My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
our posts must have crossed only just read your posts.
Lesley, hope your dad is okay, he must be sick of the hospital it such a shame, your are all having a terrible time of it at the moment, thinking of you all, keep us informed xx
Debbie, sorry to hear that you are feeling unwell. xx
Carrie, no wine for me today cant afford to be any worse tomorrow we are going to airport hotel tomorrow, hope you enjoy mothers day. xx
Emma, hope you are feeling better now and not so tired. xx
I would just like pass my condolences on to Jades mum, Jack and her 2 lovely boys on Jades passing sending them all love xxx
oh Lesley, not again! Its so not fair, your poor dad. Make sure they know about the steroid reduction at the hospital, hopefully it will be increased and your dad will start to feel better soon. Wouldn't they take him to a more specialist oncology ward where they can look at the whole picture? I found when my hubby was in the local general hospital they really didn't have the experience or expertise in dealing with the BT side and the liaison with our specialists seemed to take forever.
just got up for some dry toast! Wanted to send this to each and everyone of you beautiful ladies.Debbie xxx
A woman has strengths that none will ever know. She can handle trouble and carry heavy burdens.. She smiles when she feels like screaming... She holds happiness,love,and opinions... She sings when she feels like crying...cries when shes happy and laughs when shes afraid.. Her love is unconditional!! There is only one thing wrong with her...she sometimes forgets what she is worth!!
Nothing really new with my dad...I think he is losing some ground every day. Still eating the ice cream but not as much. Wierdest thing..he can look at nothing for the longest periods of time just zoning out, not responding to us at all or answering questions or anything. Then out of the blue make a comment.
I stopped by the house to help my mother get him changed and cleaned up yesterday morning. I was dressed for church, and my mother and I were talking to each other as we worked. Out of the blue, he said "you look fabulous". Was the only thing he said all day.
He is dead weight now when we move him, no longer able to help us when we move him from the bed to the living room. We put him in a wheelchair, move him from one room to the other. So he sits in his lazy boy chair for a few hours every day..reclined. Is alot of work for us, but he seems to like the change, when he is aware of it. The bulk of the time he sleeps in the chair.
At the times we can't rouse him very easily, we don't move him, leaving him in bed. Our hospice nurse has been telling us that this is bad, we are wearing him out moving him every day from one room to the other. She said technically he is bedridden, as he is incontinent, and cannot support his own weight. While that is all true.....we thought that as long as we aren't HURTING him (causing pain) moving him, that it seems to do his morale good keeping him in this routine. When we can no longer do it, then we are going to move his hospital bed into the living room for the balance of his time.
He sits there, his dog on his lap, (sometimes he even pet him), listening to the TV, and the comings and goings of the grandchildren, and regular household activity. Be honest...do you think we are being selfish and should do what the hospice nurse suggests?
hi Lisa, no I don't think its selfish at all, far from it - its better if he can be aware of the comings and goings of the house to some extent, so if he's comfortable and the transfers are not too difficult, then why not? sounds like you and your mum are doing a great job taking care of everything, not easy when incontinence is a problem! sounds like he really enjoys having the dog on his lap - that's a lovley image.
hi Gayle, jsut to say hope you all have a fab holiday, try to relax as much as you can, and don't get sunburnt!
lesley, hope things are ok
Becca, likewise, hope your dad is a bit more comfortable today.
My husband B is immobile and has to be hoisted from his bed. He is still able to communicate and we give him the choice of whether he would like to be in his bed or his chair. It sounds to me to be a similar situation to that which your dad is in and I would say that if your dad seems comfortable, carry on with what you're doing. If nothing else, it moves his body into a diffrent position and changes pressure points.
