Glioblastoma Why Why Why <br/>

Apologies for butting in. Gayle, I also suffer from plantar fasciitis and have had to have my foot strapped up with surgical tape by my podiatrist, which combined with some surgical insoles, supports my foot. Hope it clears up soon for your husband.

Leah

Hi everyone

Lorraine ((((((bighugs)))))), thinking of you. xxxxx

Lesley, sorry to hear that your dad is in the hospital again, he has had such a rough time of late, lets hope and pray that its an infection, love you the kids and the whole family. xxxx

Leah and Sallye, thanks for the info re plantar fasciitis, I had know idea it was so painfull the gp did tell us about the wedges, we will get some and also to wear trainers as they have better support than any other shoe. xxx

Sallye and Christie, enjoy Gladstonbury, hopefully you 2 shall meet. xxx

love to everyone else, must dash running late been out all morning and have to pick Martine up at 1pm as the school gets out early today.

love Gayle xxx

Hi everyone

I’ve not posted recently, but I’ve been reading your posts and I thought it was about time I caught up with you all. Although my situation is different now I’m not quite ready to leave you all yet. Make sure you have a drink and something to eat as this has been written over a week and I’ve gone a bit over the top!

Gayle – I love the thought of Martin singing the night away. B always loved karaoke. But sorry to hear that as I read on Martin’s not feeling quite so good. I hope it is caused by him coming off the dex. Hope you’re still sleeping a little better and are not so worried. It must have been hard when Martin was upset on Father’s Day. In the last card that B was able to write for me (on Valentines Day) he wrote that I deserved better. It makes me cry even now to think that he thought that. Martine Top of the Year, that is fantastic. You should all be so proud. Could you tell her “well done” from me too? Sickness and diarrhoea and a poorly foot for Martin too now. Poor thing, he’s really going through it at the moment. Hope you get to enjoy the summer break and the time at your caravan. Is it far away from where you live? Hope to hear from you soon.

Dianne J – has Hannah finished her GCSEs now. I think the Year 11s at the school I work at had their last exam today (Tuesday or Wednesday). Wow! Hannah the film star. I wonder what her friends will make of things when they see the report. I shall be glued to the TV on 19^th July. We had a local support group which was held once a month. We weren’t sure whether to go along, and as things happened so quickly for us we never did go along. I think it may have helped me, but having found this thread I don’t feel as though I’ve missed out by not going. We had the Prom for the school I work at last night. It was a lovely evening and I think the students had a fantastic time. It was good that Hannah was able to go to hers.

Lesley – Have all your home improvements been finished? You must be exhausted now you’re back at work, having to look after the little ones and watch over your mum and dad. It must be so upsetting for your mum to see your dad crying, sorry to hear he’s back in hospital. You’re all really going through it at the moment, you must feel washed out. I’m sure Joe won’t mind the low key birthday celebrations. I feel really bad as through the time B was ill my oldest had his 21^st and my youngest his 18^th (and my mum was 80) and we weren’t able to do much for any of them. I didn’t realise your profile picture was your mum and dad, it’s a lovely photo. Is that you sitting with them?

Rona – I’m glad you’re back with your dad again and looking at moving back to England (I hope I’ve got that right?). It was good news with your dad’s scan. It’s nice to have good news. How has your dad got on with his day at the hospice?

Michael – hope your dad’s radio and chemotherapy is going well and he’s not suffering too many side effects. Sorry to hear about the clot on his leg. Enjoy your trip to Great Yarmouth. It looks as though you’re going to have good weather.

Diane – hope things are settling down a little for you now. There seems to be so much to do. So much paperwork. How’s work, did you go straight back in full time? I’ve just worked my first full week and it wasn’t too bad.

Eileen – thinking of you and hoping things are as ok as they can be with you.

Susan – glad to hear you were able to enjoy your trip to Scotland. Times like that will be the things you remember in the future. Hope things aren’t too bad with your dad. Having to deal with either of the situations is a lot, but for you to have to watch out for both of them is an awful lot to cope with. I hope you’re able to have some ‘me time’.

Joan – glad things are as ok as they can be with you. I think you should write a book about alternative medication, you have such a great knowledge about so many remedies. You could even illustrate the book too.

Lorraine – I suspect that things have been put on hold for the time being, but how’s the dining room coming along? I’m hoping to start some major home improvements before the end of the year as I like where my house is and I would rather stay here than move to a house in another part of town. I hope all your preparation are coming along ok, I’ll be thinking of you all next week. Sending you a big hug.

Debbie – good to hear from you, but sorry that your news is not so good. Sending you a big hug too.

Sallye – good to hear that your mum seems to be picking up and responding to her treatment. Her attitude seems to be the same as B’s was, that he was going to beat the tumour. I’m not sure if he realised how serious it was, but that was his way of dealing with it. Hope you enjoyed Glastonbury and managed to meet up with Christie.

Grantsnana – Did you go to see the oncologist? If so how did the visit go? It must be hard for your hubby having the mini strokes. Thinking of you both. Hopefully, this summer I’ll catch up with my friend who comes over every year from California. She has just retired (she was a school teacher) and it will be strange for her to not be going back to start a new school year. I’ve not seen her since B was diagnosed, so it will be an emotional meeting.

Laura – hope Jamie’s treatment is going ok and that his work aren’t messing you around now. You really could do without that on top of everything else. I wonder how his bosses would be if they were in your position? Like you, when B was first diagnosed, I found it hard to do the planning for the future thing. But as time passed and I knew things didn’t look good, I went along with B’s plans to humour him. It was so hard to do sometimes, but I felt I had to do it to give him hope. Hope Jamie’s enjoying Wimbledon. I’ve just given in to my boys and signed up for Sky. They are both mad on cricket and wanted me to get it so they could watch the Ashes.

Christie – hope you had a fab time at Glastonbury. I’ve been totally out of touch and not seen who’s performing. Who did you get to see?

Becca – glad you enjoyed your week away. The piece about your dad from the paper was lovely. You have every right to feel very proud of him, things like that can never be taken away. It’s just a shame that words like that can’t be written while they are still around to see them. I had such lovely cards and letters after B died, I wish he could have seen them. Over a month on, I can’t believe it, time passes to quickly, doesn’t it. It doesn’t get easier, just different.

Emma – hope work’s going ok for you and that you and the girls are as well as you can be. I’m still dealing with loads of paperwork. And it was only because a friend of a work colleague died recently that I found out I was entitled to a bereavement grant and possibly regular payments. No one had mentioned this before. Still feeling incomplete, something’s missing. It’s hard, but we have to keep going don’t we.

Jay – lovely to hear from you. I didn’t realise you were going to Florida for so long. It was very brave of you, but we have to do those things if we get a chance don’t we? I wanted to take my boys somewhere. They don’t like sightseeing, so Paris, my favourite was out! I thought of New York but I didn’t think we would want to see the same things as I would (Grand Central Station, the Public Library – an amazing building – or the Chrysler building), so between us we decided that Las Vegas would be the place to go, so we’re off later in the year. I can’t wait. It looks totally over the top. I treated myself to a convertible too, mine’s a Renault Megane (I like the red leather interior!), what did you buy? Enjoy the summer and hope the new job goes well. I’ll be in touch soon on Hotmail.

Jennifer – Welcome, but sorry you’ve had to join us. B became very childlike too. He hated it when I left the room and would constantly call out for me. He also had to be told how to do things, like how to eat his food (I would have to feed him at times), finish his drink, it was so hard to see. Hope your dad’s more comfortable with his catheter now. B used to have problems with his when the carers hoisted him, and at times it would get kinks in it too which meant that the urine wouldn’t flow through. After a few weeks I became an expert at emptying it and making sure it was working properly.

Martin – not sure if I’ve said hello to you yet as it’s a while since I’ve posted, but if I haven’t, “hello”. Your post about the garlic made me chuckle. Do you add it to your breakfast cereal too?!! (Just joking) My husband B read somewhere that dark chocolate (over 70% cocoa) could help. I am still working my way through the chocolate that people bought for him. You must have had an interesting couple of months going through A levels. Joe did well with his GCSEs and I hope you get good news in the middle of August too. You and Becky must be so proud of him. I’m so pleased my two are a little older and we didn’t have to go through any of that while B was ill.

Julie – what an awful decision to have to make re the debulk and the wafers, but I can understand your reasons for not going ahead. Fingers crossed for the trial. Thinking of you both.

Debbie – good to hear from you again, but sorry to hear your dad’s not so good. It sounds like B was. We hired a rise/recline chair for him which was so good for him, except that he never could figure out the controls.

Izzy – still thinking of you.

Hello to anyone else I haven’t mentioned.

Well, I’ve finally caught up with all of your posts. I’ve just had a chocolate break as mentioning it to Martin made me hungry. Only three more bars, and half a box to go. Life can be tough sometimes!

Although it’s lovely weather outside I’m trying to tidy up today. As I’m back at work full time now and been quite busy in the evenings things have got a little out of control.

I’m going to shut up now, as I’m sure you’ve all had enough of me. So until we speak again, I’ll be thinking of you all. Sending you hugs.

Carrie x