BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember
    Another day, another letter from another doctor. I have been referred to so many people i am struggling to keep up with it all, but I don't mind. At least the lines of communications are still open and in my mind, the more people I talk to the more options I have. I wouldn't like to have all my eggs in one basket. Yesterday was a good day. my old boss came to visit and as he has recently had a spell in hospital for a triple heart bypass , he was very understanding regarding the not being able to lift anything or not being able to drive. We had a good old natter for about 2 hours until Linda returned from Cambridge. Linda and I then went to lunch at a localish publick house and although I didnt feel particularly hungry I managed to polish off a mixed grill. I then came home and rested for a couple of hours and then , on the way to pick up Kate from school, Linda dropped me off at our local health club where I spent nearly half an hour on the tread mill. I had it set at a respectable 6.1 and although a bit wobbly once done,boy did I feel good. Kate is going swimming there today so I will get another session in. Kate has a sleepover tonight with one of her friends so I am hoping myself and Linda can have a night out on the town.(in reality a meal and drink at one of our locals). Those of you who know me will know that I do Like my food. Molly our dog who normally sleeps outside in a kennel slept in our room on a newly purchased dog bed (spoilt brat). so I am up nice and early to get her outside before she leaves any surprises on the bedroom floor.What with her and Linda's snoring its a wonder I got any sleep at all. I am now going to have a stab at a tidy in the garage so I will speak soon
  • FormerMember
    FormerMember
    Well Ive managed to tidy garage and go for a 30 min fast walk at the gym. I am now resting and trying to wake myself up for visitors tonight. We are having a chinese takeaway which should be good . I'm hoping my appetite reappears. hope you are all OK
  • FormerMember
    FormerMember
    Well my weekend was fair to middling which in my books is good. Today I am off to London to see the oncologist at the Royal Marston and hopefully to collect my next cycle of Sutent. I cant say Ive really felt any different being off them for two weeks, but its been nice not having to remember to take them every day. My appetite is definitely low at the moment , but when I do feel like eating, I eat OK so I'm not too worried.kate has been all over the place with her emotions but it is really not surprising. Hope you all had a Fair weekend.
  • FormerMember
    FormerMember
    Well ive been to London today and Proffessor Gore has given me the next 4 weeks of Sutent. He said I looked extremely well and I return to the Marsden in 5 weeks for my scan to see if the Sutent has had any effect. Linda drove me to london as the trains were disrupted and she done me proud. My works have told me I cannot return back to work untill I have been declaired fit by all concerned which is a bit of a blow . I was hoping to do part time hours for a while to keep my brain engaged. never mind I am hoping someone will smuggle out some work for me to do. How is everybody out there doing ? Did you have a good weekend ?
  • FormerMember
    FormerMember
    Hello Bob, Just wanted to say thank you for giving me an insight into how a cancer sufferer really feels. My Mum has breast cancer and I often wonder how she is really feeling inside so thank you xx
  • FormerMember
    FormerMember
    Hi Michelle xx Thank you for reading my diary. I am a very positive person and my hope is that some of that positivity will encourage other people on this site. I know that everybody is different and we all react in different ways. There are also days when I feel low and I also want to air that side of things also, Not only does that help me , but people like yourself who's loved one is going through this terrible ordeal. People do not always tell their closest family exactly how they are feeling and that is what this site is very good at. It allows us to express exactly how we feel without fear of being judged .
  • FormerMember
    FormerMember

    Hi Bob,

    I have read your diary from the beginning, it's the first thing I go to when I log on. I lost my Mum 6 months ago yesterday and this forum has been a trememdous support. You are an inspiration to us all. Please keep posting.

    Pat x

  • FormerMember
    FormerMember
    Hi Pat I am so glad that my diary is helping you. I am very humbled by your kind words That in turn helps me as it gives some positivity to this whole painful experience. I am so sorry for the loss of your mum. I lost my dad to cancer a few years ago and know just how your feeling. I am glad that she stayed at home, surrounded by those who loved her. time is a healer and you will come through this. you will always have your memories. no one can take those away. take care and post again if you would like to.
  • FormerMember
    FormerMember
    am having bother today with post, bob i replied to ure thread on my discussion but it keeps not posting . tried 3 times . is it playing up today ?
  • FormerMember
    FormerMember

    Yeah its working, managed to post. hope ure meal was good, we had a chinese on friday to celebrate my birthday (which was sat ). My boys got me take that dvd,flowers and a necklace,my hubby perfume,.. how spoilt am i.

    hope u had a good morning all, i am feeling better after my chat yesterday. !

    luv ros