BOB JK My diary of kidney cancer (to be continued)

Hi Bob,

 My god have you been through the wars, i read your post with baited breath, it must have been a horendous day for you but once again you have come through it and there is a light at the end of the tunnel. I wish you all the best with your treatment, im sure it wont be as bad as what you have already been through, at least i hope not. When your feeling up to it can you tell me if you had any symtoms of having brain tumours that i need to look out for.

Your going to be very trendy with no hair and theres lots of trendy hats you can get that Kate will aprove of her new trendy Dad.

Good luck Bob ill be thinking of you and wishing you well , stay strong Love to all Fay. XXXX

You sure are on one hell of a rollercoaster ride Bob, but I am absolutely delighted to hear this excellent news. Hope everything goes well today with your meeting.

I think Linda & Kate should buy you a "Im too sexy for my hat" cap. I can just see you in that and I think it would compliment your wonderful sense of humour that you always have no matter what gets thrown at you.

Stay strong Bob, keep fighting and keep on sticking your two fingers up to cancer!!

Luv to you all, Shirley x

Hi Bob - Just like everyone else on here - I wanted to hello, and send you my best wishes - its great news that the sutent is still working, but - if anyone deserves another cat's life - then its you! - after all your bravery and treatment - I am so so pleased for you!  Good luck with the head shave!!!!!!

kaz xxx

dear bob

I found a game which might help you pass the hours in the middle of the night when all the rest of world sleeps except you and Mollie........

I like the game Susan, well done for that and thanks once again for all your replies.

A real bitter sweet day today. We went to London and met with Proffesor Gore and he confirmed that he thought the whole brain radiotherapy was the best and in fact only option left. He then said that he would make us an appointment with the clinical oncologist who would be advising us. Then as luck had it , he was in the building and came to see us.  He was a very nice chap but he didnt pull any punches. He told us that because of the amount of gamma already recieved the further amount I could have was limited. He also  pointed out that the side effects could be severe and permanent, these could include a parkinsons like tremor, severe sleepyness and severe long and short term memory loss, in his words a zombie like state. I only have a 30% chance of the treatment being successfull. What a shitter, i was not expecting that at all. We have another meeting with him a week on Tuesday and I need to have a plan in my head by then. Do I chance the treatment for a possibly limited extention to life or do I stop the Sutent as well and live out the rest of my days for however long. Its a difficult one and Im not looking for advice on this as it is a very personal decision. The real *ucker is that the sutent is working really well everywhere else and the chest tumours have all but dissapeared. So I need to talk to my family and make some choices in the next week ahead. The soonest i could have full brain radiation is on my next break of treatment in about 5 weeks time and would involve us travelling to London every day for two weeks for 15 minute bursts of radiation.

Dear Bob - I wouldn't presume to give advice in this situation - I wouldn't know where to begin.......but I just wanted you to know that I'm thinking of you and your lovely family.  Your decision will be whatever you feel is right for you in the present circumstances..............but I do hope that you can continue to create lovely memories for young Kate for as long as possible.  My respect, love and best wishes to a very brave man and his family........(((((((((hugs))))))))))) to you all  Dot xxxxxxxxxx

Sir Bob, what a bummer! My heartfelt sympathies to you and your lovely wife and daughter.......I so wish the news would have been better. What tough decisions you all face now. Sending you love, hugs, strength and wisdom.

A really nice day today. Last night we had all the boys here and Katie and we talked in to the night. We told them about the news of the day and the difficult choices ahead. They were all gutted but very supportive and whatever I decide I know they will support me. This morning our Kate came back from her sleepover and so we started on telling her the latest, we have always said we would be upfront and honest with her, however bad the news and we think from her reaction she had already guessed. She has been a bit quiet and clingy since but otherwise good. Im sure when she goes to bed tonight the questions will really start.   As everyone stayed over last night it was great to have the house full this morning. I did not sleep too good having went to bed at about eleven and then was up at about twoish in the morning. I was on "chat" for ages whiling away the hours and then Linda came down as well so we had a cuppa and then went back to bed and managed a bit of sleep. We have all just been for a three mile walk, not bad eh, I could have walked another three. It just goes to show how some days you feel really good, like today, and another day you struggle to do anything. Anyway Linda and Kaie decided last night to do this walk and I was determined to join them. Now I have just had a bacon sarnie, sorted my farmville out lol and am know ready for a kip

Oooh Sir Bob,

Your last few posts have produced quite a few wet ones

I think a ((((((((((((((((((((((((((((( Group Mac Hug to Bob, Linda,Katie)))))))))))))))))))))))))))))))))))))))))))

 is in order,

Lost for words Kate xxxxxxxxx

Hi Bob

my thoughts are with you and your family in this.  As you say and we talked about, the decission is yours to make, however, either way I know whichever route you choose you will do so for all of the best reasons.

my most heart felt respect for you and your family.

xxx