Hi
My teenage son has recently had a request for Cabozantinib denied by the Cardiff and Vale health board. He has a terminal diagnosis and this treatment is his last hope for extending his life.
We will, of course, be appealing the decision, but this takes time......and time is what we do not have.
We are sadly not in a position to fund the treatment ourselves so we are desperate.
Does anyone have any experience or advice in this situation?
Thank you 
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Hi MRMRMR and welcome to the community but sorry to hear about your son.
I have no experience in this but your may want to call the Macmillan Support Line that is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking with others who are navigating the same support journey can help a lot so do look to join and put the same post up in our dedicated Supporting someone with incurable cancer support group.
