Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Christine, I haven't checked to see if my bio is on here, but then I did fill out a blog on What now, it took me an age to get to it each time there was anything new, though, hope this new site is better for that! I too am not sure if the new forum will be any good, but hey, we have to give it a go....
Liz, I saw your post on facebook and was soooo pleased about it!
my love and hugs to all
Moomy
hi Jonnie, still finding this whole new site confusing, but I suppose it will all become clear in time, great to see you posting
Hi Liz,
Liz I am jumping for joy for you dear lady, such good news, I know how worried you have been love. oooooooooooooooooooooo just so pleased for you.
I have lost mine too lo, think I am going to loose my brain soon as well hehe Lets hope with a bit more practice we can all get used to this new forum.
Love and hugs to all
Maryxxxxxx
Dear liz
i have just found you!
SSSSSSSSSSSSOOOOOOOOOOOOOOOOOOOOO thrilled to hear your good news!
I was teaching a class of 5 year olds on Friday afternoon, so I hope you don't mind but we danced the c**p out of cancer with Baa baa black sheep!!!!!!!!!!!
Hi everyone,
Liz I'm so pleased to hear good news from you....................long may it continue.
Although I'm still devastated about losing my Biography which contained eventsand thoughts over the past 18 months, I'm going to try very hard to get used to this new site. I still have my doubts. I feel that things have changed too much more me..................I felt comfortable on the old site.........and I certainly dont feel comfortable on this one.......................I think its horrid.
I'm going to give it until the end of the month (the anniversary of losing Andrew) and I still feel the same, I dont think I will be posting any more.
Lots of love
Christine
xxxxx
Dear Christine,
I agree with you, I don't like this forum either and find the navigation of it too much to bare, I too don't like change and why bloody change things that are working so well anyway. I am confused.com believe me love.
We are one of many, I honestly believe that, my profile is also missing, meaning I have to type it all again, think this one will keep me away from Macmillan, don't think I can be bothered anymore if you know what I mean.
I have friends on my list that I have never accepted, never spoken to them before, what the hell is going on! ooooooooooooooooo just a rant forgive me love.
Biggest of hugs and remember you are not alone love.
Love Maryxxxxx
Christine have you tried emailing Macmillan, Dianne said she has and has got her profile up and running again, think I will do the same, give it a shot love. I do understand how you are feeling.
Biggest of hugs
Love Maryxxxxxxxxxxxxxx
Morning to you all
I TO HAVE LOST EVERYTHING I HAVE NO FRIENDS ON MY FRIEND LIST.I have also lost my profile and i really dont like this site it was nice and easy and now it,s really hard well i do hope you all have a great day i,m just of to a car boot again so i will speak to you all later.
much love liz xxxxx
I am new here and somewhat lost. I have Kidney Cancer diagnosed in June and hope it is OK if I follow your thread and occasionally join in the conversation.
Thank You. Marc
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