My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Thank you very much for your help again, how do all you guys on here find out all these things i just dont know very much at all and i am so frightened to ask the consultant or doctors incase they think that i am wasting there time. What would i do without the help of all you guys.
Why is the treatment different on different people my husband was not offered gliadel wafers why was this the case but at the hospital i was talking too anther lady and her husband got it does that mean that he will live for longer?????
izzy, I think that the treatment varies simply because our loved ones vary. It's not an easy treatment and the age of the person, position of the tumour, general heath of the person can all affect what treatment they can stand. But also what the doctor is familiar with so if  you want an option explored, keep at it. Ask and ask again is my advice. Â
Here is link to Cancer Research UK's page about the wafers:http://www.cancerhelp.org.uk/help/default.asp?page=15873
I'm not very familiar with them and haven't researched them but i think at least one person on the We Talk Brain Tumours thread has used them? I'm sure people with much more knowledge about them than me will be able to give you some better information - you might like to repost your thread there.
One really important thing though, please don't ever be frighted to ask doctors or consultants anything
In fact, decide what you both want to know - some people want to know everything, some prefer not to, it's just personal choice. Then write a list of everything that you want to know before you go and just say
"I have a few questions".
They should be able to answer to your satisfaction and if they cant ask them again. I was quiet in appointments at first but now I am comparable to Hyacinth Bucket with my list of questions prepared earlier.
Glad that your dad got out of the hospital and is well enogh to continue on the RT, hope that he sails through the rest of his treatment xx
CH good news for you about B good to hear something positive take care over there in Holland xx
Hi Izzy hope all is well with you and your husband good to see you getting some good advice, and like CH said anything you want to know dont be afraid to ask the consultant take care xx
hi i asked about the gliadel wafers for michael -but was told that to get them -i think it was-90% of the tumor had to be removable-or something like that. good luck on friday gail! michael wanting to come home from hospice as doing so well!bit worried about stairs and how he will cope with kids-but he belongs at home! i'm sure the hospice will organise things-care pacages etc-anyone here know muich about this area? all my love and positive thoughts lesley kb xxx
Thank you all so much for all your kind help, i shall have to start and ask the consultant more things i am a bit frightened to ask because i am scared of the answers they might give me and also i am scared that my questions sound so silly thAts why all of you nice people are such great help to me thank you all so much for all your help and advice if there is anything i can do too help any of you just let me know, hope your loved ones are all doing fine and you guys too.
It must be so hard for you not having Michael home with you and the kids, i am quite sure that the hospice will put all the necessary things in place for him to come home to you. I have been going to Ayrshire cancer support since august, and they have been absolutely fabulous the support councilling and hypnotherapy, tomorrow i am going to get reflexology, you should give them a call they are very supportive, they gave me a number to call about getting bath bars etc fitted and told me to do it now as it can take some time to organise i will pass this number on to you if you need it take care. xx
Izzy glad that you are gettinng the help that you need, dont be afraid to ask the consultant anything they have heard these questions over and over before, i know the answere might not be what we want to hear take care xx
Thanks for your kind thoughts i am really dreading tomorrow but it has to ne done, i fear the 18th november when we get the results alot more. Did you watch scotland today this evening i just caught the tail end of it and it was something about the southern general having made a break through on high grade gliomas, i have tried their website but can see anything.??? Take care
Thanks for your kind thoughts i am really dreading tomorrow but it has to ne done, i fear the 18th november when we get the results alot more. Did you watch scotland today this evening i just caught the tail end of it and it was something about the southern general having made a break through on high grade gliomas, i have tried their website but can see anything.??? Take care
Thanks for your kind thoughts i am really dreading tomorrow but it has to ne done, i fear the 18th november when we get the results alot more. Did you watch scotland today this evening i just caught the tail end of it and it was something about the southern general having made a break through on high grade gliomas, i have tried their website but can see anything.??? Take care
