My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Dot - would love to know how Rodger & you got on today - the Marsden is an amazing place & Dr Saran is a fantastic consultant - please keep us posted xxx
Becca, your doing a fantastic job as always love, you should all be proud of yourselves as Im sure your dad will be. Your new mantra will help you along the way. 400 is a huge amount of people...testiment to a great man. Big hugs to you and your family, thinking of you all lots. xx
Lorraine - I liked your "quick" post...made me smile! Your also going through such a tough time just now. Good that you let your work know how things really are and that theyre being supportive. lotsa love pal, speak soon. xx
Ravi - so sorry to hear your news, much love to you. xx
Emma - good to see a post from you...hope your keeping as well as can be and the girls are ok? Im sure Gayle managed to keep things off your mind for a few hours! The boys done so well didnt they, fantastic job all round. xx
DIane - thinking of you and your family today. xx
Gayle - Hope your all okay...you two make me smile when I think of you hogging the karaoke machine!...keep it up xx
Carrie - you are just amazing...how you remember everyone I'll never know! Its lovely to hear from you though and its nice to hear how your getting on. much love xx
Joan - I loved your post about alternative therapies.....your so knowledgeable (i cant even spell it!) if I'd given my dad all of those from the start maybe it would have helped his immune system along the way and stopped him getting hit with every problem going. who knows? hope your both doing ok. xx
Rona - my boy just started crawling on saturday...i cant take my eyes off him for a second..i can tell he's going to be a wee rogue! xx
Eileen - i know youve not posted for a long time so I hope things are ok and you get a chance to read now and then. xxx
much Love to everyone else out there. xx
Havent been posting much lately but have been trying to read and keep up with you all ..there seems to be a lot of sadness and sometimes you feel like youve hit a brick wall and dont know what to do next. Things here are much the same...dad now on 10mgs dex and is basically sitting in the same seat day in day out - he's had chronic bachache (which he's had all his life) but he's in a lot of pain with it..along with everything else. He's at a stage where he really cant be bothered with speaking to anyone on the phone and doesnt want anyone visiting anymore..apart from his family. He's been wanting a large glass of wine the last few nights, so who am I to deprive him eh?.......
Becca, you have done an amazing job, your dad will be so proud, it sounds like your dad was a really well liked man, love to you and your family. xxx
Diane, hope all went ok today thinking of you and the kids. xx
Lesley, sorry to hear your dad is not so good, there are so many ups and downs with this horrible illness, at least he is still having a wee glass of wine. Martin went through a phase of not wanting to go out or speak to anyone, now there is no holding him back. xxx
Lorraine, hope your mum is a little better and you Scott and your dad. xxx
Deepest sympathies to Ravi and family at the tragic loss of BJ. So sorry to hear the news xxx
Dear Diane and Becca - especial thoughts to you for tomorrow and Thursday - much love and best wishes to you and your families - it's a day of sadness for everyone that'll be there but know you'll be sharing happy memories of two wonderful men as well. Be thinking of you xxxx
Won't linger - tired and a liitle agitated tonight - MRI results day tomorrow - hmmmm. 'nuff said ......
Diane, my thoughts and prayers are with you and your family. We are on 5 days of double (300mg) of temodar and then off two weeks. I HATE THIS DISEASE!!
