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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    ok, I think I'm getting the hang of this! I've set my profile so that anyone can see so i hope you'l be able to read the bio now.
    also, thankful: i have posted in "coping with loss"

    best wishes x
  • FormerMember
    FormerMember
    Thank you for posting Sarah. I have read your bio now. May your dear Mum rest in peace.
  • FormerMember
    FormerMember

    hi.

    i've just joined this evening as i'm trying to make some sense (through the tears) of the news that my mum has just been diagnosed with lung cancer.

    we found out at 2.30am last night after an absolute joke of a day in hospital. i've not slept and obviously, neither has she. thinking about it, i feel really selfish for wanting help here, but everyone has said that i need to be strong for her... but if i can't rant and scream and cry in front of her, where do i go? all i want to so right now is break something.... after all, if it was a person was hurting my mum i'd punch them! i feel so absolutely useless and have no idea where to go from here.

    last night she had about a litre of fluid drained from her lungs (but not all of it??). we have a wait before the results come back telling us what type and stage it is, and we've been told that because of the xmas period it will take longer than usual???

    we're stuck in limbo, and the not knowing (how, when, why? why? why? why!!!) is sending me on an emotional rollercoaster... within the space of 5 minutes i am lurching from grief at the possible outcome, hope, fear, confusion etc, so god only knows how my mum is coping with the news?

    i guess i just wanted to get this off my chest before i do break something! and maybe, hopefully, learn a few things from your experiences?

    o god, i'm so sorry for the rant!!

    siany

    x

  • FormerMember
    FormerMember
    Hi Siany

    i think it's a perfect place to rant. Much better out than in.

    I understand some of what you are going through. At the moment my Mum is in a hospice with a brain tumour. It looks like she doesn't have long left and it's obviously hitting us hard. We've had a few months to get used to the idea, but actually you don't get used to the idea at all. And Christmas just seems to make things worse.

    My Dad especially is very angry about the unfairness of it all. Mum is only 67 and "should" have another 15-20 years left really. But the brain tumour means this is of course not the case. His anger hits him at various times - when he is talking to someone in a call centre, when the shop has run out of the one item he specifically went in to buy, with the useless general hopsital care....the list goes on. I'm glad he manages to let it out (though feel sorry for the recipients of course!). I am also pleased he doesn't take it out on Mum or us (me and my sister) or the nurses who are doing so much to care for Mum and also Dad.

    Nothing that can be said to make this any easier for you. Yes, be strong for your Mum, but don't be afraid to have a rant - on here, with your friends, maybe also try finding your local Macmillan centre? We got in touch with our local one at the hopsital a few weeks back and it was helpful to have someone who had been here before and could help us out.

    take care of yourself
    Helen
  • FormerMember
    FormerMember
    Hello Siany - I am glad you have had a good rant! The news about your Mum has pulled the rug right out from under you. The helplessness and uncertainly are giving you a real shake-up. Do you long for an 'action replay' except that this time the consultant says there is no cancer? I did, when my Mum was diagnosed.
    Keep posting!
    Christine
    (Also Welsh, but living in England now!
  • FormerMember
    FormerMember
    Hi neive07 thanks for your message. Haven't been on line for a few days what with christmas and all. I read that you recently had a baby. Thats great news and I bet it made your mum really happy. My mum would love me to have a baby but even though I've been with ny boyfriend for 4 years I dont think we're ready yet. Sometimes I wonder If we should get married and have babies earlier just so mum can see me do those things but then I realise it wouldnt be for the right reasons. It makes me sick thinking that she might not see me do those things though.
    So I take it your mum doesn't live with you. Where is she living? My mum is at home with me and its just the two of us. I never got the chance to move out as my brother and sister had already moved out when my dad passed away and mum wasnt emotionally strong enough to be on her own then.
    So how did Christmas go for you? Did you spend it with your mum?
    Niffer xx
  • FormerMember
    FormerMember
    Hello everyone I just wanted to talk to people who are in a similar position to me. My mum was diagnosed with lung cancer four months ago. She has stage 2 non-small cell lung cancer which as been caught early, all of which sounds quite positive. However, she also has emphysema, which meant that doctor's could only perform a wedge section on her upper lobe. Having had all the relevant scans doctor's performed the operation, which we assumed was a success. On her next scan her consultant was dismayed to find that the tumour was still there and had actually grown in size. It is under investigation, but they can safely assume that cancer was removed from the lung but not the originating tumour. We were devastated as this was my mum's only chance of an surgery because her lungs are too damaged to cope with any more removal of lung. The only options now left, as I am sure you are aware, are radiotherapy or chemo. As for me I am distraught because my husband and I are trying for a baby and are having difficulties with his fertility. It's pretty obvious my mum's life expectancy has been reduced due to this blunder. I feel like I am sinking, my marriage is suffering it seems as if everyone has forgotten about me. I have a really stressful job (teacher) and our new head, who knows about my situation, shows no understanding and has actually been mean to me. I just wonder how much more I can cope with. My relationship with my mother as been stormy in the past and all the bad memories keep flooding back sometimes it's hard to think of reasons to go on. I know there are people who are bereaved and in worse situations than me but I feel so alone.
  • FormerMember
    FormerMember
    (((((( Kelly )))))
    My Mum also had lung cancer and she had suffered from COPD for years, so her options were limited, too. I am a retired school teacher, so I know how stressful your job is.
    Please request me as a friend if you would like hear more about Mum and how she coped and if you generally want to chat some more.I just checked your profile because I wanted to request you as a friend, but I could not find the friend request option.

    Christine
    x


  • FormerMember
    FormerMember
    Hello All,
    Sorry but I havn't done this before.
    Happy New Year to you all.
    Love Mary xx
  • FormerMember
    FormerMember
    I hope 2009 will be a good one for you all in every possible way .... but I am painfully aware that, in many ways, it is not a good time for you at all.If you need prayer, you are welcome to contact our Prayer Group - click on 'Groups' on the top left panel.Christine