My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lorraine - thinking of you so much right now pal, hope your mum was comfortable last night. Did you manage a couple of hours respite with your friend and wee niece? Youve been amazing throughout this...youve been there every step of the way with you beloved mum - love to you all today xx
Gayle - Is Martins paranoia subsiding....do hope he's improving? Enjoy the family do and hope you stick to the car plan! x
Becca - Cant beleive its been a month my friend. Love to you and your mum (enjoy your hols next week) x
Jennifer - Two birthdays in the one week? wow, that'll keep you busy for sure - My wee Joe is one next week and thats stressing me out alone! Ive heard of lots of people who's treatment still affects them months later so maybe thats whats happening to your dad? Not nice to see the deterioration, confusion etc...very hard to see. take care x
Martin (can we call you count Drac? - kidding!) - very interesting re the garlic, - one of our ladies on here (Joan) is brilliant on alternative supplements etc...wonder if thats one she uses? Joan...over to you!! Hope Becky is ok. x
Emma - so good of you to pop on to offer help, still being amazing.....love to you and the girls x Carrie - Not sure if you still read but hope your managing and still think of you and how your getting on too x
Debbie and Julie - hope you ladies are ok too - its been a wee while. xx
Christy - Have you got plans for the weekend - hope your keeping ok - you still amaze me with your positivity and strength - just brilliant x
Love to everyone out there - wishing you all as peaceful a weekend as possible xx
Well my dad has been put up to 10mgs of steroids and has improved slightly...I managed to get him out for a run in the car yesterday and into a local brewers fayre for lunch and to watch the kids play...it was a struggle to get in and he was forgetting how to use his fork and what his spoon was for but we managed nontheless so I was chuffed.
Jennifer, the effects of the treatment do go on for months afterwards, causing tiredness, mood swings, in our case extreme paranoia, on a positive note the treatment carries on fighting against the tumour for months after it stops. xxx
Martin, we are trying the garlic, everything and anything is worth a go if it helps our loved ones, thanks for the information anything else you find please share it with us. xxx
Lesley, nice to hear that you managed to get your dad out yesterday for a meal, bet he enjoyed watching the kids in the play area and getting out the house for a while and also bet it cheered you up seeing it. Paranoia, still there had a big eposide today, will tell you another time, as time pushing on need to get ready for the caravan, after the whole eposide Martin crying and saying how sorry he is he just cant help feeling this way, bloody evil illness. xxx
Lorraine, thinking of you and your family, hope your mum is comfortable, and that you managed to enjoy your friends company last night ((((((bighugs)))))) xxx
Emma, fantastic you are still here for us all, speak to you over the weekend hun, promise it wont be too late love and hugs to you and the girls. xxxx
Becca, enjoy your holidays have fun, keep Martin blind folded LOL xxx
Carrie, thinking of you hope your ok and getting plenty of good weather to enjoy that new car of yours. xxx
Julie, Jay, Diane, Dianne, Christie, Eileen, Rona, Joan and everyone else big hugs to you all, have as nice a weekend as possible, we are off to our caravan and have a family party on saturday night also, keep well, will catch up on monday with you all.
helooooooo every one, hope everyone is as good as they can be at the moment, sorry to read some of the sad posts hope things are looking up now! I'm going to give the garlic ago too. Mum is actually growing some organic wild garlic so ill go pick it all later lol. Also ,I havnt looked into this myself, but my mum's friend is always buying me 'goji berry' juice which is also apparently cancer fighting - Shes also bought me a goji berry plant so i can grow my own lol bless her. Yaaay down to only 1mg of the Dex today, hopefully will be off it soon. Things are pretty good in general though, Me and Mum have had a few emotional nights - i hope she's ok :( and I'm off to Glastonbury on thursday which im verrrry excited about take care everyone thinking of you all xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Hi Christie Glad to see you back on site- what does the Gogi berry taste like? we have tried all sorts of berry juices on Hannah and she doesn't like any of it. I think we would be abnormal if we didn't have emotional nights the love for a child is great and we hate seeing our children go through what NO ONE should ever suffer. Love DianneJxxx
hiya diane the goji berry juice is loooooovely. i know - it must be so hard to watch your loved ones go through it and you cant do anything yourself. take care everyone xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Hello, so so sorry not posted for ages, still trying to get my head round everything, Stehen is having another scan on Wednesday, they think the tumour is still growing because now he has lost most of his movement down his right hand side and is so much weaker, we decided against another debulk and Glaidel Wafers as Stephens new consultant told us there would be a 90% chance it would leave him paralised as the tumour is sitting on his motor strip, also they needed to give the chemo a bit more time to see if it would start working but with how is has gone that is not looking likely, the next step is a trial they are running.
Gayle, sounds like you had a brill time on Saturday night but sounds like you are suffering today, did you have a wee bit much to drink????? xxxx
Emma, hope you and girls are ok and what is it like being back at work hun????? xxxxxxx
Lesley how are you and how is your dad, I have been reading the posts each day. I love your profile pic on Face am I right in saying the pic is of you, your mum and dad, the one you got done for his birthday????? xxxxx
Dianne J How is your daughter, it is so heartbreaking somebody so young, I hope you are all ok ???????
Christie have a fantastic time at Glastonbury, I wish I was coming with you lol xxxxxx
Lorraine sorry to hear your mum isnt doing well, I hope you are managing to cope, love to you all xxxxx
Martin I dont think we have spoken before so hello, it is just a shame that we all meet in such dire circumstances, how is your wife at the moment ???? thank you for the info on Garlic I am starting Stephen on it this week, anything is really worth a try xxxx
Becca hope you and your family are all ok xxxxx
Sorry if I missed anyone but love to you all Julie xxxxxx
Christie we will need to try the goji berry juice, it sounds lovely where do you get it, hope your well. xx
Dianne, hope Hannah is well. xxx
Lorraine, (((((((((bighugs))))))))) to you and the family thinking of you. xxx
Becca, have a nice holiday tomorrow you deserve it. xxx
Diane, hope you and the kids are good. xxx
Julie, hope Stephen is feeling a little better, saturday night was really good family party, a little too much to drink tho, not to bad tho. xxx
Lesley, hope your dad is continueing to get better, taxi on saturday night for me, was going to drive but you know me. xxx
Sandy, oops sorry Emma, love to you and the girls. xxxx
Carrie, how are you not heard from you in a long time xxxx
Joan, you too been worried about you. xxx
Rona, Laura, Eileen and everyone else sending you loads of love. xxxx
Well we had a nice weekend at a family party, although Martin broke down a few times telling me how scared he is now, this is where all the paranoia is coming from fear, it breaks my heart knowing how scared he really is, he had a lovely fathers day tho, even cried when he got his gifts saying he doesnt deserve them because of the way he has been carrying on, so bloody heartbreaking, I reasured him how much he does deserve them.
Gayle it sounds as if your having a tough time but it also sounds as if your managing the situation admirably- as usual, its so hard isn't it? The fear must be terrible to deal with, do the Macmillan nurses offer counselling? that may help so that Martin can express his fears openly as I am sure there is always a lot of protecting of one another. I am going to get H to try the juice too- although her taste buds have changed and she has disliked everything we've tried so far- Manuka honey, green tea, cranberry juice etc.MRI a week tomorrow so getting worked up for that. H still off chemo due to low platelet count -positive side she has more energy, makes you realise what the chemo does- she managed to stay until the end of a Ball we attended on saturday- she danced the night away- any one looking wouldnt think there was anything wrong with her -yesterday she didnt get dressed took the day to recover. Love to everyone DianneJ
Hi all. Jamie now on week 4 of the rt and chemo. All going well so far just a little bit tired and starting to lose bits of hair so he has shaved it all off! He is enjoying the start of wimbledon as he's a huge fan but previously due to work was never here to watch so i doubt il hear a peep out of him whilst its on. Connor started crawling last weekend so constantly running after him, trying to keep him away from the fire place etc.
Gayle I think we forget how scary it must be for our loved ones, just feels sometimes that we are the ones scared of whats happening and going to happen to them. Gladly Jamie doesnt know or want to know any info, he prob couldnt even tell you the type of tumour he has. Which i think is a good thing as you can really get freaked out by all the stuff on the internet.
