My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lorraine - Thinking of you at this sad time. As everyone else has said you could not have done any more for your mum. try to take comfort from the love you had for each other and what a lovely, special daughter you were to your mum. Sending you the biggest hug possible. Carrie x
Be prepared everyone. I started writing a post on Monday and haven't yet finished it. When i do I think it will be a record even for me. My secret for writing a long post is to type it in Word and then to cut and paste it into the 'your reply' box. A hint i picked up from Skeete on the WTBT thread. Thinking of you all. Carrie x
Lorraine, thinking of you, your dad and Scott at this sad time, as everyone has said hun, you can have no regrets on everything that you have done for your lovely mum and also your dad, I am thinking of you all at this time love to you all xxxx
Carrie and Lesley, nice to hear from you both, hope your both well. xxx
love to everyone else, well, it was a lovely day for us, Martine despite the tough year she has had, managed to get top of her year at school today she made me and Martin so proud.
Sorry to hear the sad news, it really brings home what is going to happen.
Well, Dad was very ill (sickness), earlier this week and has been taken into a nursing centre for a couple of weeks as mum was struggling so much physically. He has been there a couple of days now and seems to be improving slowly. Can't believe he still hasn't been seen by a doctor, they had to register locally as his GP wouldn't come out that far even though they only live 10 mins down the round!!! I am convinced he has an infection of some sort as this all seems to stem from when he had a catheter fitted, which keeps blocking as he wasn't drinking much., but noone seems to be doing anything. Maybe I am just impatient or expecting too much, been told so many times "it is to be expected with a brain tumor patient". Anyway rant over.......hopefully he will perk up a bit.
Lesley - Hope you are all feeling better soon, we had similar bug a little while ago...not pleasant!
Gayle, Tell Martine that your freinds on the GBM site think she is the "Bees Knees". Just what you need is your kids to deliver a 'pick you up' when you're down When Becky was first diagnosed, Joe was waiting for his GCSE results (one down from highers0. He's very dyslexic and he's had to battle really hard through all his school years. He did well in the exams and we got the results two weeks after Becky's first op. It gave us a huge lift. No pressure on him for this summers A level results! How is your Martin?, hope he is in better spirits. Martin.
It still feels like a big dream I am living at the moment, Undertaker came to see us yesterday and Mum's funeral will be held next Wed 1 July at the church in our hometown where Scott and I got married 8 years ago on the 28th July, Mum will be buried with the outfit on that she had for my wedding day as my Auntie said yesterday its just all 'bitter sweet', as much as though (well me) especially that there would never be a cure for Mum and I would lose her to this nothing in the world ever prepares you for it, my Dad's sister travelled up from Bristol on Tuesday and she got to see her for an hour before she passed a few of the nurses who came to see us yesterday said was she waiting to say goodbye, but they were close but not exceptionally, but I had sneaked home for 10 mins on Tuesday and Dad could not have been there with Mum 24/7 as much as though we were with her alot you just can't do it all the time but I knew she waited until we were both there holding a hand each as I know my Mum would not have wanted it any other way and I always said to Scott no matter what happens I want to be there, as I have been on this emotional rollercoaster ride with her from the start and don't get me wrong we had good times too when her scans were good etc but it has been the worse 2 years of my life watching my angel go downhill and very rapidly in the last 2 weeks which will be a memory that will haunt me for a long long time. I have never seen anyone die or been with them as dying and for it to be your Mum its just heartbreaking, I sometimes wondered when people spoke about the pain left when a loved one dies but now I know, I feel in a daze and that its not really happened as such even though deep down I know it has.
Minister coming to see us this morning and we need to choose hymns etc and each pick a piece of music each for Mum entering the church then leaving it then we have to go to the funeral parlour to make more arrangements and order flowers, I have decided to get her the words Mum made in carnations and roses, yesterday was just such a day the house never stopped, the phone never stopped ringing and we were still with Dad at midnight just so he does not have to be by himself for long but he did not want me to stay like what I did before when Mum was there and I think we both need our time to grief properly and I also need a hug from my darling hubby who has been amazing throughout, without him no way would I have coped as good, and he is totally heartbroken, people have been saying to him she was just a mum-in-law but it was not like that Scott has a little brother of 21 and when we dated and Derek was just a baby/toddler Scott was always at Mum and Dad's and he said she is just like another Mum to me not an in-law, he will miss her so much too but the biggest void will be for Dad as especially in the last year he had to do so much for Mum, the nurses were praising him to me yesterday and it was so lovely to hear.
My best friend has been amazing with me, she had to get sent home from her own work as she just kept breaking down yesterday and she just wanted to be with me, she went thru hard times herself a few years back and as she says its her time now to be there with me, Leah I love you just like a real sister xx.
Well folks I will come back and write to each and everyone of you but for now my head is all over the place I can't thank you enough for the support you have given me at the saddest time in my life.
Lorraine you courage bravery and dignity has astounded me ,
my dad is 4 weeks into 6 weeks of radio ... taking chemo tablets along with anti sickness anti seizure medicine etc etc ..... with treatment he was given 12 months to live back in march.
I an terrified he is 57 and had just semi retired. I am still very scared of what the future is going to bring but i know if me and my family can show half the courage and dedication you and your family have done we will get through this and make sure dads time he has left is spent creating more memories for us to keep.
His treatment has affected him but not as much as we feared...... the whole family is iff to yarmouth 2moro for a long weekend and he is very excited bless him.
i want to thank you again lorraine for your posts , it must be an impossible time for you , but i am sure your posts will bring strength and support for other people on here who really need it .
Lorraine (((((((((((bighugs)))))))))))) to you your dad and Scott, think about you all the time, here for you anytime, your friend Leah sounds lovely I am so glad that you have her, you are doing a fantastic job, your mum shall be looking down at you and she will be so proud, you take care and we will speak soon. xxxxxxx
Martin, thanks very much what would we do without our kids at this time, hope that Becky is doing well and your son and daughter too. xxx
Julie, Michael, Jennifer, Carrie, Lesley, Debbie, Dianne, Christie and everyone else love to you all.
Well folks we had the gp out again for Martin the leg infection flared back up again and now he has developed plantar fasciitis, swelling of the muscles in the heel, he is great pain with this and can hardly walk, again steroid induced, on top of this he has sickness and diahorea, not eating at all hardly but drinking plenty of fluids, now he has an extra 10 tabs to take a day, not a good start to our holidays, tomorrow Martine stops school for 7 weeks and we shall be at the caravan most of the time, so unfortunetley I wont be able to read and post everyday, but I shall as often as possible, take care everyone.
Gayle - I had planta fascitis last year - it is excrutiating. I had it for about 6 weeks and as suddenly as it started I was better. I went to a podiatrist - she was absolutely useless, bough some gel pads - useless, bought some wedge shaped heel pads from Boots - about £20, they were pretty good, but didn't keep me pain free all day. Finally I plucked up courage to let a GP friend do some acupuncture - this was the most effective. But while i had it I was hobbling aound and really couldn't contemplate walking very far at all. Poor Martin.
I won't be around for a few days as I'm to Glastonbury early tomorrow morning - I'm going to try and find the Macmillan tent and see if I can find Christie maybe.
