BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember in reply to FormerMember

    Thank you all for your replies and support. I have been much better today. We took Kate to school and although I was  bit self concious of my looks, I declined the hat and went in for the kill. The kids bless them did not bat an eyelid. All the other parents took the pee out of me calling me Kojak, amongst other delightful comments so it was all good. I was more worried about the kids reaction and how that in turn would affect Kate. Then Linda took me to work and I had a real busy day and quite enjoyed it. About the same time as yesterday though, I came over freezing cold again and am now struggling to get, let alone keep warm. My eye is a bit better albeit sore still. I might try a soak in the bath soon to see if it helps warm me up. A day for rest tomorrow then work again on Friday, hopefully. Good luck with the scans Jackie, I know that feeling oh so well.I am not looking forward to mine at all, so much is at stake this time, as the whole brain radiation is really my last chance, I know only too well that if it hasn't worked, there are no other options left, so it has to bloody well work.I am hoping the cold chills I am feeling  will end soon as I come through my worst time on the Sutent,  I have had these before and is a common side effect. 

  • FormerMember
    FormerMember in reply to FormerMember

    Have a great time in Sidmouth Fay, I think your weather should be ok. It is sunny here today but still a bit chilly. Linda has taken Kate off to school and is then going for a training session with a friend in preparation for the face for life Kate is doing really well and has rised a staggering £500.00 already. If anyone else would like to sponsor her, the link is   www.raceforlifesponsorme.org/katejakubiak1. 

    I feel okish today after a really good nights sleep. Last night Kate was a bit upset and she was crying just like she did when she realised the seriousness of my condition. It was heart breaking. I lay in bed with her and gave her a cuddle but nothing can take away whats going on. I hate what I now see in the mirror, how on earth does Kate cope with it. She must be so so frightened and scared. She is my lovely, precious little girl and I so wish I could take away her pain. In a minute Im going to take Mollie for a slow walk around the lake before deciding on a plan for the rest of the day.

  • FormerMember
    FormerMember in reply to FormerMember

    Oh Bob big, big ((((((((((((((((((((hugs))))))))))))))))))))))) for Kate and for you it must be so hard. Was very to hard to swallow my mouthful of bacon sarnie with such a huge lump in my throat.

    Much love Di X

  • Awww, Bob, mega hugs for you and Kate, and Linda too.....isn't it so hard for young ones.......

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    This one is just for little Kate, god bless her.

    Teddyandhearthugsfrommetoyou.jpg Teddy and heart hugs from me to you image by jdfangman

    Love Maryxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Mary that's a lovely hug to send Kate. She is a very brave little girl who is dealing with loads of stuff at moment, and i think you can never have too many hugs

    Love Linda x x

  • FormerMember
    FormerMember in reply to FormerMember

    Indeed my dear, you can never have too many hugs. Well today has been a bit better. haven't really done too much today, a bit of washing and a couple of odd jobs around the garden and thats it really. The rest of my time was spent  in the garden whilst Linda took kate to school and did her walk. Then we spent a bit of time together before Linda picked up Kate from school and took her to therapy. I did get tea on the go and walked Mollie after feeding her. I feel a cold coming on which is not surprising as poor Linda  and Matt have both had one. Im hopefull to be OK for work tomorrow. Again this afternoon  I came over all cold so I had a good soak in a hot bath and that helped a lot . I have spent the last hour or so watching our three great hopefuls trying to convince us to vote for them at the election in May, I would like to say that a particular one wood be good for the country but Im not so sure. They all talk vote scoring tactics, we have heard it all before, have we not folks. I am interested though and will be casting my vote on the 6th may. 

  • FormerMember
    FormerMember in reply to FormerMember

    ( Just a brief pop on to the site ( apologies to all other buddys, sure you understand, just gotta see how my Sir Bobs doin and Lady l and Kate) xxxx

    Sir Bob, just gutted you have had such a rough week, ( but Im glad you are telling it as it is )  pleased your poorly eye is improveing, the hair will return buddy, so much so -  its going to be coming down your nostrils and out of your ears , and I echo Darling Marys hugs for Kate, she is a little princess isnt she - £500  raised - wowsa what an amazing little girl, chip off the old blocks hey xxxxx

    ((((((((( Hugs )))))) For You and  Princess Kate and some fat ones for Lady Linda (((((((( FAT ONES LOL )))))), a very special lady behind you both, keeping you strong xxxxxx

    I have everything crossed for your results and am willing you  on all the way dear friends,

    Your family anthem to me is " I get knocked down, but I get up again !, do think your ever gonna keep me down?")

    Hope this week is stronger for you all and kinder to you

    Kate xxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    ( perils of working in retail, open 7 days a week, so dont know when the week starts nor what day it is, haha)  hope your day at work goes well xxxx

  • Sir Bob, I bet a threatening cold is what is making you feel that rough.....are you allowed stuff like Echinacea? cos that might help you fight it off......I echo those big hugs for you all, sent with my love

    Moomy