from agreeing and its causing a lot of tension between us. This is only day 4 of trying to come to terms with this and I know time is short before the decision needs to be made. Any help??? Not sure I've put this in the right place, but hope someone may have some advice. Thank you. K

  • Hi Kathryn
    I’m so sorry that you find yourself here and I’m sure you’re in a bit of turmoil at the moment trying to absorb all that’s happening and having to make a decision regarding surgery. Whilst I don’t have specific knowledge of breast cancer you’ll find lots of help and support here from people who do. If you click on the green Tag to the left of the page and type in Breast you will find an appropriate thread.
    Best of luck and best wishes.
    Love Crystal xx
  • FormerMember
    FormerMember

    Hi

    I'm new to this site to, this is my first posting and I can imagine how you feel at the moment Kathryn as 3weeks ago my life was changed forever, Im 36years old with two young children, working as a nurse and studying towards a degree when I was diagnosed with advanced ovarian cancer. My husband, friends and close family have given me much strength to help deal with whats happening I have been able to be very open with them usualy I am very private, I have been very practical and trying desperately to put things in place for my children, I feel relief that I don't have to struggle on day to day with work and chores any more as I knew I wasn't ' right ' for a while but incredible frustration that I have this time whilst waiting for the next plan as I feel so tired and limited to what I can do, slightly better since I had the fluid drained from my tummy though and then there's being a patient which I find really hard it has given me a new found empathy to all the patient's that I have ever looked after.
    Violet x

  • Violet, hello, I am so sorry to have read your very sad story, but welcome to the site anyway, hopefully you will find a good deal of support here on your journey. It is especially tough as you have nursed at a high level yourself, working for your degree too! You poor sweet!


    You have taken that big step in opening up, too, you said you are normally a private person, so it makes it doubly hard, but in a cyber space it somehow feels easier, especially when you know you will be talking to fellow patients, relatives (like me) and carers. ( you can have a look at my profile if you wish)


    here's a ((((((hug))))) for you to hopefully help you to gain confidence and keep posting.....by the way, you might feel it will help folk find you, if you fill in a wee bit on your profile and open it, saves you having to repeat your story too.

    Moomy

  • FormerMember
    FormerMember

    Hi Everyone!

    Im new to share was hoping for some advice and reassurance ( i hope im at the right place). I recently experienced some severe rectal bleeding and weight loss. After seeing my GP she referred me for some tests. I wasn't initially worried as i am relativley young. But when making the appoinment i realised that i had been fast tracked.

    I see my surgeaon within two weeks, this has made me very agitated and confused. I work for the NHS and understand time constraints therefore i started panicking when i was given a date so quickly.

    Am i over analysing the situation or is there something to worry about??

    Cheeky

  • FormerMember
    FormerMember

    Hi Cheeky

    Welcome to the site, but sorry for your reason for being here. It is really good that you have been seen so quickly. I know it makes it worrying, but so many people have experience of it being the other way round and being messed about for ages.
    I'm afraid no-one can say what the outcome here will be as I am sure you realise, but we will all hope for a very good and positive one. If it proves to be something obnoxious, at least you will get swift treatment which makes for a much better prognosis. I know the waiting for results is dreadful, something we all hate, but it may still turn out to be something benign so keep your chin up and try to stay positive. Do let us know how you get on
    Love HarryB x x