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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember

    Hi this is my first time using this site am just a bit lost at the momen, my mum had breast cancer eight years ago and we though that had all been dealt wih and was forgotten.Recently though she broke her hip and a week later the surgeon called her back to say they needed her to come back because there was something wrong with the bone removed. We have since had it confirmed she had extensive active cancer in several areas mainly in bones and some spots on her liver. She is currenly in a hospice to get her strength together as she was recently too weak for radiotherapy. I am at home looking after dad who has parkinsons and just feel totally overwhelmed by it all. I feel like a failure because she wouldn't eat for me so just kept losing weight. I cant seem to keep on top of anything at the moment.



  • FormerMember
    FormerMember

    Bazza
    That is fantastic news! It doesn't happen often, but you do hear of these stories where cancer just "disappears". Some say it's stuff they have taken or diet, or chemo, others think its a miracle and some say there was a mistake in original diagnosis. Whatever it was, whatever you believe I am very happy for you.

    Love HarryV

  • FormerMember
    FormerMember

    Frangelina,

    I am so sorry for the reason you need to be here, but welcome to the site. My husband also has secondaries in his bones, so I know some of what you are dealing with here.
    Please dont feel like a failure. You can only do your best and encourage people to do things that are good for them. But you can't make them. Its their life and their choice.
    I hope you will consider filling in a profile & maybe biography as it will help people respond to you and may save you keep repating yourself, if you continue posting.
    This site is full of people in similar situations, so I am sure you will find friendship and support.
    I hope your mum soon regains some of her strength and can be at home with her family. You are having a difficult time tho, as your dad is ill too. How far advanced is he with Parkinsons? Do you live with them or are you back & forwards?
    Hope we can all help in some way, so that you dont feel as lost
    Love HarryB x x

  • FormerMember
    FormerMember

    lesleigh

    I am so sorry about your mum. I think you will find she has a similar journey with lung cancer without the chemo, than she would if she had it, but without all the side effects of chemo. Chemo is only palliative once it is advanced. It is not an exact science and it may be faster or slower, everyone is different and so much depends on other factors.
    Chemo can sometimes slow things down, but it damages the body at the same time. You may find it useful to look at the other part of this site by following this link:

    http://www.cancerbackup.org.uk/Cancertype/Lung
    You will find lots of help and support on here, and as Rose said, try searching the tags for Lung, to find people in simialr situations.

    Love & Hugs HarryB x

  • FormerMember
    FormerMember
    Hi new to this post mum age 65 diagnosed with glioma 1V on oct 20th wat a shock had op to remove part of tumor cud not get all and was told needed rt an chemo left neuro 10 days later tumor on right side affecting left arm no movement at all and slight weakness in left leg took mum home and cud potter around and make a cup of tea just cudnt make the stairs on her own but left leg getting weaker in 4 weeks neva seen a DN doctor or any1 finally physio came and arranged for DN to call saw her once then mum started rt on 25 nov to sick to have chemo as well second week DN didnt come i had to ring as mums mobility went worse cudnt walk at all mum admitted to hospital were she was having treatment and was going to be allowed home at weekends this is second weekend and cant come home as she has deteriated and needs stair lift which we are trying to sort out now to get her home for xmasnow she is catherterised as she needs to go to toilet all the time she is so depressed nurses took her to toilet yesterday and she fell so now they sit her in a hoist type toilet by the bed wen i went in to day she was distraught as they wont take her the loo because of the fall she feels all her dignity is going i used to take her to toilet in wheelchair and she was fine but now she wont let me as she has lost condidence with fall she was on 4mg dex then 8mg now upping them again to see if this will help it is heartbreaking to see my mum who was so independent and done everything herself inc painting house wallpaper make curtains gardening right up till this happend she has bin a widow for 24 years and i am a only child we did move in with her when this happend and her sister wud also stay with her and care for her but we just dont no which way to turn at min mum seems to think after her 6 weeks of rt finishes she will be ok she seems to have put a wall up but maybe that is for the best when leaving the neuro we were told we wud have a gud support team around us but that doesnt seem to be happening dont no were to turn i have a good husband who is brill with her and 4 kids 1 aged 28 one 24 one 18 who are helping as well and a 12 year old also mums short term memory seems to be gettin worse i have been reading posts on this site since mum was diagnosed and have found more out than we have from medics but feel we need help ??????

    crell 12 dec
  • FormerMember
    FormerMember
    HI crell
    Sorry that you are having such a difficult time. The 1st thing you need to do is get in touch with the Macmillan nurses in your area either through your GP DN'S or direct. Tell them what you are finding most difficult and they will or should take it from there.
    Take care Mary
  • FormerMember
    FormerMember

    Crell,

    So sorry to hear about your mum. It sounds like you are going through a nightmare. I think it would be a good idea to do a profile and then post on one of the Brain Tumour threads, where there are people who are going through similar things.
    Edit: Have just read through again. Sorry. Can they put a commode and hospital bed in your mum's home for her, to make life easier? Everything she needs is supposed to be in place before they let anyone so ill go home, including any nursing care she may need.

    If you search on Tags (lefthandside) for Brain, a number of topics will come up, and you can join any of them by using the "Post Reply" option at the bottom of the page. Hope you will find friends and support on here.
    Big hugs xHarryBx x

  • FormerMember
    FormerMember
    HENRIETTAB
    I live with mum and dad and have done for about a year, me and my fella moved in with them to save to get a head start with a mortgage. I am 28 and when we first moved back my sister made my life hell,and also tried to turn my brother against me. Obviously so much has changed since then because now mum and dad need me, and I am so glad its me there for them. I never used to think my dads parkinsons was that bad when we weren't living there, I thought mum was dramatising it a bit, but seeing first hand every day I can see how bad it has got. His shaking is very bad he cannot do lots of things now because he just doesn't have the dexterity, his memory is awful now and I have to constantly monitor his pills as he has a habit of not taking them or taking the wrong ones. He doesn't get about alot ,cant do basic household chores, oh its just a long list, but again I am glad its me there for him because my sister decided to insinuate to him that him not doing alot was because he was just lazy. At least he knows I dont believe that.Its looking like mum might come out of the hospice on monday which I'm looking forward to but am nervous incase we have the food issue again and she doesn't eat. Will be trying desperately to get some christmas decorations up today as she loves christmas and I think it would make her happy to have the house all festive. Sorry I have rambled on a bit. How do you cope looking after your husband,do you get much support? The doctors haven't said but am I to take it bone cancer is pretty much incureable?Sorry to pester you.
  • FormerMember
    FormerMember

    Frangelina

    Please dont be worried that you are pestering me, because you are not. This site is all about supporting one another through all these difficulties we all have because of the dreaded C. I also know a little about Parkinson's as my Uncle had it. I never lived with him, so of course my experience is very limited.

    May I suggest that you make a profile and open it to view. This is because as you post, people will sometimes ask similar questions, and if it is all on your profile they can look there and it saves you keep repeating yourself. If you have a look at mine and a couple of others it will give you an idea. Put as much or as little as you like.
    Once cancer has spread to different areas of the body, like the bones it isn't cureable sadly. However many people live with it for years. The main problem is that the bones become weak and may fracture or crumble easily, it also causes deep pain in many instances.
    At the moment, I dont need physical support for my husband as he is quite able bodied. He gets very tired and can't stand, sit or walk for long, so he spends a lot of time lying down. I do need moral and emotional support, which I get from my faith, my friends, my family and by nattering away on here. Its a very emotionally draining thing as I am sure you are aware. Because of that I also started a Carers Only group which you are welcome to join.
    Look on left hand side of page for Profile in blue, and also Groups.
    I hope you got your decorations sorted and have a good day today
    LOve & hugs HarryB x x

  • FormerMember
    FormerMember
    Henriettab
    Thanks for your replies, I have got more sense from you than I have had from doctors over the last few weeks, not that I don't appreciate the fantastic job they do, just that I guess that by not overloading mum with information or worry it has meant none of us know the extent of whats happening to her.Stupid as it sounds but I didn't know that it would be incureable, I had my suspicions that the treatment they were suggesting might just be lip service to make her more comfortable and not to actually cure her. One lot of radiotherapy and chemo in tablet form seemed tame considering in how many places it has spread. I want to know how bad/how long we can expect but I am scared to ask and I dont want to upset mum.Its not looking like she'll be home monday now, she's had a couple of bad nights sleep, had pains down one side of her face and keeps being sick. I want to be with her but I have a stinking cold and am scared her immune system wont take it. Harryb you sound amazing I dont know how you do it,I only hope as I get more used to things I can be half as strong as you are. I have altered my profile settings so hopefully they can be viewed now, and yes the tree is up and decorated....I just want her here now to share it with us. Thank you again, a couple of weeks ago I hadn't even cried, now this site seems to be my place of emotional outpouring because like a lot of the people on here when people ask we all say we are ok, when inside we are screaming.fran x