New to Share? Come and say hello!

FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember

    hello im new to this site

    i am a carer and my husband has lung cancer. he has just finished his first treatment of radiotherapy 12 sessions and we await chemo . my question is he had a stroke 16 months ago from which he was recovering well now he has lost his right arm right vision and his right leg is weak is there anyone who is in a similar situation that may talk to me . it seems that we have 2 illnesses runing together is it to do with the treatment could it right itself

  • FormerMember
    FormerMember

    Hello optomistic

    Although I can't answer your questions I just wanted to say welcome to the site, my hubby also has lung cancer and has had chemo and is now waiting to have two lots of radiotherapy.

    I think it helps to come on to talk to others who are going through the same and I hope that someone will be able to help you.
    Jen x

  • FormerMember
    FormerMember

    Hi optomistic

    I'm sorry to hear about your husband's illness. When did this weakness begin? After the radiotherapy? I think only a doctor can answer your question as to why this has happened, so I hope you get it investigated.
    This is a good site for support and friendship, and I hope you find it useful
    Love HarryX

  • FormerMember
    FormerMember

    Hello,

    My name is Vicky and my husband has just been diagnosed with lung cancer and it has spread to liver, lymph nodes, bone,brain,adrenyln glan...he was healthy until 4 weeks ago and all of a sudden sharp pain on his right side and this is what they have come up with after two cat scans, pet scan and lymph node biopsy and mri of brain. It is just so unreal and I am scared to death...he was the strong one and now I have no idea what is going to happen. Tomorrow is a doc visit and they will discuss radiation on the brain then I guess start the chemo after?? I am glad to find this sight and other people going through similar things..I feel so alone and my husband I know is scared but wont admit it. Thanks so much for listening to me..Vicky

  • FormerMember
    FormerMember

    Dear Vickyz

    I am so sorry to hear of your husbands diagnosis I know it is such a shock, and then there are so many appointment's to be going too your head never seems to stop spinning does it.

    I hope the app with the Dr goes well,when I went with my hubby (he has lung cancer ) I wrote down all the ? that came into our head's to ask the Dr as sometimes when you get there your mind goes blank.

    I will be thinking of you both tommorow,all the best and take care Jen x

  • FormerMember
    FormerMember

    Hi Vicki

    Welcome to the site, but so sorry for your reason to be here. You must still be in a state of terrible shock, to hear that this has spread so far before he got any symptoms. My heart goes out to you. I'm sure you know there are difficult times ahead, so I am glad you have found this site. There is a great deal of friendship and support on here, because people are all affected by this disease in some way. I hope you can also gather your friends and family around you and ask them for help and support too.

    Keep coming on here, have a good look around the site, and find people you are comfortable with. Did you fill in your profile and open it? I didn't look, but although not compulsory, it does help people respond.

    Love & hugs HarryB x x

  • FormerMember
    FormerMember
    Hi all,

    I am new here and not sure where to look and what to search for yet.

    My mum was diagnosed with malignant melanoma earlier this year just after christmas but she didn't really want to say anything properly till after the holidays as she didn't want to spoil it for everyone (she just wanted us to have happy holidays, i'm sure she thinks like most lovely, little mums).

    She had it removed plus two other moles just in case on the 17th Jan and they ran tests on some nearby lymph nodes.

    Today we found out that the melanoma has spread to the nearest lymph node. I am still unsure to as what it means but after having visited the Cancer research site and a few Finnish sites, I'm starting to understand that my worst fears are indeed true. My parents live in Finland and I'm in London : ( It seems too far away and thinking about flying over to see her even though I cant really do anything. I work freelance and I could go there anytime but not sure if I'm jumping the gun as she is still waiting to have more surgery.



    Anyways, I'm really happy to have found this forum and sorry if the posting reads badly as usually more articulate than this. My brain just seems to be fogged up by the news : (



    -missmai
  • FormerMember
    FormerMember
    Hello, I joined a couple of hours ago and I hope there is someone who can help us or point us in the right direction.

    My stepdaughter, who is in her mid-40s, was advised at Christmas that she has cancer of the endocrine system. She went into hospital a few weeks before to have a lump taken off her neck. The lump had been there for approximately 30 years but when a biopsy was carried out, they said it had all the symptoms of a secondary. My stepdaughter then had an Octreotide scan and because her entire lymph system is affected (she has "spots" on her liver, aorta, kidney and thyroid) she has been told that they can't operate. In the Specialist's opinion, her cancer began in her appendix approximately 10 years ago.

    She has been prescribed injections, every two weeks, of Lanreotide for the rest of her life. Last Friday, she went to her GP as instructed, for the first injection. Because the condition is so rare, the GP actually asked my stepdaughter what dose she was on and admitted that she wasn't sure how/where to administer the injection. The GP was also under the impression that it was a 6 week course like chemotherapy. My stepdaughter went home in tears because she doesn't know who to turn to.

    Needless to say, we are all floundering, especially as the medical profession seem to know so little about it. I have read the information on several websites and understand much of it, but we, and especially my stepdaughter, would really benefit by being able to correspond with a person or people who have experience of this type of cancer. I spoke to her on the telephone last night (we don't live close by) and she sounded so desperate.

    Can someone also tell me - are carcinoid tumours and neuroendocrine tumours the same, or similar?




  • FormerMember
    FormerMember
    Hi VickyZ

    So sorry to hear the reason you are on here but you are in the right place, lots of people on here will be able to comfort you and answer your questions. My mum was diagnosed in March 08 with stage 4 lung cancer that has spread to her pelvic bones and I find lots of my questions and fears are answered by reading other peoples comments.

    Browse the site and you will find someone you feel comfortable chatting too.

    Take Care
    Hugs
    Julia
    xx

  • FormerMember
    FormerMember

    Caleta,

    I am so sorry to read of your daughter's endocrine cancer. Like you say, it is quite rare, and I'm afraid I know nothing about it at all, so am unable to help you. You may have already seen this on the cancerbackup site, but here is the link in case you have not:

    http://www.cancerbackup.org.uk/Cancertype/Endocrine/Adrenalglands
    With so many unanswered questions, I think your daughter needs to go back to the oncologist who diagnosed her, armed with a list of questions. She also needs to take someone else with her, or if that is not possible try and take a recording device, and ask if she can record the conversation. When we are hit with something so major and unknown, our minds at first shut off, and it is only later that all the questions come to the surface. Also when we are there getting the answers, our minds can sometimes fasten on to one aspect, so we dont hear the rest, which is why it is good to have someone else with us. 2 pairs of ears are better than one. I hope you all get the answers you need and some positive treatment.
    Although there may not be anyone on here with this particular cancer, you may still find it a useful place to chat to others, as we are all going through similar difficulties, even though not completely the same. It does make for friendship and support.
    Love & hugs HarryB x x