My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Dear Carrie, so so sorry to hear your very sad news, my heart genuinly goes out to you, sending you lots of love and hugs. Take care sweetheart xxxxxxxxxxxxxxxx
hello all. hoppimg that Carrie is managing,/coping - its hard & seems unreal.
Julie when K was on Dex -high dose of 10 or 12 mg, when they tried decreasing it K started its again, so although I don/t want to tell you what to do, suggest you keep him if agreeable too you both, a dosage that avoids the fits.
Carrie what can I say, except my heart goes out to you and the family. I didn't realise B was that bad and can only echo Gayle in saying that at least he is no longer suffering. Love and hugs xxx
Emma, just text me and said Mathews breathing not good, they thought they had lost him earlier but he is still here, thankfully, Carrie, Emma passes love and hugs on to you and is thinking of you the same as us.
Thank you so much for that information, Stephen is now down to 5mg a day, he was originally on 16, so thats probably what it is, isnt it just weird though, there is no pattern to it at all but what I find is when he has had one it leaves him exhausted, he has had 3 today and he is now in bed. Hope Rob is feeling a little better tonight. xxxxxxx
Carrie, So sad to hear your news. You are in my thoughts and prayers. Thankfully B is no longer suffering, the only positive to come out of this. SallyE xxx
Carrie - Im so very sorry, sending you massive hugs and lots of love. I'm so glad you got to be with him at he end xxxxx Emma..... thinking of you and the girls, you have been so strong for everyone... i hope someone is there to look after you too. xxxxxxxxxxxxxxxxxx
