New to Share? Come and say hello!

FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    Hi all,

    I'm new to this site just joined today and already wrote a post and made a huge typo in the subject and posted it without noticing sorry. I came here and started a diary on my journey as my partner has just been diagnosed with cancer in the ureter and we are now facing a bone scan. We had been very positive but since thursday i just can't seem to get my head together although i am putting a brave front on for my partner our children and family. I just wanted to say how glad i am that this place exists .. my brother had pre cancerous cells removed in january and my sister has been battling cervical cancer for 3 yrs now and i am 3 yrs in remission from cervical cancer but i am actually finding it harder to cope with my fiance having cancer than i did when it was me that went through it. Good luck to all on the site x
  • FormerMember
    FormerMember
    Hi all,
    like most people I have to start someware, I am knewly diagnosed and if you want to read my profile feel free. At the moment I am terrified at what the future holds. I have spnet some time reading post about my cancer (oeasophagal), and will join in the dscussions. At the moment I must go as I can't see the keyboard for tears.

    Allen
  • Hello, Allen, welcome to one of the best support networks! But of course we are so sorry you have the need of it......I did read your profile, my you've been through it! Have a suggestion, if you try the tag system, on the left of your screen in blue, there is a tag for oesophageal cancer, do join on that thread, the folks there are very supportive, in fact there was recently a post on one of the threads.....keep posting, my best wishes....

    Moomy

  • Hello, too, Lorraine, what a good idea, to immediately start a 'diary' of your partner's journey, on the site....it will give you a good support being able to pour out your worries and fears, welcome to a good support network, though of course, am sorry you need it! Best wishes to you, and him too....

    Moomy

  • FormerMember
    FormerMember
    Hey Snowdog Allen,
    Wipe those tears away love, sending you a big (((((((((HUG)))))))))), dont know too much about your type of cancer but know a man who does, Brumigem (Mick) aka schmoost to me, being diagnosed is just awful, your in shock scared etc, get your head around that, then get your fighting head on, Now Mick is a survivor of the same cancer and just know if you request him as a friend he will help you out, there is a thread on this page "Surviving Oeasophagal cancer" Mick and Crystal are on there and will advise you,
    Keep your chin up matey,
    Keep posting, this site is brilliant for support
    Kate xxxxxxx
  • Allen, I've just posted on that thread, they will hopefully come and find you!

    Hiya, Kate!

    Moomy

  • FormerMember
    FormerMember
    Great minds think alike voaa ! xxxxxxxxx

    Allen your not alone xxxxxxxx
  • Hello Allen (Snowdog)
    I’m so sorry that you’re having such a bad time of it and I know you will find great support here. I know exactly what you’re going through as I too was diagnosed with oesophageal cancer in 2007 and had the Ivor Lewis surgery in May 2007 and now I’m recovering very well. I understand how daunting all the tests, procedures and chemo can be so if you need to chat about anything at all I’ll try to help you through it. Spending Christmas day in hospital would have been tough and I can empathise there because I was having chemo on the Good Friday in 2007 and I was the only person in the entire ward as all the others were able to go home. That was very spooky for me being attached to the chemo pump and all on my own, so I just hid under the covers. However, I’m doing very well now. There are others here too who will be supportive, particularly Brumigem (Mick) who had surgery over 3 years ago. I’ve requested you as a friend so I hope you’ll send me a message soon.
    Love Crystal xx
  • FormerMember
    FormerMember
    Only discovered this site today and want to thank all contributors with information about oesophageal cancer and post Ivor Lewis experiences. Thought I was on my own with gagging, dumping, breathless, and muscle/scar pain.
    Had surgery 1/12/2008 after 9week continuous chemo, had 18 days in hospital and home for Xmas. Removal of T2 tumour was complete but three of the sixteen lymph nodes removed were positive. I lost 8kg after leaving hospital but weight has been steady for a week now.
    A further 9 week chemo session was planned but after considerable questioning of my GP, Oncologist, internet, and in view of lack of body weight decided to flag it. I was getting a bit concerned about not being able to keep food down etc.until I discovered this website and it looks like I might be just a little impatient and expecting too much too soon.
    Thank you again for sharing your experiences.
  • Hi Rumbler
    It's good to hear you're doing well, albeit finding the side-effects a bit difficult. The recovery does take a long time, at least 18 months but it does get a lot better over time. You are in the very early stages of recovery yet so mostly I expect you still feel very tired and without energy. I hope that when you're a bit stronger and you've gained a bit of weight you'll consider the chemo again or find out more about it from your doctor.

    I'm really glad that you've found some useful info here. I have a thread on the General cancer page called 'Surviving Oesophageal cancer', so it would be great if you'd join us there as there are a few of us who've had the Ivor Lewis and are doing ok.

    Hope to hear from you again.
    Love Crystal xx