My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lesley I totally agree with you CH and Joan have a mountain of knowledge and I thank you both ladies for all your information, its a godsend. Lesley why dont you contanct the hospital if your dads diabetice is stabilised he may well be able to use the manuka honey himself now, now that Martin is stabilised he has sweet things in moderation.
Enjoy your wine, I was planning on having some but Martin was a wee bit unwell earlier so I decided against it, maybe tomorrow night, all going well goodnight and takecare everyone.
We really have had quite a tough few days hubby was really unwell was very sick have been giving him doperidone and also ondansetron but they did nothing for him anyone out there got any other ideas I HATE THIS DISEASE hope you are all ok there wont be any whisky for me this weekend.
Izzy Sorry you have had difficult times I hate brain tumours too its horrid, Martin been really sleep the past few days b but a bit better today thank god but he is still getting headaches, Martine was unwell too thankfully she is getting better now. Think I might have a glass or 2 of wine tonight since I didnt bother last night, are you having a wee whisky? Hope everyone is having a nice weekend.
Dot thinking about you and Rodger your both in my prayers.
I've not been posting lately as not much has happened, but I've been reading all your postings.
Izzy - When B was in the hospice he was really sick. The doctors thought this was caused by increased pressure and B might need a scan to check this out, but after consulting the hospital they increased his steriods and gave him anti-sickness injections. After a few hours he settled down. He still had a headache for a while afterwards and was very sleepy the next day, but thankfully he hasn't (so far) had a repeat of this.
Not sure if this will help as you all seem to have much more experience than me.
Martin took a really bad seizure about an hour ago the worst so far, he got a huge fright this time too, it happend on his way to bed he went to the toilet and then it all happened, to make matters worse it woke Martine and she saw most of it, it really shook her up, glioblastoma really does rob us all of a quality life.
My dad has been told he has a inoprable multiform stage 4 GBM brain tumor a week ago... he took a sezure when we were on holiday visiting family and he was taken into hospital after a week he got out and we were waiting on his MRI scan but we were told they thought it might just have been the heat or dehidration that caused the sezure, on this info my sisters and I got on out flight home and my dad stayed on with my family that stay in OZ as we never expected it to be brain tumor...
I have five sisters and we are all devastated as he has 2 tumors and they cannot operate on him so they are starting radiotherapy and chemotherapy next week for 6 weeks... we dont know what to do or expect as he is at the other side of the world with his parents and family but his six daughters are all over here.... the family in OZ say their is no point going over just now but i am scared we miss out in quality time with him as they have only gave him a maximum of 1yr but i have been reading info that the average is about 7months.....
can any one tell us what will happen from now on in???? i dont understand it all..... how long will he be ok?? how bad will he get?? how soon will he start to get not well???
Hi everyone Oh Gayle this damn BT - I hope things are a little more stable this morning & Martine is ok - my daughter has seen my hubbie having one - but touch wood they have only been petit mals but it does scare them, and then all the questions start coming which is hard too. I hope you managed to get some sleep in the end last night sending you all a big HUG x x
Sisters - sorry you have had to find this site - but I hope you will find it a comfort - there are some very knowledgeable people on here - all going through a similar experience and all willing to offer advice where they can. It would really help if you could fill in your profile so that you dont have to repeat yourself and people know whats happening without having to scroll back through all the posts. If he could have the operation it wouldnt get rid of it all, - having radio and chemo together is what they do here too in some cases- these try to shrink the tumour & it does work in some cases. Timescales are a hard thing, people arent statistics and we all respond differently to treatment so no one knows for sure - all I can say that sadly at the moment there is no cure and it is an aggressive cancer. How long until he gets unwell no one can answer. there are people on here that were given a short time and that was years ago. As hard as it is try to stay positive, I know its a huge shock and it is a hell of a lot to take in, but keep posting and keep asking ANY questions you have - you will find that people will be really honest with you on here. I cant imagine how hard it must be for you being half way around the world - whether you should go over there or not can only be your decision, not an easy one to make I am sure. Thinking of you Emma x
