My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lesley all set up on facebook now thats another addiction for me between that this and bebo I'll never be offline, hope your dad continues to improve.
Emma I got similar meds for heartburn too and they are helping I feel much better today maybe it is just stress, how did you get on at the hospital today?
Hubbys had a bad day been real sick and slept for scotland such a change is this normal to have good days as well as all these bad days its so bloody awful hope your ok what dis the hospital say to you Emma about the new drugs.
Hi Gayle - can agree with the facebook addition! as i'm not working at the moment I seem so manage to waste so much time on there! great to see so many of us there though and its a nice change to be 'normal'! HA HA HA
Glad your feeling better - I only now take the meds when i need to which i havent for a week now!
Izzy so sorry your having a rough day - as far as I know the good days do come with some bad - but how bad I dont know - has his meds changed at all - and are they not giving him anti sick tablets?
Well we went today and he still has to have loads of tests but all being well will start 5th Feb - and we have to go once a week from now until they stop the tablets which is basically when the tumour starts to grow again - he will have his first scan 4 weeks after he starts so we shall have to wait and see - so watch this space!!!
anyway off to finish housework - still havent done much - got friends coming to stay for long weekend and the house is a bomb site - thats what happens when you spend too much time on face book!!!!!
Izzy sorry your having a bad day unfortunatley this does happen in brain tumour world, hope tomorrow is better for you. Emma it sounds quite promising with the new treatment and Mathew is going to be looked after well with weekly visits it might be a pain going every week but at least they will keep on top of things, hopr you have a nice weekend with your friends. Martine is off school sick now and Martin not feeling great but tomorrow is another day.
Hello girls- glad to see you all out to play last night ...
glad you're feeling better, Gayle - maybe you need some of that lovely relaxing reflexology too - Do you have access to a Macmillan outreach clinic at your local hospital ? Haven't tried ours but i know they offer massages etc for carers as well as patients- stress can be very 'physical' in the way it shows itself and Lord knows, we all get a big build up of stress and anxiety as carers-
it's the old thing of making time for yourself - you may need a bit more time out, go for a walk, go swimming, something physical and something that gets your endorphins going but also try and relax and sleep - sorry- easier said than done - and DRINK LOTS OF WATER (that's not with the whisky- lol) .. Lots of the worry and stress gets internalised in situation like this - trying to be strong for everyone else - I've heard that vigorous exercise, fast walking etc can really help shift it - I know that walking our dogs FAST and in a high wind whilst I have a really good rant and cry lots of hard tears and talk aloud at God and to my late Mum, and David's late grandma and St Jude and anyone else i can think of, really gets some tension out - I come back looking a fright and really cringe if anyone catches me mid rant when i'm out but it helps... it seems to shift the pressure... Also Gayle - you like music - keep playing it - David always used to have music on and i've noticed now when i come in, he's often sitting in silence looking sad - if we put music on that we both like , it really lifts the mood-
Funny- we used to go dancing and DJing quite a lot in the past but stopped when this BT nightmare began but just before Christmas we went out to a local do and had a drink or two and had a bit of a dance together and it was lovely - Nothing too arduous for David - just a bit of motown and a few beers - but we were so happy for that hour or two.. we seemed better for days after it .. Any possibility Martin might fancy going out to a local night with a bit of music- ? Is he up to it? If not, just keep good music on at home - I'm sure it helps change the mood for the better
Izzy - sorry your man's having a hard time with the nausea - Don't know if he could keep it down but if you grate some root ginger into a glass and add honey and hot water, give it a good stir and sip that - it can really help with sickness- in fact I saw some ginger tea bags in the local Somerfield or Co op - I know lots of people recommend it.. AND they're recommending ginger now because it apparently kills cancer cells!! (Google it) - even better then! Hope this helps
Lesley- hope things are getting a bit better every day for your Dad - just that walk must have lifted his spirits - and yours - Don't you sometimes feel like a mirror ? if things are going well and they're smiling, suddenly you're smiling too, the minute something goes wrong , you plummet right down with them - its a constant flux and it's a bit exhausting
Emma - following this trial business with so much interest - it must feel so good to have something to focus on - as opposed to housework - pah- you should see this place - I did think briefly about tidying up 45 minutes ago but ended up on here again instead - haha!- another Port and bed - You don't want to wear yourself out with a hoover , besides visitors love a 'relaxed ' house.....
Sleep well, peaceful night, ladies and wishing everyone of us a calm and positive day tomorrow
hi Gayle and all you girls,just saying hello. Have just posted on wtbt. we were at SGH today for another scan, what a carry on, no parking in disabled bays or anywhere as it was visiting time ,eventually threw the car into staff car park,( risks £40 fine apparently!) went to find a wheelchair, none there, bumped into a friend who is secretary in the neurology building who got a lovely clinic nurse to help me, things started to improve. made it in time for the appointment but they were running an hour late! C'est la vie! too much drinking going on on this thread. I'm going to post Tam O'Shanter as a warning, seeing as its Burns night soon! diane xx
Joan thanks again for all your help and advice, have decided that I am going to join the gym its a scheme through my counciller membership is only £1 and £2 everytime I go unfortunately my induction is not until late feb, but hopefully worth the wait something to get me out in the real world again lol. Do you know anything of Manuka honey and Echinacea capsules got them in holland and barret yesterday called our gp who knew nothing about them h advised I call the hospital so I am now waiting to hear back from them. Re reflexology I have had it and also indian head massage organised by Ayrshire Cancer Support they have brilliant with me, do you have scheme like that where you are?
Diane nice to hear from you goodluck with the scan, when do you get the results? Its dreadfull waiting on them isnt it, we got our last scan done at gartnaval general, and we never even got a letter to inform us I only found out because I called Mairi re Martins seizures she checked the system and the scan was in two days time, if I had not called her we would have missed the scan.
I am scottish through and through but cant't drink whiskey even the smell makes me feel sick, even the thought makes me sick, its nasty stuff, sorry Izzy I much prefer wine and cocktails they are very enjoyable lol.
Hi Gayle, Being a Scot you should know that Scotch Whisky doesn't have an "e" in it, you must have been trying the Irish stuff no wonder you didn't like it. regards Iain
