Surviving Oesophageal Cancer

hi all its been awhile i hope all is well, gerald is in hospital having his 2nd cycle of ecx he is handling it all quite well he still feels a bit sick so they have changed his anti sickness drugs but these one are ment to make you feel more tired, but heres the thing the main side effect gerald is having is he is so tired alll the time. does any one know any good anti sickness that stops the feeling of sickness with out making you more tired.

take care all

li

crystal i hope you are doing well and looking after yourself xx

Hi Crystal,Hi Sue. The news came yesterday and isnt good. Im not going to go into great detail as there are so many people who have positive outcome and i would want their positivity to continue. I will simply say i am blessed to have had the extra years after Ivor Lewis and as a family we have done so much that we would never have got round too! Now adjusting to this news and letting Dad decide if he wants to "try" chemo. Big love to all of you and your families xxxx

Hi Rubydoo

I'm so sorry the beast is back but I am sure your Dad can get some more fun out of life if he takes the chemo...he has wonderful support from you....there are so many small things to be enjoyed every day.

Night night...another chemo day tomorrow for my husband...but it's worth a shot..and for your Dad too xxx

hi all

just a quick question, gerald is on ecx and we are just wondering what happens next? if the chemo works remission for so long then what more chemo? and if it dont work still more chemo with a break or straight away? its just gerald is on his second cycle and we are all a bit confused i hope some one can help

li

Hi LI

My husband Tom has had 6 courses of ECX chemo which has worked brilliantly,he is inoperable so at the moment this all the treatment he can have,his oncologist has said that there maybe a chance of radiotheraphy or clinical trials when things start to get worse again,but that will all depend on the size of the tumour .Hope Gerald is coping well with the tumour.

Marianne 

Hi Crystal;

You kindly wrote to me a little while ago but reply to you came back so am trying again.  You seem a very caring person and I am really happy you are well and you deserve to be.

My husband as you probably read has secondares for th second time...most unusual to survive so long...and the hospital keep makingblunders largly by lack of communication...we can't get hold of his professor and the underlings clearly have too much to cope with.

I  have to admit I am finding life difficult as the prospect of losing him becomes more of a reality, although he doesn't realise ...or appear to.

I very much hope you have friends or family to spend Easter with and send myn fondest and thnk you for all the support I see you offer everyone

Sue x 

sue

im sorry to hear about your husband, i dont know where you are but if your in england we have pals go to them and explain you cant get hold of any one and you feel your being negected by the drs and they will help,

hi all hope all is well,

we are still trying to get answers about ecx thanks to every one that has replied, but our oncologist said if the ecx dont work there is other options more chemo but he didnt say any thing about if it does work, just a break with remission so we are still a bit confused. any information will help

Marianne

gerald is copeing unbelevable he is at work every day and is still have ecx, the tumour was found after the op they thought he needed dilation and when they went down they found it near the new join, he was only 6 months post op. he is in his second cycle now and starting to lose his hair. but they was no new growth from start of jan to start of march before chemo so we are hopeful.

i hope your husband is doing ok and you and him are copeing well.

hi all please join this great group i found of facebook it premotes awareness of oesphagus cancer please follow link

http://www.facebook.com/pages/esophagealoesophagus-cancer-help-and-support/105950986110218?ref=ts#!/pages/esophagealoesophagus-cancer-help-and-support/105950986110218?ref=ts

Hi all, sorry only posted on here a couple of times but wanted to post my just giving address as i am running the Plymouth Half Marathon in aid of Macmillan without whom i really don't think i could have got through the past three years.

My husband died from Oesophageal cancer on April 01 2008, The Macmillan team were brilliant and did all they could to make Rob's life and mine a lot easier.

Sending you all ((((((((((Hugs)))))))))))