BOB JK My diary of kidney cancer (to be continued)
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally. In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
Oh Linda , how well lots of us know that feeling , smiling on the outside , howling on the inside(hence my user name ) , My thoughts are with you all and i really hope that this is just a set back for Bob and we see him posting again soon ...
Hello Bob, Linda and little princess. I must be one amongst hundreds and thousands wishing you well Bob and sending all my love and strength to you all. Such a special family. Hope today brings you just that little bit more strength than yesterday.
Hi Bob - Just wanted to add my best wishes to you and your fantastic family. I hope you feel a bit better today - but keep taking it easy...! and I hope you are ok Linda - an unbelievable tough time for you too - Sending you all my love and wishes -
Hi Linda, Don't know what to say except that like everyone else on here I am hoping and praying that Bob picks up again and starts to feel better. I also wish I could give you a great big hug. Its not just poor Bob who has went through hell and back but you have also rode this horrible rollercoaster ride and been there every single step. I know how devastating it is to have to watch your loved one try and fight this horrible disease and how helpless we feel because we cannot make them better. Sending you all love, hugs and strength.
Bob not been so well again today. I spoke to his oncology team in London and they are now working with local GP to create best plan of care for Bob. Everyone considers he has some sort of unidentified infection, which they are now going to treat aggresively with strong antibiotics and steroids, if there is no improvement they want to admit to hospital for IV antibiotics and rehydration. Its a wait and see game now to see if this will improve things over the next few days.
I have plan B in place for Kate's birthday party, which is at the weekend, friends are going to step in and take over if needed, so that's organised.
I hope Bob starts to improve soon whether at home or in hospital..just keeping everything crossed the infection is brought under control soon, so he starts to feel better.
I hope Kate's party goes well whichever plan goes ahead.
Dear Linda, Thinking of you and you lovely family, hope that your dear Bob feels so much better soon. Hope that you won't be needing plan B and wishing your dear Kate a lovely birthday. My love and ((((((((((((HUGS))))))))))))) Quill xxxxx
