My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lorraine thinking of you at this time, Huge hugs. Hope your mum is comfortable. xxx
Gayle hope Martin and you are doing ok.
Christie how are things going with you?
All ok here but Dad is always even more tired (if that's possible!) when he is taking the temodal. It's round 3 for him right now. At least we've managed to take him out a few times but he still spends so much time in bed and seems to find it hard to be positive at all. I can understand why but at the same time don't want him to waste the days he has by being in bed and worrying! Next week he is starting at the day unit at the hospice which sounds great and might be just what he needs. Incidentaly if anyone wants to donate for the run I am doing to raise money for dorothy house hospice the website is www.justgiving.com/ronadoff
Mum just the same very comfortable but at times she has a little struggle with her breath, its just so so awful to watch someone you love go thru this, I have asked Dad if I could go back home and stay with them even though I am only along the road I just want to be with her I knew I did not even need to ask even though I have my own house the house I grew up in with my Mum and Dad will always be my home so folks as from tonite I will be with them, the mac nurse has informed Dad what to do if anything happens thru the nite its all get so very scary now, Dad and I have been talking about the funeral and how life is gonna be without her a huge change for all of us as for the last two years we have lived, slept and ate BT world, I have actually came back home as my friend is coming to see me, I go there every Thursday but she has a little girl of 2 my wee baby niece Aimee and there is no way in the world I want Aimee to see her Auntie Lane (bless her she can't say Lorraine properly) so Leah is coming to mine, Scott, his Mum, Dad and my big cousin are all with Mum so I felt it was ok to come home for a shower, chat to my pal and get some stuff together PJ's etc for taking to M & D's for later some folk might think I should be with Mum 24/7 at this time I have been with her the last 2 hours singing to her and talking lots about the good times but folks I have told her everything I need to when she was well, I have no regrets whatsoever she knows how much I love her for that I am sure and I will be back along later tonite, Dad and Scott just thought it would do me good to get some time with my friend.
I know the last two years have been so hard but I would do it all again if I had to as she was my Mum and I was determined to be with her on her long journey and now as its nearly at its final destination I want to be with her until the very end.
Hi Rona, try not too worry too much about your dad, when Martin was on the 6 months tmz, the first 4 months he slept round the clock hardly ever got out of bed, he worried the hell out of me, like you I was thinking he was sleeping his life away, and he never went out anywhere at all, he liked me to be with him too, so for 6 months the only time I went out was to take Martine to school, or to do some shopping even did most of that on-line, now we have a fairly active life we get out and about most days and every saturday night is cabaret time then karaoke, love to you all. xxx
Lorraine, you are truelly a special person, you will never look back and have any regrets you have been the perfect daughter to your dear mum and dad and Scott is a lucky guy to have you too, try and have a nice night with your friend.
Lorraine it must be so hard but it sounds as if you know that you have no regrets and that it is lovely to hear take care of yourself too Love DianneJ Gayle Glad hat Martin is eating better- raw garlic yuk but if it helps - I will mention it to H- have just taken her to her school prom- I got emotional, feel sad- seeing all the healthy vibrant children when H is struggling bothers me more than her. Love to everyone else DianneXX
What a difficult one for you tonight, must have been very emotional for you, hope H has a great time she deserves it very much. xxx Raw garlic yuck thats what I though to but if it helps.
Definitely no kissing then! may be I should have insisted H have some raw garlic before the prom! I did tell her shes not allowed to kiss anyone when shes on chemotherapy! he he. Yes you'd eat, try or do anything wouldn't you although H says shed rather we chop her head off than drink green tea- doesn't like manuka honey either. Love DianneJx
Evening all So sorry to find new people on here - why i cant resist popping on I'll never know - guess ur all still in my mind.
I am here for u all - any questions that u want answered - i will answer honestly even if u dont really want to hear the truth.
Without u all in the last year or more i wouldnt of coped - but i have and i am - so for me to put something back is so important. Gayle u know me far too well and u know I am always there for you - and everyone else
you are all going through such a hard rollercoaster - always here
First chance I've had to get on here, got both babies birthdays this week one now 4yrs and other 1yr on saturday and what with scan yesterday been busy busy bee!
Well, went for scan. Result was that the scan looked much the same as the last one in April so the only explanation for why dad has gone so downhill is the body still reacting the the treament he had (though it stopped in April) plus the extent of the swelling. Kind of came away not knowing a whole lot really, I suppose they don't know which way things will go, hope he does start to pick up.
It was difficult being there, he has a catheter in and keeps getting very agitated with it had to call district nurse out. He very emotional but next minute grumpy, also really confused as to where he is/what he can see, bit strange at times. Very hard to see him like it even harder to leave mum and have to come home.........
I've not stopped kissing Becky since we found the garlic studies! However, I've taken to eating the garlic as well.
A friend of ours sent us a cutting from one of the broadsheet newspapers. It quoted a study in USA which said that Garlic could be active against GBM. We tracked down the study "http://www.musc.edu/pr/garlic.htm" , but if you simply go on to google and type in "garlic and brain tumours", or to "www.telegraph.co.uk" and type "garlic and brain tumours" into their search box you'll find plenty of entries.
We sent an email to Dr Swapan Ray at the university of South Carolina and fair play to him he sent a nice little reply. "Although this can't give any guaranteed benefit.......etc, etc" . He also wished us luck with Becky's treatment. We were advised to peel and dice, or use a crusher 15 minutes before adding it to the food you were normally about to serve. Amazingly, if you don't cook it, it does not make your breath smell. We've never had a problem.
Our consistent, everyday approach had dropped off a bit, but since Becky became ill recently we have stocked up again on the Garlic heads. The bother with it is remembering to do it 15 minutes before you want to eat. That 15 minutes is important to allow the enzymes to activate. Also, It sounds like you should take it every day.
Added benefit is protection from local vampires.
Disclaimer: I do not have shares in any garlic producing companies or supermarkets. But, I do care deeply about anyone on this site and if this helps, even by just making you laugh, it will have been worth posting this.
