My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
This is a really fast post from me tonight ladies and gents Just to say please please never ever feel bad about posting - we all made the first steps at one point or another - there are many new posters on here and us more established ones would really hate for anyone to feel they couldnt post - its an amazing place to let of steam and also have a laugh and ask advice too - please stick with us - we all become mac friends within seconds! consider yourselves one already.
Take care everyone lets hope tomorrow is a sunny day and can make us all feel a little lighter and brighter xxx
hi Helen, please keep on posting and don't worry about the group being "established" - everybody is welcome to join in, you will find that all on here and on wtbt are very welcoming and friendly, and will help out where they can. In fact, the more you post, the more you will get out of it, just like a conversation - the more you speak, the more people get to know you! the sad fact is we are all joined together by the evil BT. love, diane x
Just to say, didn't mean it to sound quite like it did. Had a bad day yesterday. At least you all have some understanding of how bad it can be. I'm going to do some therapeutic gardening today! Will make more of an effort to get to know you all.. Thanks for letting me vent without judging.
I've only posted a few times but I do identify with what you say Muir, I think it is quite hard to come to a place where it feels very much like a group who are extremely familiar with each other. This is definitely not a criticism it is just the way it is, but to be honest it can seem a bit overwhelming when you are new to the site.
My husband Paul aged 58 was diagnosed with GBM4 in December 08 having previously had no symptons. The tumour is inoperable, finished radiotherapy 3 weeks ago. Has not as yet had any chemo as has not been well enough. He is very confused, has been having seizures and is starting to be incontinent. He has been in the hospice since Tuesday for medication adjustment and assessment.
Up until 3 months ago he was running his own business, was fit and healthy,loved sport especially golf and rugby and was always the life and soul of the party! The change in such a short time is nothing short of staggering and my sons and I are literally reeling at what has happened to our beloved Paul.
We are very fortunate in that we have many close and supportive friends who have wrapped their loving arms around us but I do just feel lost and so lonely without my lovely man and no amount of support can take that away.
Jean, Muir, I mostly write on the other bt thread but just popped over to say how I recognize how at first a thread can seem like a close group of people and how hard it can be to get started. But I'd say the best way in is just to write regularly. The support and information you get just by participating is just amazing.
I joined the other thread about last summer and that also seemed like a group of close-knit people but one or two people always replied to me and I just started writing regularly. Don't always have much of interest to say mind you but that doesn't stop me!
Muir, Jean and Reland, welcome to our site, everyone is welcome here, there is lots of help support and friendship here for everyone, it wont be long until you are all a part of this group, we are all pretty close on here because we all understand each other so much its truelly a godsend!!! xx
Emma, glad mr Duracell is much better today, that will make mrs Duracell feel alot better and the AA's, hope your not hungover this morning, love to you all xxxxx
Lesley, hope all is well in the capital, hope your doing something nice today. Spag bog, I love mine with worchester saue and loads of grated cheese must be a scottish thing eh.xxxxx
Jay, sending love to you and your family. xxxxxx
Diane, it is very difficult at times and very lonely in our world, that chippy sounds good, you started something there!!! xxxxx
Carrie, hope you are enjoying your visitor, it sounds like you are having a lovely time, and lovely food too your making me jealous, when Martin was getting rt and he was on high steriods he would have a curry almost everyday I was sick of them, and I piled the pounds on, now he cant stand the site or smell of them grrrrrrrrrrrr xxxxx
Izzy, are you ok??? let us know if you can please we are all really worried. xxxxxxx
Joan, are you and David ok, not heard from you in a while. xxxxxxx
Debbie, hope you and the family are well. xxxxxx
Greentreen, CH, Becca, Lorraine,Karen and everyone thinking of you all.
Have any of you heard of Karina Natalia, she is a pschic healer, the one who told princess Diana she would die in a car crash, she sent me a letter, dont know how she got my details etc but she knew lots about me, offering to help me make the most of my special day and how to help heal, what do you people think, my lovely friends.
As some of the others have said, don't be put off by the fact that we seem a very close knit established group. We are very close knit but as I mentioned in an earlier post I only joined in January and I am not the most recent.
It's just we are a small group and that way we can keep up with each others news and that in my view really helps with coping with BTs day to day. I look on it as a form of therapy. I know that when I type a post the other members of the group don't judge and will offer advice, support etc, which really does help.
As CH says, write regularly. Everyone is interested in what everyone else is doing and we are very willing to share both the good and bad news. If you read the posts and join in it doesn't take long to get to know people.
hi all Carrie, haven't a clue re 18th - mine's not till september. let me know if you have any ideas! mine is a drummer so might get him a good piece or accessory for his drum kit! I actually can't remember what I was given for my 18th! ( must have been too long ago) talking of which, I am definitley confused over the lochs of my childhood. Lesley, it was Figgate loch near Portobello we used to go to, amd sometimes Dunsapie Loch up by arthur's seat. Hogganfield loch is of course in Glasgow!
