Surviving Oesophageal Cancer

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Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.

I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.

Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.

All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.

I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.

All the best

Crystal

  • Sunny, one of the hoglets. 

  • Today marks 12 years since I had the Ivor Lewis sugery, so i post here each year just to record the occasion. In doing that I look back and remember old friends and fellow bravehearts who posted here with their stories.

    Nowadays I'm trying to keep fit by bike riding, gardening and walking, whilst also continuing my painting.

    We still enjoy going to rock concerts, dressing up for Steampunk events and 1940s re-enactments, both of which are annual events around these parts. My Bucket List is getting longer also with new interests.

    Healthwise I'm not bad, a bit overweight, a touch achy but always counting my blessings.

    For those looking in who are on their own healing journey, just try to keep your mind and body active, create goals for yourself and just keep on going.

    Healing Thoughts to All.

    Crystal x

  • It’s 13 years ago today when I had surgery for cancer of the oesophagus. As usual, each year, I like to mark progress here on my blog that I began all those years ago, as well as saying Hi to anyone who was around back then.

    I’m doing well, but who could have imagined the Corvid 19 virus, the subsequent lockdown and how disruptive it’s been to everyone, and in particular to cancer patients and their treatment. I hope you all get the treatment you need with good outcomes.

    My Bucket List gets longer instead of shorter as I keep adding new interests and hobbies. I still paint , but have taken up many other things as well, some of which I’m useless at, such as crochet. 

    To anyone reading this I wish you all the very best in your journey. Stay focussed, be strong and make little steps.

    To the NHS I have much to thank you for, you gave me the best of care and I’m eternally grateful to those doctors and nurses.

    Love and light

    Crystal xx

  • 14 years tomorrow since surgery. It’s been a challenging year for everyone so I hope you’re all safe and are able to forge ahead with treatment.

    I’m still adding stuff to my bucket list, but it’s now age that makes things harder not illness. In that, I realise I’m lucky.

    Healing thoughts to you all and all the best possible outcomes.

    Much love

    Crystal

  • It’s been 15 years on Saturday 21 May since my surgery for oesophageal cancer. We celebrated as we do every year, whilst always remembering the excellent care I was given by the NHS, in particular by the consultant Mr Jacob and his team. I also always reflect upon all those lovely people I met on this forum all those years ago.

    Nowadays I feel well, have taken up new crafts and other interests and generally just ‘seize the day’.

    Love to anyone looking in on this. X

  • Hi Crystalclear, thank you for your posts, I leafed through them and they gave me some hope.

    I have just been diagnosed, waiting for CT scan that will happen tomorrow, then biopsy results and the meeting about what is going to happen to me after that. 

    I have to say I am dreading this a bit and want to be fixed at the same time. The problem you see, is that I'm alone . 

    Thank you again for all your posts. 

    Love SeaSurf

  • Hi SeaSurf

    I’m so sorry you’re having to face this journey on your own, but you’ll find lots of help and support on the Macmillan site from people going through the same thing.

    The tests seem endless, but they will all help in your getting the exact treatment you need. It helps just to take one step at a time and be sure to ask your medical team all you need to know.

    As you can see from the dates of these posts here, this is an old blog and more or less dormant now. The Macmillan site format has changed over the years, so you’ll find a lot of current activity over on the Oesophagus Cancer Forum. There are lots of people there posting and sharing their experiences and individual journals. You will find a lot of info there and make new friends I’m sure. Here is the link to the Oesophagus Cancer Forum.

    ttps://community.macmillan.org.uk/cancer_types/gullet-oesophagus-cancer-forum

    Good luck with your treatment plan SeaSurf, stay positive and chat to the many people on this site, as I did over 15 years ago. Wishing you all the best and a positive outcome.