My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Haven't posted for a while, but just wanted to say that I do check the postings daily and think and pray for all of US that are fighting this mean, ugly monster called cancer. We begin 300 mg of temodar today as our second round of the fight. This is for 5 days and then 2 weeks off. I'm so afraid of the side effects, but, then the first round was so uneventful perhaps this will be the same. Love and prayers to everyone and we ask for yours.
Nice to hear from you, try not to worry too much about the 5 days temodal, Martin pretty much sailed through it the only side effect he got was extreme fatigue, he slept for hours at time, but there was no sickness or any other side effects, not everyone gets the nasty ones, I will say a prayer that you are among the lucky ones.
Just a quickie to say hi as I am awaiting my in-laws coming to see us, they could not come last night as Scott Gran's took a turn at church and was admitted to hospital, she seems to be doing ok now though, she is 89 so they think just a sort of turn older folk can take, if its not one things is another it seems.
Becca and Diane - Thinking of you both lots at this time.
Gayle - Hope you enjoyed your time at the caravan, my hair do back to being the Lors mop again he he not long in lasting nice once I have to wash and try and do it, its not even as though its that long too, hope Martin doing fine and wee Martine too, chat soon x
Emma - Its always so lovely to hear from you, and I admire you so much hun when your still going through so much yourself your still there for others, hope maybe to meet you sometime when your in bonnie Scotland.
Lesley - How is your Dad doing love? will text you soon you know I am here anytime thanks for saying the same to me.
Susan - Hope Paul treated you to something nice for your birthday, yeah all the best folk have a May birthday, I checked FB to see when it was so I will say Happy Birthday to you then, Scott and I was at Derby last year, I loved the new shopping centre, we were at Alton Towers for few days and went to Derby for a day and Manchester and the Lakes etc just a little tour of the lovely UK, just like what you will be doing soon in my homeland, hope Paul doing ok, great to hear your Dad is home too a bit of good news always welcome on this thread.
Sally - I was so touched about that your little girl said, kids are so innocent bless them.
Grantsnana - Thinking of you at this time but my Mum sailed thru her treatment too wish I could actually go back to those days as she was so much fitter then.
Carrie - Hope work still going ok, your posts amaze me love how your always there for us and been thru so much yourself, hope to hear from you again soon.
Well folks so much for a Lesley quickie! the in-laws coming with my birthday gifts they did not come last week as I could not face them I was upset as it was and just could not put on a brave face so we have not had a chance to meet up as its been one thing after another, mum still much about the same so sad to see but I have to stay as strong as poss and I just have my moments when I am with Scott and not in front of her. hospital bed and hoist help but Mum so scared in hoist its a shame anyway folks my inlaws are here and no doubt the wine will be out soon but I will be niping back to say nite nite and give the mum I love with all my heart her goodnight kiss before bedtime.
well its 10 days to go till the start of my dads radio and chemo ... they are hoping whis will slow things down. The sooner it starts the better. Luckily he has not had any further seizures yet which is a godsend , his walking is becoming very poor and he is already sleeping in till 10.30am which for him is completely unheard of , whethers he is at work on hols or hungover he has always been an ealry riser bless him.
I know the treatment will make him worse to start with , i just hope and pray that once the radio is finished he has a decent amount of time where he is back to himself .
I hope everyone else is doing as well as they can . I just thought i would say hi again to all .
Everyone is so different the way they react to the treatment, my husband sailed throught the combined chemo/ rt, but after it finished he had extreme fatigue, including going through the 6 months hight dose temodal after it all finished, he returned to almost full health and 1 year on since diagnosis he is full of energy, the only problem he has now is short term memory loss but he has full mobility and has a pretty good quality life enjoys each and every day and loves his saturday night dancing and karaokes, good luck to your dad.
Love to everyone else thinking of you one and all.
special thoughts to Diane today and Becca at this difficult time for them. xxx
Lorraine to you also hope your mum is improving. xxx
Emma, my dear friend I know your going through a really hard time just now too thinking of you and the girls. xxxx
Dot, goodluck to you and Rodger today at the Marsden. xxx
Peter I'm glad to hear your dad hasn't had anymore seizures. Hope the treatment goes well for him. My Dad is just starting the 2nd lot of temodal (out of 6 months) and is extremely tired. Sleeps all day pretty much. Just be aware that it may take longer than just the radio finishing before things pick up again. I think the effects of the radio can last sometime.
Gayle how long was it before Martin got more energy? He seems to be doing so well now which is wonderful.
Dad now has a stick to help him walk and like I said is just starting round 2 of temodal. Hope he copes with the higher dose. I'll be there in 3 weeks and can't wait to see him.
On a happier note my little boy started crawling today! Life is about to get busier!!
Take care everyone. Thinking of you all. Big hugs xxx
Just had a sad telephone call from Ravi, for those of you who have been posting for a while you will remember Ravi and her husband BJ. BJ lost his fight to GBM on the 1st of may another lovely family lost their loved one, thinking of you Ravi and the kids. xxx
Like your dad, during the 6 month cycle of temodal Martin had extreme fatigue and he slept for most of the day and night, but towards the end of the treatment the energy levels picked up, 1 month after treatment finished its like there is nothing wrong with him, his energy levels are unbelievable it puts me to shame, the only thing is his memory levels and he chats constantley from 5am to midnight. I also put alot of it down the manuka honey, we now have manuka honey shower gel to LOL, when you come over bring your dad plenty, bet your really looking forward to it now.
Well its been a busy few days. Dad has come back to us, it was important for us to have him here with us. His funeral will be on Thursday in possibly the teeniest church ever. there will be two guards of honour, one from the Scottish Ambulance Service and one from the boys brigade and we are expecting a turnout of 400 or there abouts (again in the smallest church in scotland...wont bore you with small town politics but two of the biggest churches in our town closed their doors three years ago to make way for a grand new church...to this day they have argued about where it is to go...so c'est la vie) We also had to wrangle withthe funeral directors about various things but we have pretty much got our own way in everything. In all of this we have managed to keep a stiff upper lip and welcome people in to the house who wish to pay their respects. I will be glad to never have to make 40 cups of tea a day again but my dad was the perfect host and my new mantra is 'what would dad do'. Im not even close to dealing with what has happened just yet as planning funerals seems to be a mammoth task.
Would just like to take a moment to thank everyone for their kind words, hugs and prayers it has meant so much to me, even though i haven't responded to every text i just want you to know how much you all mean to me.
Diane, i do hope today went as well as it could for you and your family, P will have been so proud of you. Lots and lots of love and hugs xxxxxxxxx
Ravi - if you are reading this, my thoughts and prayers are with you and your family xxxx
Well a few more busy days ahead of me.... then what?
