Glioblastoma Why Why Why <br/>

Hi everyone,

Suzanne, thanks for sharing your story about your sister, just the kind of news we all need just now, it's really good to hear of someone getting more time than expected & I hope that she does as well with the next round of treatment, keep us posted on her progress.xx

Julie hope u and Stephen are both well & enjoyed the sunshine when it was here, not so nice today though,raining here. love to both xx

Diane glad to hear hubby got his new bed and that he is nicely settled in it, you need to do something for yourself though sleeping on the couch is ok short term but you need a good nights rest to cope with the days. take care xx

Carrie hope you and B are doing ok today, can't believe this is happening to him and Matthew at the same time. My thoughts are with you both, xx

Gayle I bet your holiday is like a long ago memory now, hope Martin's cold is much better though this weather won't be helping any. love to you both xx

Emma it was great to see your post and I am so glad that the hospice is doing such a good job for Matthew. You know that we are all with you every step of the way and wish only the best for your both. Love and hugs coming your way, xxxx

Greentree are you going back to NZ for good? This must be really hard for you, leaving your Dad behind but at least you managed to come over and spend time with him which I'm sure he has cherished. I don't know if it's worse for us being here all the time or for you being far away, just know that this nightmare is with us all no matter where we are. You take care and it's been nice knowing you. xx

Lesley I hope your Dad enjoys his 60th, I'm hoping Rob makes his in September, something to aim for. Love to you and your family xx

Love to everyone else, sorry I can't list all the names.xx

Rob's not having a good day today, very down and can't explain why, hope this isn't the start of another round of seizures. Anyway going to make myself a coffee now and put my feet up whilst he is napping. take care all and speak again soon

Eileen xxx

Emma just txt me Mathews breathing has changed. Sending lots of love and comfort to Emma, Mathew, Ella and Sasha xxxxxxxx

Afternoon everyone, what has happened to the weather, it is really cold here today and miserable.

Emma sending you all big (((((((((hugs)))))))) and love to you all xxxxxxxxxxx

Lesley glad to hear your dad is improving a little, do wish him a very happy birthday from me on Monday

Eileen sorry to hear Rob isnt feeling very well today, doesnt it just go up and down, Stephen has a problem with the seizures, he doesnt have one for a few days then they start again, his oncologist says that when the swelling goes down they should stop but I dont believe him, in fact we are thinking of changing hospitals.

Carrie you are still in my thoughts constantly, sending you love and ((((((((hugs))))))) xxxxxxx

Gayle hope you have managed to get a doctor out to Martin, like you said he probably just needs the antibiotics increasing, thinking of you both xxxxxxxxxxx

Love to everyone else xxxxxxxxx

Thankyou Daisycat and Reland for your welcome, in answer to your question re surgery, this was not an option, after consultation with surgeons they said it would be too dangerous as the recurrent tumour is pressing on the optic nerve. My sister was quite relieved, however I maybe thought that the operation plus chemo would give her maximum time. I do want to give hope to many who are facing this journey, but as stated I was not told of the prognosis/timescale, but I am realistic too that I will have to face what dear Emma and Carrie are facing now, my thoughts are with you and hope that you will know comfort/strength, and help with you during this time. I send good wishes to all who are reading this from Northern Ireland, so many names to mention. xxxxx

Hi Suzanne, just had a read at your profile, hopefully this thread will help you as much as its helped me and so many other people, keep posting it will help you. xx

Emma and Mathew (((((((((((((big hugs))))))))))))))) and lots of love to both and the girls.xxxxxxx

Carrie and David (((((((((((((big hugs)))))))))))))))) and lots of love to both and your family. xxxx

All my other lovely friends hope you are having a peaceful weekend.

love Gayle xxxxx

Hi everyone

Thank you for all your hugs and good wishes. This really will be a short one from me. Sadly B died just before 2 00 this morning. I am so pleased I was able to get him home and that I was there at the end.

Thinking of you all and sending you big hugs.

Carrie x

dearest Carrie

I am so sorry to read your sad news, hope you have plenty of support sending you lots of love and thinking of you and the family, B is now at peace and no longer suffering.

love Gayle xxxxxxxxx