My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Dianne, so glad that Hannah enjoyed her ball its great to see our loved ones being happy and having a bit off fun and happiness in their lifes. I go to Ayrshire cancer support for councilling and have done since last august, they have been fantastic I dont know where I would be without them, Martin could also get councilling from them, but he refuses to go and keeps saying he doesnt need it, being totally honest I dont really know if it would, nothing could really take the fear away from them, what he does get is reflexology from them and loved this, Martins paranoia and emotions have been everywhere since coming off the dex, he doesnt know the prognosis, I have hid it from him to try and protect him, everyone I speak to about it have mixed feelings about it. take care. xx
Christie, we dont have waitrose up here in scotland, we shall have to have a look else where, maybe holland and barrett?? take care. xxx
Laura, Martins hair came out too, around wk 4 of rt, but thankfully it back now and been cut on several occasions, although not as thick as before and very very thin around the scar area. Also Martin doesnt know prognosis as you will read above. God your hands are now full with the baby crawling you will need eyes on the back of your head. take care. xxx
Hi to all my old friends and to the many new recruits on this thread !
Well life has been full of downs recently and not many ups Im afraid my wonderful 60 year old father has been in Hospital three times in as many months!!came out wednesday after pneumonia!! allresults of chemotherapy killing the healthy white cells as well as the malignant ones!! Hes deterirating by the day,in immense pain in his houlder,and back hospital gave morphine twice but didnt work,Spoke to oncologist today as he was due for review(missed last three appointments due to such ill health) Limited mobility can just make it from the riser chair(fabulous invention) to stair lift with use of frame.cant clean himself,this bloody disease eats away at his dignity and pride everyday !!! House looks like an advert from disability aids,and he hates it!!crying everyday at how his life is about existing only and not living! This is the cruellest part of this illness watching the ones you love slowly daily ebbing away.He hasnt been able to taste food for the past 3months like the mouth full of ulcers and thrush that never gets any better. Sorry this is such a depressing post but Im angry and frustrated that when he was diagnosed in Oct 08 he had 2 months(surgery,chemo and radiotherapy)then a month before the begining of this decline.
I hope you are all ok and coping as best you can!! Gayle-sorry to hear about Martyn,hope he can bounce back! joan,carrie,emma,dianne,CH,lesley and everyone else Im sure ive missed out loads soory Im exausted love and hope for the future to you all.A peaceful night to all of those fighting the fight Debbie xxxx
Gayle - Thanks for asking, we're doing OK (touchwood) - thinking of you and sending lots of love- this mood thing- fear, anxiety, depression - is awful - I think it's so hard controlling our own state of mind and our own tears at times, that when the one we love starts to become upset, it opens the floodgates - I'm a mistress of self-control most of the time and thankfully David's a fairly steady person but the steroid thing is looming a bit here too - we've got down to 4mg - hurrah! - BUT he's not feeling so good because of it and so is a bit quiet and depressed - and i know we've got to get lower on the dose still
Just keep holding on to the thought that it will get better as Martin's body adjusts - keep your chin up and get some Aloe Vera juice down you both - it's such a tonic - David's been on it a while and I've finally started myself and definitely feel the benefit - tiredness is horrible when you're trying to be strong - this keeping the prognosis under your hat is a bugger too - I feel weird as we come up to each month but know that timescales mean nothing to the individual - David never wanted to know and I wonder what he's thinking but it's something we NEVER discuss - ho hum -
Love to everyone - Lesley -hope things are OK with Dad - Debbie, I sent you a message -hope you're not getting too low
Lorraine, my thoughts are with you and your family, at this sad awful time for you, you are all in my prayers, (((((((bighugs))))) here for you anytime night or day, you mum will be so proud of you hun as she watches over you. xxxx
Debbie, nice to hear from you, so sorry to hear that your dad hasnt been too well, as you say this illness is so horrible, its not nice at all seeing all our loved ones go through all those nasty horrible symtoms, (((((bighugs))))), stay with us and you will get lots of support here. xxxx
Joan, so nice to hear from you, as usual your posts are so meaningful and lovely, I am glad things are not too bad for you and David at the moment, as you say weeks and months pass so quickly, aloe vera juice is something that we use. Glad Davids dex is reducing Martin is now completely off it and its been difficult, thankfully he is now getting back to normal, although his legs and knees really hurt, any ideas how to help this??
Love to everyone else, thinking of you one and all, we have had a lovely day today in the sunny weather, today Scotland is hotter than Spain long may it continue!!! Lorraine my dear friend since I got your text I have never stopped thinking of you, lots of love hun. xxx
Just to let you all know my lovely Mum passed away at 4.30 pm this afternoon sorry I have not posted before now been with Dad and the family, I nipped home for 10 mins and just as I was back in Mum's bedroom Dad said she has opened her eyes as he was slipping her wedding ring on her finger it had to be taken off and as we knew the end was near he wanted it back on and after that her breathing became shallower and I was at one side of her and Dad an the other and we told her just to go she had suffered enough she was soaking with my tears.
I will never forget you my angel, you were the best Mum ever and I want you to sleep in heavenly peace now that your suffering is over, will miss you every second of every day.
Lorraine xx
Martyn I can only apologise for you finding out how you did, I texted Gayle and many others from my mobile and this is the first of me getting on pc, I am and always will be part of this thread even though I have reached the final destination on the train, your fellow passenger Jane has been in touch with me too, thank you hun again for finding me 2 years ago today infact!!
Dear Lorraine, My condolences to you at this sad chapter in your life. I find this particular thread very harrowing though I often pop by to read how you all are coping, I am so sorry you have reached this particular point and really am touched by your whole experience. My thoughts and prayers are with you and your family. Charles.
Dear Lorraine, I'm so sorry to hear your news. You have been more than just a daughter to your mum. I am so glad that she is now at peace and free from the horrible suffering that this horrible disease produces. Take care of yourself and your dad. Sally E
Just popped on for a quick minute to say hello (the four of us are floored by some horrible sickness bug) and I have just read of Lorraine's sad news.
Lorraine - Im so saddened to read of your mum's passing. You have been one amazing daughter over the last 2 years and you mustve made your mum's illness so much easier to bear with all your love and neverending help. Your wee angel is at peace now with no more suffering and I hope there is some comfort to be had from that - Im sure she'll always be with you. Sending you, your dad and Scott much love and strength for the coming days.
Love to all, Will post again later...really upset at Lorraine's news. This illness is cruel beyond words.
