Surviving Oesophageal Cancer

Hi Crystal and all our friends out there  --  (assuming you manage to retrieve this?)

Still have a long way to go before I can make sense of this new system and don't know if you will all be getting this.Here's hoping.

Have seen Oncologist and saw the bone scan for ourselves and sadly no mistake - the tumour on my arm stands out like the proverbial dogs bollock! Have had further xrays and ct scan to follow to sort out radiation target.So the new adventure has commenced. Still trying to manage the pain at this stage without going completely into la la land. Apart from that we are going great guns and enjoying the glorious spring weather. We are so lucky to live in this lovely part of the world.

Trust all is well with you all and remember if you can read this, then you are far better off than a lot of others on this planet.

Cheers Ben.

(((Ben)))  You found us.  I can't find my way very well either, but the very worst part is that we feel blind on this web site.  Nobody likes change, but after cancer any change has to be considered carefully bcause we stress too easily and don't have the stamina to deal with it.  Anyway, I'm sure we'll get used to it.  You are right as always that if we can read this (and I can but only just as the text is very pale grey no matter what I try),  then we are fortunate. 

Ben, I'm so sorry about your results confirming the tumour on your arm.   I know today's technology is good medicine and will be able to control the tumour through radiotherapy, but I'm just sorry that you have to undergo a further adventure like this.  I know you'll do it and get through it, and until then make sure you and Sharon have lots of fun in that most beautiful country of yours.  Come back and tell us when you're scheduled for treatment and we'll be here to support you and cheer you through it.  You have a birthday coming up next week don't  you, so how many candles on your cake this year?  Another very good reason to celebrate.  Enjoy a good evening Ben and we'll catch up soon.

Hi to Everyone else, where are you?

To All looking in, I hope your day is a good one.

Love Crystal xx

hi, Ed now tucked up in hospital full of morphine so I can breathe and maybe even sleep tonight ready for battle tomorrow . He finally agreed to go at 10am after suffering for over 10 hours! The docs have diagnosed acute pancreitis and bowel problems and enlarged prostrate, aneamia for now. It will be a day or two after ultra sound and ct scan before they can decide for sure and say what will happen next.

I am just glad he is comfortable. I cant stand to see him in pain. I think he is really scared that the cancer has spread but now accepts he has to face whatever is the problem, and maybe the results wont be so bad.

I am still struggling to find my way around this site but pleased that others also struggle, at least I am not the only one. I thought it was just OAPs, lol. I tried to read back on this site to see what had been going on but found myself reading something completely different! So sorry everyone if I am at cross purposes with things.

My best wishes to you ben, sorry you have yet more treatment to contend with but you will give  a good fight I know. May I also wish you a great birthday in advance as my memory is rubbish. I can remember something at 8am and have forgotten it by 9am only to remember, too late! at 2pm. Hope you have a good day, love leisha xx

Hi, Leisha

sorry to read that you are struggling with the changes to the site, especially as it seems your husband has had to go back into hospital and you a clearly in need of a bit of support.

I think the changes will take a bit of getting used to, but meanwhile I just wanted you to know that there is plenty of love and support out here, even if you can't get through to your usual Friends at the moment.

Wishing you and your husband all the best, with lots of love,

Bronwen xxx

Thankyou Bronwen, just had a weep as I miss my friends so much, I dont know if im coming or going, so many folk must be feeling so low I feel for all of them, love leisha

hi again bromwen, just looked at your profile, good luck with the treatment, you are especially lovely helping me when you have so much to cope with, thankyou again and I will be thinking of you tomorrow, love leisha xx

Hi Leisha, Ed is in the very best place where he will get the proper care he needs.  The docs will also be able to relieve his pain which will help him to rest.  Has Ed been sick quite a lot?  I've heard that pancreatitis is extremely painful and can cause infections, so this could be why he feels so poorly.  Anyway, you know he'll get the best care and have the tests needed to see what's going on.  You too must rest, although I know it's such a worry to you.  But you've been here before, and you know to take a step at a time, because everything gets done as it should be done and in its rightful time.

I too had difficulties with this site but am getting to grips with it now, except I'm not entirely sure that my pms are reaching anyone or that I'm receiving any.  So please PM me and I'll tell you how to find things if I receive your message.

I'm sending you lots of hugs ((((((Leisha))))) and telling you that you will sleep well tonight. xx

hi crystal, cant sleep yet as Im like a naughty child who is staying up late, poor ed cant moan at me being on here late 2nite can he. Im so releived he is being looked after and not in pain.

I am also finding my way round the site and am trying to persuade folk not to leave. many are struggling to find their friends and I started 2 new forums, what a mess and please dont go. I will send you a message now if I can . I found a return message in my normal emails, so look in there. love leisha xxxxxxxx

Hi Leisha, I haven't received a pm from you yet.  What time did you send it?  In fact I've sent around eight pms and not had one reply so i guess they are not reaching their destinations, unless people don't know how to reply with this set up, or even worse think agghhhh its that Crystal woman again Lol. xx

have just sent PM. have you looked in your normal emails? xx