Surviving Oesophageal Cancer

  • 1237 replies
  • 7 subscribers
  • 1237943 views

Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.

I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.

Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.

All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.

I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.

All the best

Crystal

  • FormerMember
    FormerMember in reply to crystalclear

    Happy Valentines to all members of this site

    Love

    Maggie xxx

  • I just wanted to thank everyone for their support over the last 9 months.  Roys funeral was last Friday and the girls are coping well and taking each day at a time.  Its very strange - sometimes it doesnt seem real - if that makes sense!!  Although i may not write on here often i still read others stories to keep updated on other peoples journeys and im sure i always will - once your life is hit by something like this you need as much support as possible x

  • Hi Gill

    It’s really nice of you to drop by and I’m glad the girls are coping well.  I’m sure there will be very sad days for them, for you as well of course, but hopefully as time goes by you’ll all recall the happy memories.  It is a strange feeling that when we lose someone close it often just doesn’t seem real.  I think this is part of our coping mechanism and trying to put perspective on something that is so final.  Our brains know the reality, but our emotions don’t want to accept it.  I’m glad you’re keeping up to date with us, but don’t be a stranger to us, as I’m sure you can help out in the group if and when you want to.  Otherwise, you’re always welcome here.

    Take good care.

    Love Crystal xx 

     

  • FormerMember
    FormerMember in reply to crystalclear

    Hi everyone

    Had some good news today ,saw the consultant today it has been 4 weeks since Tom finished his final chemo session he said as Tom is eating well and feeling so well he does not want to see him for 2 months and told us that when the symptoms start to get worse again there is the option of some radiotheraphy or some clinical trials that are taking place at the hospital. 

    I hope everyone is doing ok

    Marianne

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Marianne

    That is excellent news and so encouraging - I am delighted for you both.  

    Jonathan's eating is continuing to improve, but progress is still slow.  The oncologist, we think, is going to be discussing radiotherapy with us on Friday.  The aim is to treat (or blast!) the rogue lymph node.  So, good news for us too.   

    I'll keep you all posted. 

    Best wishes to you all out there. 

     

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Grace

    Good luck for friday hope you hear good news ,glad Jonathan is continuing to improve.Let me know how you get on.

    Love Marianne

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Marianne.  Will do. 

    Love to you both. 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Marianne and Grace

    I am so pleased you are getting some respite from the symptoms of this damn awful thing, you know you both need to look after yourselves too, becuase I know I would rather have this desese than watch someone I loved go through it, I think the strain would do for me, so try to do some fun things becuase it can't all be about this illness and you won't be much good to anyone if you make yourselves ill with stress.

    All My Very Best,

    Steve

  • FormerMember
    FormerMember in reply to FormerMember

    Hello all.

    I don't visit here so often these days but I'm still alive and kicking !

    Bit of a sad time for me  as it was 4 years ago tonight my wife went into hospital where she died of liver cancer 5 days after diagnosis on Feb 27. Share seems a natural place to come to be among caring sharing people who know how I feel.

    Anyway,

    I wanted to ask any of you Ivor Lewis vets do you have the strange symptom of 'one sided reflux' ?

    To explain it better, my rib separation was on my right side so when I lie on my right side I get the pain from the scars. When I lie on my left side - I get reflux !!!

    It seems to have come on in the last few months. Otherwise I'm still a fat B****** \;0) but got to lose weight (Doctors orders - he don't do quadruple bi-passes - only upper digestive track  surgery ! ) So I take delivery of my bike tomorrow and will post a pic of me in my lycra shorts so you will see where I keep the pump !

    Hope all you post ops are well, all you pre ops are well prepared, all those awaiting results get good ones and eveyone else is comfortable and pain free.

    I don't pray as I am not a believer, but my hopes and wishes are with you all.

     

  • Hi Marianne

    This is such good news and obviously that last chemo seems to be doing its job well with Tom feeling so good, so let’s hope it continues like that for a long time.  With the options opening up for further treatment later on if necessary, then things are brightening up. 

    I hope you and Tom have a lovely day today.

    Love Crystal xx