Hi everyone

Li - i hope you and Gerald are doing ok and fingers crossed it will be ulcers and nothing worse. 

Janet  - i understand how you feel - Roy was diagnosed in April and only given a few months and i was like you - hoping that he is here for xmas and now we are here!! so i hope you get your wish that you can enjoy next summer with him.  Each day is a blessing for Roy as he has no option of surgery so he is aware of the outcome.  Unfortunately he was admitted in hospital yesterday with pneumonia again so we are going to visit tonight which the girls are dreading.  My youngest doesnt want to see him in hospital but knows she will regret it if he gets worse but he has had this before so im hoping nothing bad happens and he is out for new year.  I try not to feel selfish but i hope for his daughters sake that nothing happens at this time of year because i dont want them to have bad memories at xmas time but i know this sounds so selfish.  Tonight will be horrible for them and they always leave emotionally drained and tearful after seeing him.  Im sorry for waffling on because i know that most of us on this site have been through all these emotionally stressful times so im sorry.

To everyone on this site i wish you all a wonderful happy christmas and hope next year brings as much happiness as we can wish for  to us all xxx

Hi Janet,

Sorry to hear about your dad,my husband was diagnosed in July with no chance of an op.He has just had his 5th chemo with one more to go and apart from hair loss has had no side effects at all.We are enjoying every minute of our time together and I am going to ke sure this will be the best christmas ever.Hope you enjoy your time  with your dad and cherish every moment.My love to you all.

                                                         Marianne xx

Hi gg1630

Sorry to hear that Roy will be spending christmas in hospital  my thoughts are with you at this time it is so sad that we both find ourselves in this terrible situation enjoy your times with Roy as best you can.Thinking of you all .

                                                   Marianne xx

hi all,

sorry to be the bringer of bad news but i need some help, we spoke to geralds nurse today and the pilmanery results are bad, we have all been called into the cancer ward for a meeting to discuse treatment and so on and will get the official results at 9am in the morning!! but the nurse said so far the results are pointing to cancer, and the fact we have been called back to the cancer ward comferms what she is saying. as you can proberly imagine we are all in bits again! we are struggling to find any info on cancerous ulcers and therfore we are stuggling to think of good questions to ask and so we need help, any one got any info even if its the smallest thing? any thing is better than nothing!

any way i hope all is well

gg im sorry to hear roy is back in hospital i hope he will be out soon

janet try not to worry if the cancer would have returned they would of found it,

to every one else merry xmas and try and enjoy yourselves

take care all

li

Hi Li

This news is really upsetting and I’m so sorry that Gerald and all your family have to go through this again.  It seems that the doctors are acting on this quickly as they need to start a treatment plan very soon.  Although the doctors initially said the lesions looked like ulcers it’s possible that they were not ulcers.  Ulcers can turn cancerous but it’s more usual for lesions to begin as cancer rather than as ulcers.  You need to ask some of the following questions:

-         is this a secondary cancer from the original oesophageal cancer, or is it an entirely new cancer?

-         Is surgery an option?

-         What treatment can be given?

-         How long will this treatment be and how would this affect quality of life?

-         When is treatment to start

I’m sure the doctors will give you all the information you need, but I’m just really hoping that the results are not as bad as you think.  I am very upset for you by what you have told us, and my thoughts will be with you tomorrow.  Let us know how you get on Li.

Love Crystal xx

thank you crystal we have been told by the nurse that surgery will not be offered only chemo this time thanks for the questions to ask im normally good at thinking things to ask but my mind is blank this time around and i looked on the net and cant really find anything

li

Li

I am devistated for you, if the cancer has returned I am truly shocked given the short time since the operation. I will also be thinking of you tomorrow.

Take Care

Steve

Hi All

Li I am really sorry to hear your dreadful news,  you must be all devastated, after Geralds great progress the last 6 months this must feel like a huge setback,  you are all in my thoughts and I will pray that the news is a good as can possibly be it seems so unfair.

GG - what a terrible time for you and your daughters, you are also in my thoughts tonight, I do appreciate how lucky my dad was to be offered the operation.  I can't even begin to imagine what you are all going through.

Crystal & Steve - your words always feel very calm & comforting when everything around feels like it falling down, you are a great support.

Marianne - hope you and your husband have a great christmas together,  and hope he stays well ...Janetx

We went to see Roy at the hospital last night and up to now i havent shed a tear because although i know what will happen i suppose it didnt seem real and i am there for my two daughters but i have now cried my eyes out.  He has lost so much weight and looks so poorly.  He may be my ex husband but no one should have to go through this - life can be so cruel and he is only 41.   I realised that if it upsets me what must it be like for my girls.  It was heartbreaking and when we left we just hugged and cried.   

Li- i am so sorry you are having to deal with this awful news.  Stay strong and take one day at a time and although this is a setback stay positive.

To you all - thank you for your kind words and i hope that we all find comfort and support in each other.

Gillx

Li, especially thinking of you today.

Gill, I hope you can share a peaceful and happy Christmas with your children. 

Janet, I hope your dad is well and that you have a wonderful Christmas with him.

Thinking of you all

Peace and Love

Crystal xx

hi all,

we had some bad news the cancer has returned they think that the miroscopic bits that were in the blood vessels (the ones they thought they had removed) have regrown its in the stomach pipe and they think its localized but gerald has to have a ct scan next week to be sure, the surgeon is now transfering us to the oncologist he said it looks like chemo with maybe radio (radio depending if its localized which they think it is) and they want to start at the start of the new year. they said they are going to go for a cure as geralds so fit but they said it such a small chance as in single figures. it quite a early stage (they think) it was only caught by chance as we moaned gerald was having trouble swallowing, but he didnt need dilation he just needs to chew, and it had nothing to do with the cancer returning as it hasnt got far enough along for any symptoms yet. the nurse said she ordered dilation to give us all peice of mind and by fluke they found this! now heres the part where i bug you all to try and find out as much as i can about oesophageal cancer in the stomach as thats what the nurse said it was, we have been told prognosis isnt good so we kind of know what to expect so dont hold back on any thing please any info will help. we have been told that depending on how the cancer reacts to chemo is depending on how long he has, we need to no if any one has had this or known some one. and i would like to know even if chemo did / didnt work in terms of time we have left with him please

gg i know this must be a hard time for you all try and enjoy xmas and i hope and pray roy will be home soon

to every one else thank you for you support and i hope you all have a nice xmas

Li