Glioblastoma Why Why Why <br/>

hi folks

Debbie, just to say I know someone who has just started on the trial at the Beatson. AS far as I understand it if your dad entered the trial he would have a 2 in 3 chance of getting the new drug – there are 3 groups – one gets new drug only, one gets new drug plus lomustine, and the other gets lomustine only – so he would be having active treatment whichever group he was allocated to – obviously the choice of which group would be random and you wouldn’t know which till after the trial. Sorry, you probably know this already if you have spoken to the Beatson team. We are also being treated there. I have always found Dr J very honest and straightforward to deal with.

Hi Joan, what sort of paintings do you do? I’m afraid I am not at all artistic though I did win a prize once in primary school for a drawing for a charity advert! I’m showing off now!

Carrie, hope things go well today with B’s homecoming. I know its so hard but later you’ll feel it was a good thing he was able to express his wishes to you, and it will mean a lot to his friends to hear his messages. My hubby just won’t properly acknowledge what’s happening, he blames the steroids or his doctors for all his symptoms, at times he will complain angrily he is dying but won’t talk about it beyond that, its really hard. Oh dear, I’ll join you for a “wee greet”.

Lesley, hope you made it to dancing – I used to stress out so much over those things when the kids were wee but over time learned that it make no difference to the rest of their life if they are late sometimes! Now of course everything else seems less important, but it is still important for the kids to have some sort of routine and normality in life, isn’t it. Hope dad is ok, he’ll be glad to be home. Just make sure your mum is confident doing the injections before the nurses withdraw – I’m sure they’ll supervise her doing it first and not just leave her to it. – I hope!

Love to Gayle, Izzy, Emma, Jay, and everyone else on this thread

Diane xx

Hi everyone

Just a quickie (although I'm not sure if that's possible for me!)

Lesley - hope things are still going ok with you. I hope your dad will be more comfortable at home, but it's horrible that your mum is expected to give him the injections.

Joan - i'm also interested to know what sort of art you do. I love looking, but am not very artistic, perhaps I should give it another go as therapy for me.

Jay - I really feel for you. So many of the things you said echo my thoughts at the moment. I know B is older than J but 45 still seems too young to be going through this.

Greentree - Sorry you have had to join us. I think you have come along at a low point for some of us. This seems to be the nature of BTs though that they really are unpredictable but we also have Matthew on the trail, which so far has produced good results. And Izzy's news is wonderful. So good things are happening for us too. Although things are not going well for B and I at the moment, I draw strength from the positive posts and hearing people's good news.

Thanks again for all your messages. You really are a lovely bunch of people and I don't know what I woudl do without you at the moment.

Carrie x

Morning all

Emma glad you have nice sunny weather we have another snow storm, blizzards snow and wind not a good mixture. Our garden shed was blown down last night and all our garden tools everywhere grrrrr that was a job this morning trying to get all the tools together lol, enjoy your walk hope you Mathew and the girls are well. xx

Greentree, sorry that you find yourself here, they say that bts are rare I dont know how they come up with that there are so many people being affected with this horrible illness, I hope you get some strength from here like the rest of us. xx

Jay, so sorry that you are going through such a rough time at the moment as Emma says you take care of yourself so that you can look after Jon, big hugs to you. xx

Carrie, hope your holding up ok, you take care and get ready for your darling husband coming home to you. xx

Lesley, how is your dad doing now he is home, how is your mum coping with the injections?? xx

Joan, hope you and David are well xx

Izzy, wish byou well for both scans. xx

Diane, hope you hubby and the kids are well, do you have blizzards?? xx

Debbie, hope your dad is well. xx

Karen, how are you doing, keep in touch. xx

Julie, hope Stephen is well is he home yet?? xx

Off now to get Martine ready she is going with friends to the cinema then burger king, well she was supposed to be dont know now with this horrible weather, shall have to go and call them, take care everyone.

love Gayle xx