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FormerMember over 16 years ago

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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

FormerMember over 16 years ago

thanks jillyb63, that means alot. i guess we sometimes forget how resilient kids are and how they accept these things in a much simpler way than us. i still don't want to tell them their grandad is dying until i really have to though as they are very little and can't understand time very well still. it just breaks my heart that they won't have him around as they grow up as they will miss out on so much. all grandads are great but my dad is just the best and dotes on them all. he has so much to teach them and tell them like he did for me and my brothers when we were growing up and i can't bear that they will miss out. he'll leave behind 5 (soon to be 6) grandchildren all 5 or under so they will hardly remember him in a few years time.
i guess eveyone goes through the why is this happening to us stuff, but i can't get past it. it just seems so unfair that cancer happens to anyone. my dad has lived a healthy outdoor life, never ill, never smoked or drunk more that normal, always loved life and is loved by so many and has so many friends so why him?

good luck to you with your journey. i have a good friend in a similar circumstance to you with three girls between 7 and 2 and she tells them alot about her breast cancer too and they are great support to her.

FormerMember over 16 years ago

the thing with cancer is it can and will affect anyone there are no rules it is a vile and indiscriminate condition my wife fought it for 5 years and sadly lost her battle in may but we kept our children always informed she thought it was best to be up front and honest please dont get me wrong and think i am morbid but not everyone who has cancer dies speak to your parents ask them its better you know everything than have regrets if the worst does happen but try and be positive always stay positive for yourself and for them as for your kids they will never forget there grand dad cos you will talk about him and show them photos but lets all hope he is here for for a long while good luck and take care

FormerMember over 16 years ago

Hi everyone,
My name is Clare and my husband Kevin has meyloma.I've been reading your blogs (I think that's what you call them!) since June when my husband was diagnosed with meyloma. You all sound a great bunch of caring people. What I find difficult at the moment is with my emotions. I not only feel angry, sad, upset and also guilty because it's not me who has had chemo and waiting for a date for a stem cell transplant. I this 'normal' for a spouse/carer/partner to feel this way?

moomy over 16 years ago

Hello to you newbies, I hope you will soon find a thread about your specific experience and feel able to join, or even start your very own thread, it is tough having this experience of cancer in your life as an uninvited squatter, but this site is very supportive.....my very best wishes....

Moomy

FormerMember over 16 years ago

dear grandads-girl im sorry you find yourself on this site, we are all on here for the same reason, there are lots of great caring people here, and they can give you mighty comfort and support, ive been on here a week, and everyone ive chatted with, are absolute diamonds, so chat to people, and you will find how warm and caring they can be, my hubby has got terminal lung cancer, its not easy to deal with, but i try to cope and get through, some days are better than others, try and think positive, your grandad bless him, needs you xxxxxxx hugs jackie xxxxxxx

FormerMember over 16 years ago

Hi,

I've been close to posting something for months now but didn't know where to start. My Dad found out he had bowel cancer, with secondary liver cancer in April this year and although his consultant is very nice, she's not very open to talking about his "option" and different treatments, Its just chemo all the way and then test after test. I'm hoping to find people who have know or had experiences with any other treatments, like Avastin....I just feel useless

FormerMember over 16 years ago

Hello.
I just joined this morning, thought this would be the best place to start posting. I'm familiar with the whole forum and thread style set up; so i'm having no problems navigating myself around.

Im Stephanie, im 22, and my Dad who im extremely close to (im the baby of the family so to speak) has lung cancer, and also a tumour on his adrenal gland. It's terminal. He started Chemotherapy on Monday of this week. Im on here for some support really, because Im having to be strong for my Mum and Dad, and to keep going to uni, and keep working. Yet at home, i'm totally different, and am struggling.

Thankyou.

x

FormerMember over 16 years ago

Hi to all of you new ones on here. Welcome, but so sorry for the reasons that have brought you here.

As Moomy just said, if you want to talk to people in similar situations search under Tags (l/h side of page) for the particular cancer. You will then find threads you can reply on.People on here are very friendly & helpful, and you will find support. I personally find it very helpful talking on here, because people understand how you are feeling, because they are in similar situations.
To all those of you who's families are not giving them much info, I would say go to them, sit them down and tell them how important it is for you to have the truth, even if it hurts. It's much easier to cope with truth, than vagueness, secrets, whispers etc. Of course you can't make them! Some people are more private than others, some families never talk about important stuff, so you know what your own families are like and how far you are likely to get.
If you need information about particular cancers, the affiliated site, www.cancerbackup.org is very good.
I hope you all find friendship and comfort on here. Sending you all BIG HUGS x x x

FormerMember over 16 years ago

Hi

I am new to this site. Firstly let me say my heart goes out to everyone who signs into Share.

My Mum is terminal - pancreatic cancer with secondaries in her lungs she is 78 years old and until recently was doing well having gone through chemo without too many side effects. Last week she was admitted to hospital as her lungs started to fill with fluid, she seems to be making a slow recovery but this has left her so weak we are unsure if she will ever be able to cope at home again. It seems so unfair when families have to watch someone they love suffer, but this site is agreat help for someone like me who at times wants to left of steam with someone who really understands what I am talking about.

Thinking of you all.
Lin

FormerMember over 16 years ago

Welcome Linda

I am so sorry about your mum. It is very difficult watching people you love go through some of this stuff, and feeling totally powerless to help. But I'm glad you have found this site, and hope you will use it, and find friendship and comfort.

Love Barb x

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