My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
hi gayle we see prof rampling too at beatson.michael until aug attended south gen-but since surgery now not an option care now at beatson.surgery done in 1999 by mr dunn.have you met mary fraser -neuro oncology nurse specislist based at the southern?she has been amazing.hope martins scan is good. how are you coping.? lesley xx
Yeah we have met Mary she is lovely very helpful, i have called her a few times for some information and help she has always been great with us, mr Dunn was the surgeon that done Martins debaulk in june as well. Have you met Mairi the neuro oncology nurse specialist based at the beatson she is very nice too. Hope you and your hubby and kids are as well as can be expected.
hi gayle and Lesley we are at beatson too under prof R and know all these people - where would we be without them? We will be the Beatson clinic on MOnday 10th Nov ie a week tomorrow if you are going to be there would be nice to say hello - send me a pm and I'll tell you how to recognise me!
hi diane we wont be at beatson till 25th november. gayle ,yes met mairi too-for the 1st time in september.both her and mary have kept me sane over the last few months.mary especially. lesley xx
Hi Diane how is your hubby doing after his op hope he is doing okay you and the kids too. We go to the southern general this friday 7th nov for martins first scan since all the treatment started, i am really scared and worried about it, he has been very sleepy the last few weeks, also if he is out in the cold his head gets a bit so but i hope and pray everything is okay, we dont go back to the beatson until tuesday 18th november for next round of temodal, hope that you get on okay on monday.
love gayle xx
hi Lesley as you say Mary and Mairi are great, hope you and your family are doing well.
If I dont manage back on, good luck for Friday, it must be absolutley nerve wracking so fingers crossed its good news.
My dad finished RT next tuesday, was hospitilised with pneumonia last week but back out and doing ok now, thankfully he was able to carry on with the RT.
Sorry i havent been in touch for sometime my hubby is in the middle of radiotherapy and there is so much too do, he is so tired and gets angry all the time is this what always happens, he is just not lke himself at all, when does he start to get better?
How have you all been and your loved ones too?
Congratulations to Gayle & Martin on your recent wedding xx
How are you crazy horse Diane and everybody else it would be nice too hear from you all again
Hi izzy, I've heard of Gliadel Wafers. (Quoting from this website: Â http://www.gliadel.com/)
It is a treatment for newly diagnosed high-grade malignant gliomas as an adjunct to surgery and radiation and recurrent glioblastoma multiforme as an adjunct to surgery. GLIADEL is a biopolymer wafer designed to deliver carmustine (a chemotherapy drug) directly into the surgical cavity created when a brain tumor is resected. GLIADEL slowly dissolves and delivers carmustine.
